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ScorpionQueen's avatar
9 years ago

Information overload....... Again

Day 15- after round three.

Well everything is set for me to start the new chemo mix next Tuesday!

Spent the afternoon at the Cancer Centre. First stop the radiotherapy Professor. What a lovely man, explained everything in detail and given information to read. He would like to wait until after my next surgery to start Radiation. I will have daily doses for 25 days.....I thought I may dodge this bullet, but not to be thanks to my history, type of cancer and node involvement.

He also asked that my surgery be bought forward soon after chemo finishes, so I will have time to heal in time for radiation...He doesn't want to wait too long.I wasn't due to see my surgeon until August, so that means I now have to call my surgeon to arrange a consultation asap!

We discussed at length the different procedures (surgery) and what can and can't be done radiation wise with each different one. This new treatment order has all come about because I have pretty much decided, under the guidance and information given to me regarding my cancer that it is highly likely to return, that I will undergo a double mastectomy and reconstruction.

Next stop my Oncologist. She explained the side effects and protocol of the next phase of treatment, Docetaxel and given more information to read. Pretty much looking at the same side effects with a few extra thrown in! Boooo!

Last stop the hospital Pharmacy where we were given more information read and went through the side effects etc of the new drug again.

My brain is now a jumble of words going round and round....I guess I won't fully absorb it until it all starts to happen.....sorry if this post sounds jumbled!

Hubby and I are exhausted! Trying not to think to far ahead like i'm always told......but that's impossible!........so we are going out to dinner....pity i can't have a drink :/ .....don't think I'll sleep too well tonight!

Xx

  • Wow you certainly have a lot to try and get your head around. Hope you had another set of ears with you. Can I ask what you were diagnosed with?. 

    Are they shrinking the tumour before surgery. 

    Sound like you have made good decisions on your information. 

    Keep in touch.

    Sending you happy vibes

    X airlie 

  • Hi Airlie,

    I was diagnosed with Invasive Ductal Carcinoma, Grade 2, Stage 3. HER positive and multi node involvement.My tumour was 70mm (7cm) I have had a lumpectomy and axillary node clearance in January, three weeks later had a re-excision due to unclear margins, then a week later started FEC-D chemo.

    I always knew what was to come, but hearing the different options that may be chosen re mastectomy has done my head in! 

    Xx

    Happy vibes received!

    -Tracy

  • Thinking of you Tracy & hoping your new chemo drugs are kind to you & that you have minimum side effects.

    Good Luck

    Eileen xx

  • Hi Tracy, 

    thats a huge amount of info to get your head around. You must be feeling just like you did when all of this started. Overwhelmed! I'm not surprised that you and hubby are both exhausted and I think going out for dinner is a great idea. Yes, sometimes the old "take things one day at a time" is easier said than done but when you feel your brain racing, stop, take a few deep breaths and remind yourself to slow down a bit. Hoping the new chemo goes well and not too much in the way of side effects. Hang in there. Karen xox

  • Were you on AC?. I'm  having 4 cycles of AC then 12 weeks of taxol and 12 months of herceptin and 5 years of hormone therapy. I am happy with my bilateral and reconstruction snd happy that I did this from the start. I still have further expansion and the changeover yet but I am waiting until after chemo for this...and it looks pretty good anyway. They may do a dermal sling with a big expansion like with mine for you so less problems regarding skin stretch with radiotherapy.

  • Hi Tracy. I too was diagnosed Her2. IDC.  2 cancerous nodes.

    Stage 3 and grade 3.

    I had a double mastectomy before chemo.

    I have just finished 4 fortnightly rounds of EC. 

    Bloody hell the last 2 were hell. Day 8 and still not real good. At least I'm not in bed all day like I have been. 

    Keep in touch seeing as we are on the path if you dont mind. 

    Sending you happy thoughts 

    Airlie ?? ?? 

     

  • Interesting Airlie... I wonder about the different chemo that is chosen for similar cancers....it's all horrendous  I'm currently in the second phase of mine and it's been a really awful ride so far, I'm only coming good today ... 

    Would  love to keep in touch...

    im in Sydney ??????? 

    sending love and light fie easy recovery and beautiful days 

  • I'm having FEC-D ... Currently on the d part ?? then my rad onc has moved my surgery forward ... Bi lateral mastectomy with reco... Then rads? Then hormone treatment for 5 years