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Jules74's avatar
Jules74
Member
12 years ago

Results of post surgical follow up

Update: surgeons went into my lumpectomy thinking they were taking a 1cm lesion with a few lesions mm's in size in close proximity ended up being a 60mm block of tumour with branching bits that they excised (yep, kinda fucked that up didn't you guys.....). Thank goodness I've got pretty big boobs or there'd be nothing left!! They also took two lymph nodes for biopsy at time of surgery and found they were cancerous.  Anyway, surgical follow up was yesterday, 2 of 3 margins were clear so obviously we've gotta go again. Surgeon (Prof Ung) reckons there's a 50/50 chance he can get the rest with another lumpectomy, I'm like, you're joking right mate, I'm not making any decision based on a 50/50. So, medical team meeting was last night and I don't get to see him again until next Monday where we decide on which surgery we do in addition to the full axillary clearance (which is a given), may be another go at lumpectomy or mastectomy and immediate reconstruction.  Because of time constraints with the availability of surgical time and their desire not to wait on removing the rest of this tumour, my only option is an implant.  I'm ok with that as I have researched the other options and whilst they are the Rolls Royce of reconstruction options and will prob give the best aesthetic outcomes, I don't want to have to recover more than one area of my body at a time given my schedule as a single mum of a toddler with a FT job.  I figure I can go see a plastic surgeoun down the road if I want to work on the symmetry etc.  I don't really care either way just want to get this crap out of my body.  Given that a VERY experienced radiologist did imaging and hook wiring on me the day of surgery and said the surgeons were grossly underestimating the size of the tumour (she thought it branched extensively throughout the breast) I reckon mastectomy will end up being the go. Unfortunately due to type & size they're going to go the whole hog with post surgical treatment: radiation, chemo & hormone therapy which will undoubtedly be a barrel of laughs .  Tumour was hormone & HER2 pos which obviously opens up my treatment options.  Next surgery Thurs Dec 5, final decision on what exactly that will be is next Monday (just a couple days before surgery).  

I'm at work, determined to maintain normality until it all starts to unfold in earnest.  I'm happy but of course impatient to move forward with getting the bastard dealt with. 

3 Replies

  • I'm sorry to read that your results are not as we would have hoped for. However, the good news is that you have many treatment options open to you. Just take a deep breath before you make any decisions and, if you can, ask many questions about the differences between success rates for treatment with lumpectomy versus mastectomy. It's such a personal decision that only you can make - unless you have a strong recommendation from your doctor. I wish you peace of mind - a tall order at this time but once a decision is made, it will be easier. Sending hugs, Jeanine xxx
  • I'm sorry to read that your results are not as we would have hoped for. However, the good news is that you have many treatment options open to you. Just take a deep breath before you make any decisions and, if you can, ask many questions about the differences between success rates for treatment with lumpectomy versus mastectomy. It's such a personal decision that only you can make - unless you have a strong recommendation from your doctor. I wish you peace of mind - a tall order at this time but once a decision is made, it will be easier. Sending hugs, Jeanine xxx
  • Hi Jules, it is 3 years since I was diagnosed. Nothing showed at all on a mammogram, but a 4mm tumour showed on ultrasound. On lumpectomy, 6 days later, it was found to be very aggressive and 21mm, with a very small margin. I also debated having a second re excision, but decided against that and went for the mastectomy instead, as my boobs were not large and 2 lumpectomies would have made a mess. I was also able to avoid radiation treatment having the mastectomy, so it made reconstruction an easier choice. None of my lymph nodes were affected, ( I had 10 removed). I wish you luck with what ever you choose. Love Chris x