Phyllodes tumour news

Hi Kara, I think we are both on the Phyllodes Support Group on Facebook. I am a  malignant Phyllodes survivor from 2008 (lumpectomy) with a recurring Phyllodes in 2011 that was treated by mastectomy. Surgery is indeed the main treatment in these tumors as they have not been shown to respond to chemo though there is some research that has recently been released that shows hope that there may be some treatment available in the future.

Hi Kara, I think we are both on the Phyllodes Support Group on Facebook. I am a  malignant Phyllodes survivor from 2008 (lumpectomy) with a recurring Phyllodes in 2011 that was treated by mastectomy. Surgery is indeed the main treatment in these tumors as they have not been shown to respond to chemo though there is some research that has recently been released that shows hope that there may be some treatment available in the future.

Hi Kara74,

I was recently diagnosed and have been successfully treated for a malignant Phyllodes tumour. 

The tumour grew very quickly. My consultant informed me that surgery was the most effective approach, as Phyllodes are not typically known to respond to other treatments. It was approx. 50mm when it was removed. 

My initial lumpectomy did not achieve clear margins so I opted for a full mastectomy. During this time and since, I have had full body scans to check if it had spread. 

My very good news is that the latter surgery eradicated the tumour completely and the scans were negative. 

My consultant has declared me completely free of cancer and therefore I will now only have annual mamograms on the other side.

It has been a rocky ride and I'm still coming to terms with my lucky escape.

The key thing for you is to stay positive and open-minded, as there's an extremely good chance you'll be okay. Malignant Phylodes are very rare and the percentage that mastatise are equally low.

My best wishes.

Hi Kara74,

I was recently diagnosed and have been successfully treated for a malignant Phyllodes tumour. 

The tumour grew very quickly. My consultant informed me that surgery was the most effective approach, as Phyllodes are not typically known to respond to other treatments. It was approx. 50mm when it was removed. 

My initial lumpectomy did not achieve clear margins so I opted for a full mastectomy. During this time and since, I have had full body scans to check if it had spread. 

My very good news is that the latter surgery eradicated the tumour completely and the scans were negative. 

My consultant has declared me completely free of cancer and therefore I will now only have annual mamograms on the other side.

It has been a rocky ride and I'm still coming to terms with my lucky escape.

The key thing for you is to stay positive and open-minded, as there's an extremely good chance you'll be okay. Malignant Phylodes are very rare and the percentage that mastatise are equally low.

My best wishes.

Hi Kara74,

I was recently diagnosed and have been successfully treated for a malignant Phyllodes tumour. 

The tumour grew very quickly. My consultant informed me that surgery was the most effective approach, as Phyllodes are not typically known to respond to other treatments. It was approx. 50mm when it was removed. 

My initial lumpectomy did not achieve clear margins so I opted for a full mastectomy. During this time and since, I have had full body scans to check if it had spread. 

My very good news is that the latter surgery eradicated the tumour completely and the scans were negative. 

My consultant has declared me completely free of cancer and therefore I will now only have annual mamograms on the other side.

It has been a rocky ride and I'm still coming to terms with my lucky escape.

The key thing for you is to stay positive and open-minded, as there's an extremely good chance you'll be okay. Malignant Phylodes are very rare and the percentage that mastatise are equally low.

My best wishes.