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sandyb's avatar
sandyb
Member
15 years ago

Hair loss

Two weeks to the day from my first round of chemo and my hair has started to fall out.. while i knew it was coming it is still a bit of shock when you notice it.. just a question i have been wondering about. I am having FEC treatment and wondering if anyone else who has had the same course has lost there eyelashes as well, hair going i can sort of deal with but the idea of no eyelashes i am really struggling with.. guess it is something else i will just have to come to terms with really.

So far my side affects have been nothing i can not deal with, first 3 days after treatment i did not feel 100% but was back at work by day 5 at about day 12 i had some real gastric issues and did not eat, virtually lived on milk and now at day 15 i have thrush... oh lucky me lol.

Anyway hope everyone is doing ok .. Sandy X

9 Replies

  • Yes all that you mention is the reasons why i have not given in yet and shaved it off yet but with it falling out in handfuls now and my head hurting most of the time who knows how much longer i will last.

  • Hi Ann-Marie, yes it was exactly day 14 when my hair started to fall out, and i never realized how much it would hurt can totally understand why people give in and shave it all off.

    Am the same feel semi normal most of the time now but am 3 days from next treatment so here i go again.

    Stay strong Sandy X

  • I am day 7 after my 1st FEC so I am thinking I have another week with hair.  I am dreading the shedding!!!!!!

    My FEC has been bearable - 3-4 crappy days now feeling semi normal.

    Keep Smiling

    Ann-Marie xx

  • Hi JJoy, seems we certainly are on the same schedule my second round of chemo is also next wednesday, have my check up with the oncologist that day as well, so at least it is just the one trip to the hospital, i am to have 6 rounds of chemo so next week i will be a third of the way through... not that i am counting or anything. Hair loss i am coming to terms with have to  as i am seeing more of it every day, but still can't get my head around lossing my eye lashes, will then definately look like a cancer patient. My thoughts were all about the fact of getting over this thing and not so much about how i look, or so i thought until somebody said about the eyelash thing. Anyways i am not having to have nearly as many test as you and am still able to go to work (they have been gr8 during this whole thing). I work unti 2 each day and have been able to schedule most of my hospital appointments including the chemo for the afternoons, having said that after the treatment i intend taking 2 days off, last time i didn't need sick leave as it was easter and i had the 5 day break. Anyway would love to keep up with how you are going and maybe exchange some experiences.. good luck with all the tests and i will think of you next week when we both have that next round.. Sandy X

  • Thanks Amanda I went back and read your blog and found it very helpful.

  • Thank you I have been following that, it has been a big help x 

  • Hi Sandy 

    I have had 2 FEC treatments and still have my brows and lashes.  Met a lady today who said her lashes and brows didn't fall out until after her third FEC. So I guess it may still happen.

    I posted a similar question in my Blog and there is a long discussion you may find helpful.

    Amanda xx

  • Hi Sandy - I was told after my first chemo I would lose hair soon, then I had to have a checkup before my next chemo (next Wednesday) my Oncologist remarked you will start to lose your hair in a few days - well, I wasn't taking any chances so I got my husband to give me a number 2, it looked ok until bang on time of the oncologist's prediction, I was drying my hair (very veryt short hair!) and as I leaned over the bathroom sink I noticed it was full of hair!  The next morning it was all over my pillow -so I said to my husband, that's it! Off with it.  So short story I have now a beanie on my nut! I even wear it to bed because my head gets really cold! I look like a real cancer patient - and I hate it, however having said that - I am not doing too bad really, because I think I knew it was coming and my days are full with test after test - (now I have a cardiologist on board because of my heart) and guess what! more darn tests!  So I think I am just thinking, so what just one more thing to deal with - I told my ego and looks to take a ticket!  Outwardly I joke and appear upbeat, but I have my 'off' days where I crash.  I have a trip to the hospital every day next week, including the next round of chemo - fun and games, I am getting to know the staff up there! Scary isn't it!  The thing I hate the most is the travelling the long distances to see other specialists and treatments, I don't like being out of my 'comfort' zone - and here in our tiny flat, no one sees me and I don't care what they think.  So we are at the same, heading for chemo number 2, I have to have four chemos - and I tell myself, the next one will mean I am half way there! (told you I appear upbeat!) I wish you good luck and hope you don't have any problems - I had blood tests today, (and my good arm does not like to give blood!) but I was very fortunate, the lady that took the blood has just finished all her treatments, so she was a darling and has been through the whole gambit, we chatted for half and hour whilst my husband patiently waited out side and wondered what all the 'giggling' was about! x x x 

  • Hi Sandy - I was told after my first chemo I would lose hair soon, then I had to have a checkup before my next chemo (next Wednesday) my Oncologist remarked you will start to lose your hair in a few days - well, I wasn't taking any chances so I got my husband to give me a number 2, it looked ok until bang on time of the oncologist's prediction, I was drying my hair (very veryt short hair!) and as I leaned over the bathroom sink I noticed it was full of hair!  The next morning it was all over my pillow -so I said to my husband, that's it! Off with it.  So short story I have now a beanie on my nut! I even wear it to bed because my head gets really cold! I look like a real cancer patient - and I hate it, however having said that - I am not doing too bad really, because I think I knew it was coming and my days are full with test after test - (now I have a cardiologist on board because of my heart) and guess what! more darn tests!  So I think I am just thinking, so what just one more thing to deal with - I told my ego and looks to take a ticket!  Outwardly I joke and appear upbeat, but I have my 'off' days where I crash.  I have a trip to the hospital every day next week, including the next round of chemo - fun and games, I am getting to know the staff up there! Scary isn't it!  The thing I hate the most is the travelling the long distances to see other specialists and treatments, I don't like being out of my 'comfort' zone - and here in our tiny flat, no one sees me and I don't care what they think.  So we are at the same, heading for chemo number 2, I have to have four chemos - and I tell myself, the next one will mean I am half way there! (told you I appear upbeat!) I wish you good luck and hope you don't have any problems - I had blood tests today, (and my good arm does not like to give blood!) but I was very fortunate, the lady that took the blood has just finished all her treatments, so she was a darling and has been through the whole gambit, we chatted for half and hour whilst my husband patiently waited out side and wondered what all the 'giggling' was about! x x x