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angie55's avatar
angie55
Member
13 years ago

more thanks

Hi Everyone, Thanks for letting me join your group. I have found the posts I've read very helpful. I am 3.5wks post double mastectomy - have to wait another 3 wks yet before I see the oncologist. I had two invasive ductal carcinomas. Because of the sizr and fact there were metastesised cancel cells in one sentinal node, my stage is 2b. I still have a lot of ache and tightness across wounds and swoollen armpits. The surgeon and BC nurse say rhe wounds look normal. I am still on targin for pain. I am not sure this is normal. Maybe it is to do with my other health issues? I am worried about having to wait so long to see the oncologist. From the postings I read, it seems people normally get in earlier. Maybe this is because I live in a regional city? What are other people's thoughts on this? angie
her2
metastases

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  • JeanineG's avatar
    JeanineG
    Member
    13 years ago
    Hi Angie. I think the problem is that most surgeons don't explain that pain and swelling is normal - I was in the unfortunate position of seeing my sister in terrible pain with swelling etc, so I knew that it wasn't just me. Don't be in a rush to go back to your normal activities - just do what feels right. I found that If I became impatient and did more than was sensible, I paid for it in pain the next day. Be kind to yourself and go at your own pace - that's the only thing that matters. Sending hugs, Xxx Jeanine
  • angie55's avatar
    angie55
    Member
    13 years ago

    thanks Jeanine,

    That is very reassurring to know I am not the only one who still has pain, stiffness and swelling at this stage. I am getting some relief from targin (slow release) and I have seen a lymphatic physio who has shown me how to do lymphatic drainage/massage.

    I finally get to see the oncologist (for the first time) next week. It will be good to know what will be happening next. I hate not knowing - can't plan anything and don't know when I might be able to go back to work (or whether I might need to change to part time work).

    Hope your recovery is going well....

    Regards & Best Wishes,

    Angie

  • angie55's avatar
    angie55
    Member
    13 years ago

    Thanks Janey!

    Hope your clots are under control now.

    I am SO looking forward to not having to sleep on my back all the time.

    Good luck with the rest of your treatment.

    Angie

    I

  • angie55's avatar
    angie55
    Member
    13 years ago

    Hi Robyn

    Thanks for replying

    Good luck with the rest of your treatment.

     

     

     

    Angie

  • Robyn_W's avatar
    Robyn_W
    Member
    13 years ago
    Hi angie,I only had a mastectomy on my right breast.however,I am 3 weeks after surgery tomorrow.i have some tightness,under my arm,but I have been doing my exercises every day.Even when it hurts I still try,and I have been walking a lot.But I am sure a double mastectomy has its own unique problems.As for the oncologist,I can't really say.i saw mine 2 weeks after surgery,but we live in inner west Sydney.Robyn