Forum Discussion
Hendrix
8 years agoMember
Letrozole
Good evening lovelies...today I had an appointment with MO...got my bone density results back..above average best he’s seen in awhile he tells me...and also prescription for letrozole...is there a best time to take it...morning or night...and also with the joint pain how bad has it effected some of you and weight gain? Aaahhh I’ve already put on 8kg since been diagnosed especially around the tummy area...thank you Nellie xx
11 Replies
- UnicornkissesMemberI have been on Femara only just over two months.
joint pain took a month to start, affected my knees mainly, they are VERY stiff and a bit tender when I stand up, but moving helps. Climbing stairs and hills are not as easy now though.
I had a few twinges in my hips, shins and fingers after a month, but that doesn't seem to be an issue now. Like Jane- Altona, I have a big problem with hot flushes and always being warm, can't stand the heat at all, and stuffy rooms will also affect me.
I don't have muscle aches that I can attribute to the Femara.
Plenty of other side effects though that I am hoping will ease soon as promised by the Oncologist!
Dry/weeping eyes - controlled with eye gel drops every night before I go to sleep.
Very dry mouth and lips, very thirsty always. Headaches most days, Anxiety attacks, memory problems, inability to deal with stressful situations.
Caffeine will bring on a nasty hot flush - but I am damned if I will give up my morning cuppa, it is what I get out of bed in the morning for!
Some of these I had with chemo, but starting on the Femara has made them much worse.
I guess it is just learning to manage the problems better and hanging out for the cooler weather, for me.
I too am trying not to go on antidepressants, if I can manage things without them. - brightspaceMemberHi Hendrix many informative posts on letrozole can be found in the ...heath and wellbeing section
Good lucj with treatment B - Jane-AltonaMemberHave been on letrozole for 18 months. At first I took it in the morning but have changed to the evening, this seems to have helped with the stiffness and muscle aches. I take panadol when needed. My biggest side effect has been bad hot sweats and the feeling of always being warm. I don't go anywhere without airconditioning! They have suggested a very low dose of an antidepressant to help but I'm trying to avoid this. Otherwise it doesn't seemed to have effected my weight and fortunately my bone density is very good but I'll be tested again this year.
- RomlaMemberSorry forgot I find walking helps with oedema in my legs which I am prone to
- RomlaMemberApparently the difference between Letrozole and Femara is the coating of the pill with some saying they have had side effects with Letrozole because of it but not on Femara. Me I take Letrozole and have for 6 months.Managing ok - yes have had joint pain/stiffness , bit of the blues but find that a daily walk helps a lotwith both -can walk thru joint pain and seem to cope better with daily life.Oddly am not at all athletic but find I look forward to it and get tetchy if I don’t.Losing weight not sure but I seem to eat better and less as well as drink a lot more tea when I walk which is good enough . Might add I did not have chemo which may account for my managing better than those who have as gather chemo has its impacts on knocking the body around but I did have radiotherapy.I was osteoporotic with a fracture before bc and was placed on 6 monthly Prolia injections to build bone as Letrozole/Femara does damage bone density so far so good on that front - was worried about Prolia but have had no problems and due for my next jab soon. I take Letrozole in the morning . I also take 2Caltrate Bone and Muscle health tablets - 1 morning 1 afternoon and 1 krill oil tablet in the morning the latter a sugg3tion by my oncologist. My Caltrate has a bit of Magnesium in it and have read many ladies swear by Magnesium powder. I also have read here that Panadol Osteo is useful and I bought some but as yet have not needed it. If you can fit it in and are up to it I really urge you to try a daily 1 hour walk for a couple of weeks and see what you think/feel -I find it has made such a difference for me. PS I wear Earplugs and listen to music on my phone as I forget I am exercising.
- CheaMemberHi Hendrix. I have found taking Letrozole before bed is the best for me. I changed due to someone posting how much better it was. I have found my bones do not ache much at all now. I also have Osteoporosis as well. I also have gained weight. If you find you are aching all the time take some Magnesium. I did till I felt better and just keep on hand now just in case. Good Luck with your treatment. Take Care T.
- primekMemberI take in the evening. Exercise helps the stiffness. It didn't make me gain weight but did seem to make losing weight a bit harder...I am not as active still as I once was so it could be that too. Who knows. I am chipping awsy at tbe weight though. Kath x
- AfraserMemberJust so, and I now take it in the evening - got a bit reversed due to some overseas travel last year which I had forgotten. Hasn't made any difference to me when I take it though!
- AllyJayMemberFemara is a brand name for Letrozole, the same as Panadol is a brand name for paracetemol.
- HendrixMember@Afraser thank you..is Femara the same as Letrozole? I’ve noticed different names but same same