Forum Discussion

Jane221's avatar
Jane221
Member
11 years ago

Looking for answers

Firstly thank you so much for the welcome to the group, it's great to know that there is a forum to discuss these issues which seem to affect quite a few of us.

Although I am coming up to the 3rd anniversary of my diagnosis, I am only now starting to try and come to terms with the changes cancer has had on my sexual health and wellbeing and my relationship with my husband.  I had about 18 months of active treatment including; a lumpectomy, a subsequent mastectomy (when clear margins could not be achieved), chemotherapy, radiation and Herceptin. I'm currently on Tamoxifen, but my oncologist is keen to move me on to Arimidex when I see her in late February. I also spent much of last year going through a DIEP flap reconstruction, revisions and a nipple reconstruction.

After chemo I crashed headlong into menopause with the accompanying problem of painful sex due to atrophy and loss of desire (amongst a raft of other side-effects). So much of the last few years seems to have consisted of just trying to put one foot in front of the next and I'm afraid the whole question of sexual intimacy and wellbeing was often put into the too hard basket. I realise that this has not been fair on our relationship, so I'm trying to lose the embarrassment and seek out support and (hopefully) answers so that we can get back on track. My GP has been helpful and at his recommendation am seeing a specialist women's health physio in February to see if a combination of exercises/stretching and the moisturisers / lubricants will have the desired effects :-) Will let you know how I get on.  Jane

24 Replies

  • God help me if its a thing..... but i would sign up!  keen for any solution!

     

  • Love the idea of vaginal pilates...that could be a thing right?! Anyway, will certainly let you know what's involved - I'm just as in the dark as you, but I'm game to try anything at this stage - although the pilates could be a stretch!! (pun intended ;-) xx

  • Hi Jane

    No I havent but I know others in this forum have so maybe they will have some experience they can share.  It is not a thing that my husband would want to do.  As long as he is getting regular sex he thinks he is ok but it is not nearlly as interesting or passionate as it used to be.  I just cant seem to get myself in the required headspace regardless of any physical enticement!  Im just hoping to find a female viagra!  It would be so good if we could just take a pill!  Lol  

    If  you find the replens/sylk is not working I sugges you try the yes.  I changed and it has made an amazing difference for me - but we are all different.

    Keen to hear how the physio goes and what they actually do?  I have visions of vaginal pilates..... ordinary pilates is difficult enough!

    Cheers

    Julie

  • Good to hear from you as always. It's so important to know that others are in the same situation, it makes you feel far less alone and I appreciate your understanding, warmth and advice.

    I'm hoping the physio will be a useful addition to the current Replens / Sylk combo and will help relieve the physical pain, but like you, I am also struggling with lack of desire, which I guess is largely a result of the anxiety and other emotional turmoil built up over the past few years. Getting my head in the game is an enormous challenge and I'm wondering whether I (we?) should look counselling if my libido doesn't improve. What do you think? Have you been down that path?Jane xx

     

     

  • yes it is a rough ride you have been on.  It is hard to get  your head around managing the physical side effects such as painful sex and dealing with the lack of desire that either accompanies it or exists by itself.  The guilt that can come with it where we feel so sorry for our partners just confuses me at times.

    Good to hear you are seeing a physio.  There are quite a few posts on here where women have tried various remedies for vaginal skin issues and painful sex.  I hope there is something there that will help you.

    As for libido - I am still looking for something that will help me with that.  It is hard not to mourn for that previously easy passion I had.  Not giving up though.  Someone one day will find something that helps.  Thank you for joining into the forum.  We are a friendly bunch and the anonimity that the blogging gives us helps when we are discussing such personal topics.

    Love Julie

     

  • yes it is a rough ride you have been on.  It is hard to get  your head around managing the physical side effects such as painful sex and dealing with the lack of desire that either accompanies it or exists by itself.  The guilt that can come with it where we feel so sorry for our partners just confuses me at times.

    Good to hear you are seeing a physio.  There are quite a few posts on here where women have tried various remedies for vaginal skin issues and painful sex.  I hope there is something there that will help you.

    As for libido - I am still looking for something that will help me with that.  It is hard not to mourn for that previously easy passion I had.  Not giving up though.  Someone one day will find something that helps.  Thank you for joining into the forum.  We are a friendly bunch and the anonimity that the blogging gives us helps when we are discussing such personal topics.

    Love Julie

     

  • Thanks so much for your message. Let's hope that this is one area we can reclaim back! I see my physio on Wednesday and I'll let you know how it all goes. Jane xx

  • Thanks so much for your message. Let's hope that this is one area we can reclaim back! I see my physio on Wednesday and I'll let you know how it all goes. Jane xx