Forum Discussion
other treatment options?
I am 55 and just diagnosed, a couple of weeks ago, with iDC, i was really hoping it would have been insitu still, but not to be. I am booked for a mastectomy on the 20th (2 weeks eeek). The biopsy said high grade on Nottingham scale, hence the decision for a mastectomy over a lumpectomy.
ok here we go. Has anyone heard of black salve???? its apparently a paste that you can apply to the cancer and it draws on the cancer cells, pulling it all out like a plug????? sounds too good to be true? has anyone done any reading on it?
ok here we go. Has anyone heard of black salve???? its apparently a paste that you can apply to the cancer and it draws on the cancer cells, pulling it all out like a plug????? sounds too good to be true? has anyone done any reading on it?
51 Replies
wow ok, I fully get it lol I think I would definitely opt for the reserve parachute!!Ally Jay said:Well I'm an old hardcore skydiver. Imagine if I'd had a student who was going for their first jump and I offered them two rigs, one with a reserve parachute and one without, and explained to them that the one without was much lighter, less bulky and easier to wear. If they asked what the benefit of the one with the reserve over the one without was, and I replied, "Well, I think the one with the reserve is a bit of overkill myself. 99% of the time, the main parachute opens and the reserve is never needed....I still guess they would all choose the less comfortable one, even for only a 1% benefit. You wouldn't want to be plummeting to earth at 270km per hour, grabbing air and with a bundle of tangled washing behind you, wishing you had the reserve would you?- Oh ok, well best to wait and see what he says, but I'd say chemo as its grade 3 so must be also ER+ so thats a hormone blocker. You'll definitely have more direction after your meeting, so try not to overthink, there are so many variables, but just know you'll be ok. :) Hugs M x
well that idea has totally passed lol, I saw photos of women who had used black salve and OMG what a disasterour lookPauline_BCNA said:Hi @bevvzy
We recommend that you to talk to your oncologist about any complementary medicine or supplement you might be thinking of taking.
The USA Memorial Sloan Kettering Cancer Centre has a great website and smart phone app called ‘About Herbs, Botanicals and other Products’. The website provides a lot of information about herbs, botanicals, vitamins and supplements and possible adverse effects on breast cancer treatments. Please note that 'black salve' preparations, which contain an alkaloid derived from bloodroot and zinc chloride, can have serious adverse effects. There are documented cases of black salve eroding away at tissue and making lesions worse, leading to significant damage and scarring to the skin. Inappropriate use of bloodroot for cancer treatment can have severe adverse effects.You can learn more about bloodroot, a component of black salve, here
If you have any questions or queries, please feel free to get in touch with me via email: [email protected]
Best,
Pauline McLoughlin, Senior Policy Officer
all I know is that im grade 3 on Nottingham and hormone pos, which hormones I have no idea :) I dont think radio as he advised ther mastectomy because he said, given my lack of mobility, he didnt want to have to drag me up there every day for 6 weeksmelclarity said:@bevvzy It actually depends I know you say high grade and grade 3 but whats your diagnosis? are you ER+ Her2- or + or all of them or Triple Negative?
I'm tipping if theyre saying youre a grade 3, that'd be chemo...radio not sure and obviously hormone medication again, depends what your diagnosis is?- Hi @bevvzy
We recommend that you to talk to your oncologist about any complementary medicine or supplement you might be thinking of taking.
The USA Memorial Sloan Kettering Cancer Centre has a great website and smart phone app called ‘About Herbs, Botanicals and other Products’. The website provides a lot of information about herbs, botanicals, vitamins and supplements and possible adverse effects on breast cancer treatments. Please note that 'black salve' preparations, which contain an alkaloid derived from bloodroot and zinc chloride, can have serious adverse effects. There are documented cases of black salve eroding away at tissue and making lesions worse, leading to significant damage and scarring to the skin. Inappropriate use of bloodroot for cancer treatment can have severe adverse effects.You can learn more about bloodroot, a component of black salve, here
If you have any questions or queries, please feel free to get in touch with me via email: [email protected]
Best,
Pauline McLoughlin, Senior Policy Officer - @bevvzy It actually depends I know you say high grade and grade 3 but whats your diagnosis? are you ER+ Her2- or + or all of them or Triple Negative?
I'm tipping if theyre saying youre a grade 3, that'd be chemo...radio not sure and obviously hormone medication again, depends what your diagnosis is? - My guess would be chemo and no radio. But that depends on stage and position.
ok so I have my mastectomy next thursday, the 20th, it is grade 3 (Nottingham) but not really that big, about 22mm. If the sentinal node is clear, what would others predict ie if i have to have everything, I will have it!melclarity said:Hey!
I actually find it odd based on your pathology that the Radiologist said it would be of minimal benefit. Being Grade 3 particularly would generally be chemo and radiotherapy, never heard of that before. Be interesting to see your 2nd opinion. When this one said 'you must' that's because they view it as you have to hit it with everything so that means both. x- @"Ally Jay" ...love this description and a very valid argument
- Well I'm an old hardcore skydiver. Imagine if I'd had a student who was going for their first jump and I offered them two rigs, one with a reserve parachute and one without, and explained to them that the one without was much lighter, less bulky and easier to wear. If they asked what the benefit of the one with the reserve over the one without was, and I replied, "Well, I think the one with the reserve is a bit of overkill myself. 99% of the time, the main parachute opens and the reserve is never needed....I still guess they would all choose the less comfortable one, even for only a 1% benefit. You wouldn't want to be plummeting to earth at 270km per hour, grabbing air and with a bundle of tangled washing behind you, wishing you had the reserve would you?
