Genetic Counselling - What are others experiences?

Hi there love I had the genetic test at the  royal Brisbane as I was under 50 with no family history and had triple negative breast cancer. It took 6 months to get a consult at the Royal and discussed family history as other cancers can be linked to the gene such as bowel apparently. I had to have the test through the hospital system and It took 6 weeks to get the results back and they were negative. I had the test as both my parents have already passed away and because I was negative they said my kids won’t have to have the test either (I have one boy and one girl) had I been positive though I would of definately had my ovaries out. I’d already had a hysterectomy at 40 as a prophylaxis as my mum died from endometrial cancer (no link to bc apparently either) so my “oven was no longer in use” anyway as you know I had the double mastectomy already.  They also said my daughter is at increased risk as I’ve had it but not high risk as I didn’t have the gene and neither would she. She is 21 and they said she wouldn’t need to start getting mammograms and ultrasounds until 40 but I can tell you she Will be at least having ultrasounds sooner rather than later. Lucky for her she’s not like me and doesn’t have lumpy cysty boobs or did have to worry about. Hope this helps. Margie. Xx 

I wantes to know my risks of ovarian cancer. I'd already had a bilateral mastectomy due to my risk factors and my hidden tumour in a mammogram 5 weeks before findibg a lump. I had multiple family members on my fathers side who had breast and / or ovarian cancer and carried BRAC1 gene mutation and many had passed away. If my father had the gene I had a 50% chance of inheritance. He was deceased so myself and all siblings were tested and none of us found it. How happy were we.

However my half sister. ..diff Dad died from bc and her daughter also had it. No gene found. So at least our family is mapped and as new gene's found  we will keep getting tested.  

So I've not had my ovaries and tubes out. But I was ready to go if I was positive as ovarian cancer is hard to detect until advanced. I'm already through menopause so no other benefit at this time for surgery. 

I had mine a few weeks ago, pretty much as your oncologist said, a run through of family history, what the implications are for other family members, briefly touched on insurance as well.  They went through what they screen for, not just BRCA 1/2 and what my plans would be if the results indicated a mutation.  I also did my blood test at the end and was advised it may take a few months for the results but I should have them before surgery in May.