I have neuropathy in my hands and feet pretty bad so oncologist has put chemo on hold for the last 2 weeks. I have been having paclitaxel fortnightly. Next week she is changing the drug and it will be weekly. Pretty bummed about that as i was due to finish chemo next week and now i won't finish until end of November. Also, my mum has found a lump in her breast and is due for a biopsy in 2 weeks. Not sure we could cope if we both had cancer at the same time...

Almost there. Better to change than to risk it. Hope your Mum's lump is just a cyst. Fingers crossed.

I am thinking it is a cyst but you never know. Just feeling a bit down at the moment because of the delay because now everything else is delayed

I still have residual neuropathy in my fingers and toes 5 months after stopping chemo :( I know it's disheartening that you have had a change to your regime, but it's for the best.....hopefully it will give you some relief from the neuropathy....Sending prayers LOUDLY to the universe for your Mum's lump to be only a cyst.......best wishes - Tracy

I have my fingers crossed for your Mum Tarnya, I hope its just a cyst.

I refused to continue with Taxol after 3 weeks when my neuropathy became intolerable. I was put back on FEC for the last one. I was told that it was very rare for someone to react as badly to it as I did :( I was just petrified of carrying on and suffering permanent damage. And I honestly just could not deal with the burning and stinging on my hands and feet. It had me in tears and scratching and literally going mad. I am so sorry to hear about your mum, and hope it is just a false alarm. HUGS XXX

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socoda
Member
9 years ago
That's brilliant!!! Xx
Hopes_and_Dream
Member
9 years ago
Oh that is wonderful news Tarnya! Such a huge relief for both of you :) Hope you are doing a bit better, take care . Jane x
Tarnya74
Member
9 years ago
Some good news today - mums lump is just a cyst
Tarnya74
Member
9 years ago
I am feeling really lethargic and lots of hot flushes but apart from that i am doing ok
Brenda5
Member
9 years ago
I had docetaxel and was fine with the first dose but on the second I had a reaction. Have someone keep an eye on you as sometimes the nurses get busy, walk around to the next cubicle and then the reaction started. I was in no condition to push any emergency button and my hubby realised quickly and ran for the nurse. Lots more premeds and I was fine to continue.
Tarnya74
Member
9 years ago
I am now on docetaxel every 3 weeks. Luckily i only have to have it this week and then in 3wks and then chemo is finished
Tarnya74
Member
9 years ago
Chemo is tmrw so i will let you know the name
Ne
Member
9 years ago

Tarnya74 said:

Yes my oncologist said the extent of my neuropathy was rare and has requested tests for an underlying condition. I can't remember tge name of the new drug but she said it was the same as paclitaxel but without neuropathy but possibly more nausea.

Can you keep us posted on the name of the drug please? I have a friend going through this and starting Taxol now but it would be nice to know of a backup in case she experiences issues.
SusieQ2
Member
9 years ago
Hi Tarnya,
Sorry to hear you are having such a hard time with neuropathy ..its a pain! I was taken off chemo for the same reason, which pushed out my treatment and holiday !!!! plans. I was not happy! Having said that, the weekly treatment was much better and did allow improvement to the feeling in my fingers. Eight months post treatment I have numb toes only, so while it has been slow, there has been improvement. Just make sure you adjust to everyday life, like holding onto a rail if using stairs and being mindful about what you do .. I am sure that it won't be long before you see an improvement.
Susie x.
Tarnya74
Member
9 years ago
Yes my oncologist said the extent of my neuropathy was rare and has requested tests for an underlying condition. I can't remember tge name of the new drug but she said it was the same as paclitaxel but without neuropathy but possibly more nausea.