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wooda's avatar
wooda
Member
9 years ago

Paclitaxel and neuropathy

Hi ladies, just seeking some advice if I may. I am due for my sixth dose of paclitaxel tomorrow and a couple days ago became aware for the first time of some tingling in my feet and fingers. Fingers have essentially improved and feet just feel spongy. My oncologist would ideally like me to have 12 but has mentioned stopping at 8 if I got numbness. Just a bit nervous at how bad it could get, Would love to hear from anyone who has experienced and how you managed, many thanks.

20 Replies

  • Am painting my nails and have started MegaB a few days ago? Here's hoping all goes well. I really do appreciate all your advice, many thanks.
  • Apparently the polish protects them from oxygen & sunlight & to use a black or red colour! 
  • I took one Mega B a day. Wish someone had told me about painting my nails - my fingernails were fine, a slight nicotine-like colour and a few lines. But my toenails went white, grey, brown and black! Didn't lose any though.
  • Hi Wooda, I am having No 10 on Friday & noticed some tingling at 8. My oncologist said last Friday she would stop at 10 if it became worse because sometimes it can get worse after finishing treatment. Yesterday I had numb toes, it has gone today. I have acupuncture every Monday & reflexology on Wed so think this is helping. I am determined to finish but will see this time next week. My nails are in good condition still, just a few have are slightly discolored. She told me to keep them painted at all times.
  • Thanks for that, do you remember how much Vitamin B you took?
  • I had the deep and meaningful with my oncologist at dose 10. My fingers weren't too bad but my feet were completely numb in places, extremely painful in other places and I was really worried about being able to walk if it got much worse. He wanted me to complete the course of 12, but wasn't too worried about the last one. Matter was resolved by finding a lump under my right arm (totally benign schwannoma) but that did rather focus my thinking differently! I finished the course, started taking vitamin B, my feet didn't get worse but have taken a long time to recover. The painful part recovered best, still have numb bits after 3 years but doesn't affect anything. Anything anyone suggests that will minimise the impact is worth doing (such as vitamin  B). Still think it was worth doing the full treatment!! Good luck.
  • I got reduced sensation and balance issues but was able to complete and all oretty much improved / gone.
  • Hi @wooda. I've just had my 7th cycle of pacitaxel today. I haven't had any numbness in my feet but noticed some in my left thumb and first finger after the sixth. The nurses at Chemo seem to be happy that I could still feel hot and cold. No talk of stopping treatment yet. Hope this helps. Good luck with the rest of your treatment