Just been diagnosed with phyllodes tumour with a sarcoma in the middle malignant of course. Is there anyone else out there as I am told both are rare . Just my luck tossing up between lumpectomy and mastectomy . Probably best to go for the big chop. How totally scary. All I can say is that my love and sympathy go out to you all especially the young ones. I suppose it is up onj your feet and fighting time. Best of luck everyone.
Hi Jeanie,
I also are newly diagnosed with PT. I have already had a lumpectomy and have been diagnosed with borderline PT. My surgeon basically said even if was benign that my options were to have mastectomy with reconstruction of the one breast. I am happy to do this but do have some concerns for the remaining breast developing tumours as already have a small cyst ??? there. He assures me that it will be monitored so if developes in size it will come out. Three years ago it started as a cyst and was told okay and now I am where I are today. I have to wait till 7 May as surgeon away. Bad timing, but thats how it works. Its the waiting for appointments and operations and results that kill you!! Only you can decide but research so you can make an informed decision. Good Luck,
Lozza.
Hi Jeanie,
I also are newly diagnosed with PT. I have already had a lumpectomy and have been diagnosed with borderline PT. My surgeon basically said even if was benign that my options were to have mastectomy with reconstruction of the one breast. I am happy to do this but do have some concerns for the remaining breast developing tumours as already have a small cyst ??? there. He assures me that it will be monitored so if developes in size it will come out. Three years ago it started as a cyst and was told okay and now I am where I are today. I have to wait till 7 May as surgeon away. Bad timing, but thats how it works. Its the waiting for appointments and operations and results that kill you!! Only you can decide but research so you can make an informed decision. Good Luck,
Lozza.
Hello Jeanie,
Clearly you have some very intense dicision making ahead of you. My only piece of advice is to not allow anyone to make those decisions for you. Be informed and ask questions regardless of how silly you may think them to be. It's also important to conduct your own research. Be knowledgable. Lumpectomy allows breast tissue to remain in reasonable shape and good surgeons will carry out the procedure with a minimal amount of scarring. Also with clear margins, the tumour will have less chance of reoccurring.
Don't be in a hurry to have a mastectomy without consultation. Make your own decision. Consider also recovery times for both procedures. After all, you'll be the one looking at your chest each time you have a shower (apologies for being blunt but this is true).
Four years ago I was diagnosed with 5 cm benign phyllodes and I had a lumpectomy. Unfortunately, two years later the diagnosis was triple negative cancer to the other breast and I had a lumpectomy to that breast. Considering that I've been through both situations, I firmly believe that self esteem is a powerful motivator to recovery.
Good luck. My thoughts will be with you.
Lilliana
At first I thought my tumour was a fibroadenoma - it wasn't until I actually had surgery last month, and got the biopsy results back, that I discovered I had a low-grade phyllodes tumour! At first I thought low-grade meant the same as benign, but it is a low-grade malignant tumour. I am shocked! Sorry to hear that you are suffering. Your decision to have a lumpectomy or a mastectomy should be made in consultation with your doctor and surgeon. Wish you well.
At first I thought my tumour was a fibroadenoma - it wasn't until I actually had surgery last month, and got the biopsy results back, that I discovered I had a low-grade phyllodes tumour! At first I thought low-grade meant the same as benign, but it is a low-grade malignant tumour. I am shocked! Sorry to hear that you are suffering. Your decision to have a lumpectomy or a mastectomy should be made in consultation with your doctor and surgeon. Wish you well.
Hello Jeanie
Welcome to the group and sorry to read that you have a malignant PT and with your tumour being malignant your surgeon should be recommending which procedure but it it were me I would definitely go for the mastectomy. If my PT returns my surgeon says it will be an instantaneous mastectomy. If they know yours is malignant without opening you up then I think you would not want to risk having it removed and then to find a week later that you need a mastectomy.
I wish you all the best for your upcoming surgery and keep us posted how you are going. It is a shock to the system facing major surgery at short notice but its best behind you than in front of you. I hope you have caring family and friends to help you through this trauma.
With every good wish
Colleen
Hello Jeanie
Welcome to the group and sorry to read that you have a malignant PT and with your tumour being malignant your surgeon should be recommending which procedure but it it were me I would definitely go for the mastectomy. If my PT returns my surgeon says it will be an instantaneous mastectomy. If they know yours is malignant without opening you up then I think you would not want to risk having it removed and then to find a week later that you need a mastectomy.
I wish you all the best for your upcoming surgery and keep us posted how you are going. It is a shock to the system facing major surgery at short notice but its best behind you than in front of you. I hope you have caring family and friends to help you through this trauma.
With every good wish
Colleen
