PT

I understand completely how you are feeling. It is frustrating that there is not even some basic breast cancer information in Australia out there that recognises and discusses Phyllodes tumors, the types and the teatment options - this is something that I feel I need to look into. (there is a brochure on Phyllodes tumore from Britain that I have a copy of, I can email it to you if you would like). It definitely would have been nice to have been given a little bit of information rather than verbal information and then needing to search the internet far and wide to find out something, anything about Phyllodes and what the next course of action would be or maybe should be.... That's why I started this group and wrote my blog on this site. I remember feeling a little like a breast cancer fraud and not knowing whether or not to say I had cancer, none of my specialists seemed to be overly concerned - I used to say I have a rare breast tumor but now I just say I had a rarer form of breast cancer. 

I am assuming that you have had the biopsy by now. Prayers that you get good news. If you need to ask any questions or just want to write something to get it out of your head please feel free to message me or write it in this group blog. Please keep in touch.

Cheers Katie