Forum Discussion

keizah's avatar
keizah
Member
13 years ago

PT

Hi all, in September 2009 I felt a lump on my R breast. Mammogram, Ultrasound and needle biopsy result was inconclusive so I needed lumpectomy. The result came back as malignant PT. A week after the lumpectomy, they did a wide excision for clearance. I was 25 when I was diagnosed and although I've gone to 2 different private hospitals for further information, they could not provide  much. All I was told is: PT does not respond to chemo - only to surgery and that it is usually benign. I had a doctor's appointment yesterday as I recently felt a lump on my L breast, same spot funny that (11 o'clock). I am due to have the trifecta combo in 2 weeks again - mammogram, ultrasound and needle biopsy. This group gave me more insight compared to chasing doctors for further information for a year after being diagnosed. Sometimes I feel lucky knowing that I won't need chemotherapy which I think is very inhumane but at the same time unlucky that malignant PT is rare that there is not much information out there. The risk of recurrence and the aggresion scares me but I have to be strong. I just wish they would do more research on malignant PT because at the end of the day, it's still cancer.

  • Colleen63's avatar
    Colleen63
    Member
    13 years ago

    Hope that by now you have had some satisfactory outcome since your post.

    Gosh 25 is young and you are not alone I see on here.  Sorry to hear that you have now to go through this a second time and with seemingly little info.

    I can only reiterate that if you are no satisfied with your medical team or Dr, then get another opinion as you cant play around for every day its left it is growing.  Phyllodes grows rapidly and mine came up between mamos and ultrasounds to the size of a guinea pig!

    Healing vibes to you and hope that you can post on here how you are travelling with this second scare.

    Best wishes

    Colleen

  • katie76's avatar
    katie76
    Member
    13 years ago

    I understand completely how you are feeling. It is frustrating that there is not even some basic breast cancer information in Australia out there that recognises and discusses Phyllodes tumors, the types and the teatment options - this is something that I feel I need to look into. (there is a brochure on Phyllodes tumore from Britain that I have a copy of, I can email it to you if you would like). It definitely would have been nice to have been given a little bit of information rather than verbal information and then needing to search the internet far and wide to find out something, anything about Phyllodes and what the next course of action would be or maybe should be.... That's why I started this group and wrote my blog on this site. I remember feeling a little like a breast cancer fraud and not knowing whether or not to say I had cancer, none of my specialists seemed to be overly concerned - I used to say I have a rare breast tumor but now I just say I had a rarer form of breast cancer. 

    I am assuming that you have had the biopsy by now. Prayers that you get good news. If you need to ask any questions or just want to write something to get it out of your head please feel free to message me or write it in this group blog. Please keep in touch.

    Cheers Katie