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kazza4450's avatar
kazza4450
Member
12 years ago

PHYLLODES TUMOUR

Hi, I have just joined and have been reading different things on phyllodes tumour.

Today I got the results of my core biopsy and have to see surgeon to get the lesion removed.

My question or one of them was, does the public health system look after you pretty good, as I have no private health insurance.

My results were "Fibroepithelial Lesion in which it is not possible to distinguish a phyllodes tumour from a cellular fibroadenoma" Have others had similar results to mine and what was the protocol if so. 

Good to have a bit of an idea before meeting with the surgeon.

Not even sure who can see this as I am navigating my way around this.

I was calm until I read some more about it. I guess my doctor wanted me to speak with surgeon more about it.

Any info is appeciated

Cheers, Karen :)

5 Replies

  • Hi Karen, 

    I'm so sorry you've been diagnosed with bc, it always comes as a shock. Be kind to yourself, take a support person with you to meetings and write down all your questions for the docs.

    i don't know anything about phyllodes tumours but can tell you that as a nurse I am really impressed with the public health system and the treatment they provide. I haven't had the option of cold caps & silicone dressings, but my friends in private system haven't had a choice in surgery or chemo or supportive treatments post-chemo. I guess whether you go public or private, you will receive more current treatment at a large  city treating centre rather than in more remote regions. I hope you find the treatment options that suit you. 

    Wishing you all the best for the challenges that lie ahead, stay in touch, Tracey ??

  • Also, all the best. I think my main recovery was about 3 weeks. Painful, but not like mastectomy. 

     

  • Hi , I just recently had a phyllodes tumor removed in the public system and it was fantastic, nothing to pay, brilliant surgeon, I flew to Sydney westmead to have it dine rather than in reginal small town, but the flights were my only cost, private health insurance I know nothing much about other than when shit gets real you are better off public as that is where the best equipment is and they don't have to count the dollar of each thing they do.

  • Hi Robyn,

    Thanks for posting a message with the welcome and also letting me know that everyone can see it.

    Much appreciated...:)

     

  • I just want to say welcome to this network.I can't answer your questions,but I am sure that there will be someone that can.However,I just wanted to let you know that you have posted this correctly,and everyone can see it :) Cheers Robyn xox