Forum Discussion

youngdogmum's avatar
youngdogmum
Member
6 years ago

NATALEE trial

New thread to discuss the NATALEE trial (double blinded study evaluating use of CDK4 inhibitor in hormone positive early BC) 
Feel free to post if you are likely to enrol/have already enrolled :)

My Oncologists have said I am a good candidate and I would like to do my bit for the future treatment options, so am hopeful to get accepted. Supposedly coming to my hospital September ish. Already commenced in US. 
clinical-trials
  • Sister's avatar
    Sister
    Member
    6 years ago
    There can come a time when you've just had enough but as @kmakm says, give it a few days.
  • youngdogmum's avatar
    youngdogmum
    Member
    6 years ago
    Thank you @arpie, @Blossom1961, @kmakm & @Sister for your advice and encouragement. I have another week-ish until I see Onc to finalise any questions I have and sign after that. I'll keep mulling it over, but I agree my gut instinct is probably right for now. 
    Its' been such a huge year and still isn't over, I haven't finished rads yet. No plans to return to work yet etc, just a little bit over being an adult with very little adult support in my life such as family etc 
    <3
  • Patti_J's avatar
    Patti_J
    Member
    6 years ago
    Another perspective @youngdogmum, would be to go through all of that and then find that it didn't work.
  • arpie's avatar
    arpie
    Member
    6 years ago
    So Sorry to hear you don’t have much adult support, @youngdogmum   Is there a BC support group near you?  Do you have  Breast Care Nurse?  They may be able to put you onto someone?  Mind you, BCNA is the only group that I joined!!

    I just try to keep myself as busy as I can with my passions (uke and Fishing) to push other thoughts out of my head.  

    Do do you have any passions that you can get into?  Or something that you enjoy doing that you can turn into a passion?  Wishing you all the best and big hugs xxxx

  • June1952's avatar
    June1952
    Member
    6 years ago
    @youngdogmum - you have given the trial some thought and whatever you decide is right for you.  Having had to travel the 75kms each way when I was diagnosed I can fully understand that side of your decision-making.  Trials are necessary to help future ladies but I am sure ladies living closer to the hospital will come forward to take your place in the trial.  Perhaps step back and make this more about YOU right now - with no guilt feelings.