Forum Discussion

Fushiamandy's avatar
Fushiamandy
Member
14 years ago

Hi ladies

My name is Amanda and I stumbled across this group on my first visit to bcna site that my breast nurse told me to check out so thanks for letting me be part of the group. I am 32 and was diagnosed in august. Have had double mastectomy in sept, with full auxiliary clearance and tissue expanders inserted... Worst decision I ever made so far, so much pain! I am officially this week half way through chemo which has been completely debilitating for me, I have ended up in hospital more then out with severe reactions, then an ruptured appendix and two extra ops, and when I finish this chemo I have another op for skin removal over tumor site then six weeks radiation, then breast implants put in. I have tested pos for the faulty gene brac1 hence the extreme ops. Wow, do I sound like a complete winger now! On the positive side, I have three gorgeous kids... Well most of the time they Are, who are 3,8,9 and a hubby of ten years. Just wanted to introduce myself, hope you all are having a great festive season, personally I have been a wreck as been so emotional and cry every time someone looks at me. Enjoy your night, cheers amanda

2 Replies

  • danielle_ghilar's avatar
    danielle_ghilar
    Member
    14 years ago

    Hi Amanda,

    Sorry to hear about your diagnosis but i am glad that you have found this website cause it sounds like you really needed to vent a little. Don't apologise for whinging ever its all good.

    I too have had tissue expanders but i now have the final implants in. I can reassure you that the silicone implants do not hurt like the expanders did and they are much more comfortable. It took about 8 to 12 months but they do settle in.

    Thats great that you have your kids, i have 2 kids Aneetah and Tj they are 6 and 5. I found they made my treatment alot easier because you donot have so much time to yourself. Are your children boys or girls? Are they scarred about the faulty gene??

    Thats great that your half way through chemo how many more do you have to go. 

    I know its tough but try not to be to down. This does all end and you meet alot of amazing people along the way. You will learn some amazing things about yourself too that you never thought were possible.

    Sorry it took me so long to reply. Please if you ever want to chat or vent jump online i donot know everything but i have been through a quite similar situation and i feel as though i have come through pretty well. I wish you all the best and try to enjoy the holidays with your kids xx

  • Joy_K's avatar
    Joy_K
    Member
    14 years ago

    Glad you found this site. There are many wonderful women on here who will walk beside you and help you every step of the way. You seem to have had more than your fair share of complications, both physical and emotional. We all feel down and overwhelmed at some stage, that's when this site really shines - come here and whinge, vent, cry or share a happy event.

    I also had major skin removal over the tumour site at mastectomy and this has resulted in me not being able to have implants due to tight stretched skin, but I am revelling in not having to wear a bra ever again! I don't care that I'm lopsided, at my age the other breast disappears somewhere under my arm and it's not noticeable.

    I wish you a much better 2012

    With love

    Joy K