Hi there, I have just been diagnosed with my second Her 2 cancer after 6 years NED, however this time it was hormone negative DCIS. Does anyone know if you can have Herceptin for DCIS?

@a0rei @Blossom1961 In 2017 I was ER+PR+ and Her2+ Stage 1 Grade 3 no nodes, had lumpectomy, Taxol, radiation, Herceptin and Tamoxifen for 5 years. This time I had DCIS ER-PR-Her 2 + ve and needed only a mastectomy.I think that cancer is multifactorial but stress does play apart.

I believe the official stance is that stress can escalate things but not actually cause it. Most people are under some kind of stress so I don't believe we cause ourselves to get cancer, otherwise everyone would have it, but worrying about it doesn't help. Try not to worry about it, this won't change the outcome.

I strongly believe that the pain of the stress I was under significantly contributed to my cancer diagnosis. Some people who are under a lot of emotional pain perhaps end up with a complete breakdown. If we forget our past we may be more likely to repeat the same mistakes. I don't believe we cause our cancer, but making changes that contribute to a healthier way emotionally and physically can benefit our overall health.

I’m not shocked I got it either. I know why I did. I was under immense stress and had also suffered traumatic events. This intensity of anxiety and stress can cause the immune system to weak and all sorts of turmoil in the body. It’s actually also been scientifically proven that it can be not only a strong contributing factor, but the actual cause. There’s ways to avoid this kind of stress to prevent recurrence etc.

@au0rei I completely agree with you. That’s exactly what happened with me. Mine was hormone positive and I believe my hormones did go berserk due to the negative effects of too much cortisol. I also strongly agree that the causes can be multi factorial. It does depend on the type of cancer and the lifestyle and environment of the individual. Lots of things to consider. Reflection is good to help us understand why we got it, and therefore fix the root cause. This is an unpopular opinion but I’ll say it anyway: I believe we get illness due to lifestyle and other external causes, and no, I don’t think we intentionally do things to get it. It’s ridiculous to even have to say I don’t think that, as no one wants illness. But it is because of either lifestyle, diet, external toxins etc. This is a good thing because it means we have the power to change those things, heal, and prevent recurrence. I don’t like the idea that I was ‘just unlucky’. That doesn’t go down well with me. I like knowing I can change what I think caused it to be healthier and happier in future. There’s actual science to back this up. Not ‘quacks’, but reputable and highly qualified and experienced cancer specialists. This is why I think reflection is good. Anyway, I just hope we each find our way and not have to deal with this ever again.

Her 2 for the second time | BCNA Online Network

37 Replies

au0rei
Member
3 years ago
@Perks I can see it on Youtube. I am not sure why it is not accessible. Can you try to copy the link instead and paste it in a new browser? If you still can't, let me know, I will send to you via PM. :)
Perks
Member
3 years ago
Afraser thank you that sounds exciting.
Afraser
Member
3 years ago

Antibody-drug conjugates or ADCs are a class of biopharmaceutical drugs designed as a targeted therapy for treating cancer. Unlike chemotherapy, ADCs are intended to target and kill tumor cells while sparing healthy cells. As of 2019, some 56 pharmaceutical companies were developing ADCs.
According to one recent article, 12 ADCs are now at trial stages, which means one or more may be used for patients in a few years (or sooner). While some may be more effective against specific cancers, the whole idea of targeted treatment would seem clearly better for the general health of patients and may be more effective in killing off cancer cells.
Perks
Member
3 years ago
I'm not sure what the 12 ADC's are can you please explain?
Perks
Member
3 years ago

au0rei said:

This is really great news for those of us who are suffering Her2+ cancer. Not sure if we have this in Australia and not sure if it can work for cancer that has gone to the brain.

https://www.youtube.com/watch?v=E7M3rSKgPQ4

au0rei said:

This is really great news for those of us who are suffering Her2+ cancer. Not sure if we have this in Australia and not sure if it can work for cancer that has gone to the brain.

https://www.youtube.com/watch?v=E7M3rSKgPQ4

Hi I couldn't get the link it said it was disabled by the owner. What was the name of the clip please?
Afraser
Member
3 years ago
Thanks!

It seems that twelve ADCs have received market approval by the FDA – all for
oncotherapies.

Not sure when or where they will be used.
au0rei
Member
3 years ago
This is really great news for those of us who are suffering Her2+ cancer. Not sure if we have this in Australia and not sure if it can work for cancer that has gone to the brain.

https://www.youtube.com/watch?v=E7M3rSKgPQ4
FLClover
Member
3 years ago
@au0rei haha, always good to find a likeminded person 😀😀😊😊.

Sorry your day has been so upsetting 😞. I got stressed just reading about it. I think you did well to let it go and do a meditation. I like that one you posted. I’m currently doing meditation too. I do about an hour every day. I use Insight, and have been for about 4 years now. I also use YouTube for EMDR meditation and other similar ones. Emotional and psychological health is so important 💟.
au0rei
Member
3 years ago
Not a very good day today hoping yours is better. My older child smashed his lap top and slammed a glass diffuser making a hole in the bathroom door and spilling the oil onto the carpet. He’s stressed with VCE but he’s been venting his frustration on furniture etc. I was so upset but I had to really learn to deal with it and let go.

Found this helpful meditation video :

https://youtu.be/aXKQ6T9oIug
au0rei
Member
3 years ago

FLClover said:

@Keeping_positive1 I also think it’s scary that we have to pretend it doesn’t play a role in illness, when it has already been proven scientifically that it does. Even GPs will tell you that certain things like headaches etc are from stress, but then it appears that cancer is not related at all 🤔. Hmm, I don’t think so. I know with me it was. I even knew a year before my diagnosis that I might get sick in some way from all the panic attacks and anxiety I was enduring. I just didn’t know what to do to stop it. And there you go, I got breast ca. I was healthy in other ways, just not emotionally.
I also am happy when I read women on the forum are taking steps to improve their lives, change jobs, work less, do more self care, and most importantly not be people pleasers. I was a massive people pleaser. I’m now learning to set boundaries and say no, as opposed to before when I’d say yes to everyone and everything, to my detriment. These sorts of things are really important in healing from illness.

You sound just like me 😂 🖐🏻