Forum Discussion
tul
9 years agoMember
Ovaries removal - your experience
Hi
I am in my early 40th and due to have my ovaries removed soon.
I would like to hear from members who had their ovaries removed - what kind of impact it made? any mood changes, bone density problems? Medications they need to take?
I am confident I want to go ahead with this procedure and will appricate any "real life" stories.
Many thanks
Tal
17 Replies
- tulMemberThanks so much for your tips.
Have a good break KJ - primekMemberIf your bone density drops too low they will recommend prolia injections 6 monthly (it's not hormone related at all). Ensure you have your Vit D levels checked as imperitive to Bone health. There is an online course you can do to assist in maintaining bone health. I planned to do it but presently just managing to get back to full time work has been a struggle, no additional energy.
I have yearly bone density scans as mine was crap before starting femera.
http://onero.com.au
Kath x - KatyJoyMemberThanks tul, primek and nikkid, I will definitely visit an onco gynae and discuss the benefits/risks. I was going to just go to my normal gynae. I also have polycystic ovarian syndrome, so I don't know if that maters. Anyway, I feel like I've just had enough and need a break at the moment, I'm also out of leave at work so need to build some up.
- nikkidMemberI do weight bearing exercise daily (walking and running) as well as strength and core (pilates and weights) and I take Vitamin D each day. Helps so far :)
- tulMemberThanks for all your replies.
I don't have the gen but I had my BC a year ago. Also had IVF - so my chances to for OC is greater.
The Onco and surgeon who I trust so much both said I don't need to do this, but I believe I do.
I know someone my age and similar story of BC, she did that. she says after she did that and tells doctors they said it's good she did. So I think the medical protocol say "no need to do" but in reality it may be good practice.
I also think not all gens found. like they found BRCA1\2, one day they will find 3,4...
KJ - think gyno-onco is the one to approach. PM me I can give you details in Melbourne if you want.
Anyway, I really want to hear if someone needed to get medication to increase bone density, mood changes etc.
I understand I won't be able to get medication (for example to increase bone density) I guess because it has the Estrogen and I cannot get these kind of medis. - primekMemberMake sure your referral is to an onco gynacologist not just a gynacologist. They specialise in cancers of those areas so know exactly what should be removed and what can stay and effects etc.
- nikkidMemberTalk to your gynae - it's a much bigger op if you include a hysterectomy and annual review can help via ultrasounds etc
- KatyJoyMember6 months to think, I don't think I'm changing my mind but can't face another surgery just yet, have to ge my port out but that's minor, and may or may not get nipples, not sure yet, just had enough for the moment. But if I get my ovaries removed, should I just have a hysterectomy? Am I being a bit gung ho?
- primekMemberYeah. I get that. It's your body and your choice. I had bilatetal mastectomy and woukd have had ovaries if carried e gene my Aunts did, but didn't. Do far I'm gene neg. And very aware. Not all gene mutation cause ovarian though. Some just breast.
- KatyJoyMember
@Primek, I have been to see the genetic counceller at the Austin hospital and my chance of my cancer being genetic was 7% and they don't advise testing under 10% but at that stage I wanted a double mastectomy and ovaries removed and they said that's the maximum they would advise if I was positive for the gene anyway. Whether I have the gene or not, there are other genes we don't yet know the function of, and the fact is I have developed this at 42, so something in me caused it.