Forum Discussion
Milly21
8 years agoMember
Onco Dx test
I was wondering has anyone had a oncotype dx testing done? How did they find it ,was it useful in decision making?
16 Replies
- Pommy8MemberAnyone with grade 3 stage 1 my lymph clear With k67 -58%. Did anyone's come back with low score from oncotype?
- AllyJayMemberThe old statistics question which is so hard to know in advance which number you'll be. 2% sounds little, but as @Afraser says...every point counts with cancer. 2% discount on a pair of shoes or a handbag....meh...not worth the bother, but I'd bet if a person's home loan repayments went up 2%...people would squeal. A large Sydney high school has around 1000 pupils. If a crazed gunman entered to school and shot dead 2% of the children...that would be 20 dead kids. Suddenly that 2% seems somewhat large and if the parents of one of those dead pupils complained about the school security, I doubt they'd be happy to be told "Aaah but 98% of the children were fine". A hard choice to make for sure, but remember, there's no rewind button here and one only generally gets one bite of the apple for an outright cure in the beginning of this horrible process. Good luck with your decision.
- Pommy8MemberThanks for replying I wish they would just say you have to have this.
Just a hard choice and not got long to make it. - Julez1958MemberHi @Pommy8
I had no node involvement and was ER + with low Ki score and my oncologist advised me the test was not worth it gir he and chemo was not indicated.I had mastectomy and radiotherapy , now on hormone therapy . - AfraserMember@Pommy8
I had a much more advanced tumour so I wasn’t about to knock back any recommended treatment but I remember my surgeon saying that every point counts. The side effects of chemo are pretty impossible to
know before you start, but it’s three months and an investment in knowing you have done everything possible to avoid a recurrence. If you knew that 2% didn’t matter, it would be a different story. But it might. It’s a decision only you can make, main thing is to have no regrets about what you decide. Best wishes. - Pommy8MemberBeen to see oncologist today no wiser but head in a spin with what direction to take.
Lymph nodes clear I'm stage 1 grade 3 KI67 _58 again high.
Given the option sending for further testing in America costing $5000.
I will be having radiation and hormone tablets regardless but because not clear cut with chemo I don't know what to do..
Like anyone I don't want it been told 4 rounds over 3 months but because it's only 2% extra is it worth putting my body through chemo on something that's not a 100% guarantee.
- kmakmMemberHi @Milly21. I had oncotype testing, EndoPredict.
I had no node involvement and am HER2-. I'm highly ER+, but only a little PR+. The latter moved me into a grey area. My ki67 (which my breast surgeon said today was a poor man's oncotype test) number was at the top of the moderate scale, also putting me into a grey area.
My dreadful family history with this disease also suggested that the oncotype test would worthwhile. I discussed it with my oncologist, and she said given my circumstances, and if I could afford it, she thought I should do it. She said she would do it in my position.
To put it in a nutshell, if some random cells had escaped and were looking for a home somewhere else in my body, would chemotherapy have a curative effect? The answer came back a very clear yes (it's expressed as a number with a clear cut off line). There was no grey area on that.
Swear words were spoken, deep breaths were taken, and chemotherapy (four doses of TC) was commenced. Currently slogging my way through Round 3.
EndoPredict costs $2980. I was incredibly fortunate that my parents very generously paid it for me.
I have no regrets for following this line of treatment. It's hard, but I don't want to look back and wonder if I could have done more. Gotta hit this sucker with everything in the arsenal. Happy to answer any more questions if you have them. Let us know how you go. Good luck. - SuziekgMemberI had the oncotype testing done. I had no node involvement and my cancer was hormonal. A part of the cancer was sent off to be tested, they give it a rating, depending on the number that comes back they ascertain what they believe the chances are of it returning. My reading was very low, based on that I was told that I wouldn't need chemo, just radiation and Anastrozole for 5 years.
The test is very expensive $4000 and cant be claimed back through medicare or private health funds. - AfraserMemberOnly with hindsight!! I had no idea what to ask at the start, but I read a bit as I went along and my oncologist was happy to
explain and discuss treatment, which was valuable. - PayneMemberI think the problem is when you are first diagnosed and seeing surgeon/oncologist etc, the pace is so fast, not much time to digest and or research. I just took immediate advice from them as I didn't know what else to do and there was a sense of urgency in their recommendations. Hope I did right. Actually, I know I did right and happy to live with the consequences - for better or worse. Maybe not a good choice of words, as am now divorced. Ha Ha (not). @Afraser and @primek, so knowledgable.