Forum Discussion

tiffanybarbra's avatar
11 years ago

First times for everything

Hi fellow ladies

So this is my first post, I'll try to keep it brief because no one likes a whinger. 

Like most women (and men) on this site, I recently faced my own breast cancer diagnosis. I'm 29 with no family history of breast cancer or any cancer for that matter. We were a cancer-free family. I found a lump on the top side of my left breast, it was solid, hard, with defined edges. I ignored it for six weeks, until one day my fiancee (now husband) snapped at me and demanded I check it out. So I did.

I remember feeling so silly sitting at Women's Imaging with my GP referral clutched in my left hand whilst I filled out my patient information form. Family history? No. Age? 29. 

I sat in that waiting room for over an hour and was about to give up & head back to work. Afterall, I had already decided the nurse was going to give me a patronising pat on the shoulder, tell me it's just a cyst & I'll be marched back to work. Simple.

It didn't quite go as planned. On remembrance day 2014 my life and my partners life changed as we knew it.

I was eventually called into the consultation room, the nurse ran the ultra sound across my left breast. I remember making jokes about the warmth of the ultra sound gel. Silence. Lots of images. She lifted my left arm and took images of my armpit. That's the moment my heart sank.

The nurse left the room and returned with the Radiologist. The Radiologist reviewed the lump, reviewed my armpit, turned to me & very calmly told me that I will not be returning to work that afternoon. One mammogram and 6 biopsies later I was marched home sad, sore and scared. Bloody bloody scared.

The following day my GP and I played phone tag, I eventually contacted her kindly receptionist, who said "probably best we make a time for you today love". I knew it was bad news. I knew it the moment the nurse lifted my arm.

At 3.30pm on 12/11/14 my GP called me into her office, her eyes were red rimmed, "it's not good news".

The following week I was in surgery, I said farewell to my left breast and my lymphnodes in my left arm. I am now day 10 of round one of chemo, the Zoladex is working a treat. I haven't been this emotional since the day of my diagnosis. 

My head is itchy and I'm bracing myself for the day, in a few days, when I lose my hair. A girlfriend recently said breast cancer is really cruel, it removes all semblance of femininity. You lose your breasts, your hair, your Oestrogen, your fertility. It makes you a non-woman. I know this is not true. But in some ways she was right. I feel hollow. 

Meanwhile, my friends are enjoying festive celebrations & I'm at home picking fights with my husband because I'm scared, angry and frustrated. Breast cancer is no pink ribbon.

I'm sorry this ended up a lot longer than promised. I know there is no rule book on how a breast cancer patient is "meant" to act. If anyone has any tips or tricks on how to deal with early onset menopause and avoiding the "why me's" please share them with me.

Writing it down has helped, so thanks BCNA.

With love,

Tiffany

 

19 Replies

  • Yes.

    Courage is persevering despite the fear

    Resilience is getting up again each time you get knocked down.

    Strength is falling apart but then getting it back together to carry on

    Happiness is finding moments of joy in the face of sorrow, loss and despair

  • Hi Tiffany,

    I think you are allowed to cry as much as you need to because I cried when I read your story! BC is so cruel and I cant help but think the younger you are the harder it must be (though hard enough at any age). I am 42 and since my diagnosis (August) I have always thought about younger women like yourself. I get the 'why me's' regularly even at my age.

    Thinking about all the advancements in medical interventions somtimes helps me, because we may be young enough to get some of the benfits from them in the future (in regards to recurrence). It doesnt really help with the list of shitty things happening to us right now though..but connecting  with people that understand does.

    I hope you find the strength to get through the hard days and enjoy some of the better ones without bc clouding them too much. I find it to be all such a process myself and I have had some good patches in there.

    Please dont place expectations on yourself..do what you feel you need to.

    best wishes to you,

    Tanya

  • Its a lot to deal with at such a young age. I have nearly 10 years on you but had my ovaries out in September so I am going through menopause now at the age of 38. My advice going through all of this is to cry and let it out when you need to. I found the chemo drugs made me more emotional so I decided to see a psychologist. Best thing I ever did. getting the emotions I was feeling off my chest was a saviour. The 4 sessions I had led me to meditation which I find really soothing. I recently discovered the headspace app which is 10 mins of mediatation a day. I would also recommend (where possible) resting when you need to. Don't feel guilty just listen to what your body needs. I also recommend walking or a light form of exercise when you can. The fresh air helped my mind and body. It's a tough road for a while. I am 7 months post treatment and feeling really good. I only get a few hot flushes a day now from the menopause. Not sure how I got so lucky, I think it is a combination of eating well and exercising and taking a few supplements.

    I hope this was helpful.

    Take Care XO

  • Its a lot to deal with at such a young age. I have nearly 10 years on you but had my ovaries out in September so I am going through menopause now at the age of 38. My advice going through all of this is to cry and let it out when you need to. I found the chemo drugs made me more emotional so I decided to see a psychologist. Best thing I ever did. getting the emotions I was feeling off my chest was a saviour. The 4 sessions I had led me to meditation which I find really soothing. I recently discovered the headspace app which is 10 mins of mediatation a day. I would also recommend (where possible) resting when you need to. Don't feel guilty just listen to what your body needs. I also recommend walking or a light form of exercise when you can. The fresh air helped my mind and body. It's a tough road for a while. I am 7 months post treatment and feeling really good. I only get a few hot flushes a day now from the menopause. Not sure how I got so lucky, I think it is a combination of eating well and exercising and taking a few supplements.

    I hope this was helpful.

    Take Care XO

  • Oh Tiffany, so sorry you have had to join "the club". I was diagnosed April 2014. Lumpectomy, 5 months chemo, 33 radiotherapy treatments and 12 months herceptin. As Jessica said you aren't whinging but even if you were, here's the place to do it as we all understand. My husband cops it on and off too. I think because it is "safe" to lash out at him because you know he loves you and will forgive you. God love hormones too! What hope do we have with them coursing through our systems. I remember saying to my hubby" I'm a good girl, I don't drink or smoke etc". His words to me were it is a disease, it doesn't care. It doesn't discriminate. And it is true. My tumor was in a cyst. I had had cysts before and wasn't worried at all but it didn't disappear when aspirated. Although I had been told it was cancer, I knew there was something seriously wrong when the mammogram took 2 hours. They found 3 more suspect lumps, 2 of which ended up being positive. It's scary, confronting, unfair and all the rest of the words you can think of to describe it. We all seem to go through a range of emotions and feelings and that can change so easily. You need to go with the flow and allow yourself to feel the way you do. If need be, get a referral to a counsellor to help you through. Most of all, be kind to you. Take care. Love Karen xox
  • Sorry to hear about your diagnosis but welcome to the site. I can totally understand your fears. I was diagnosed Sept 13, had a lumpectomy, chemo & radiation. I did have a strong family history and fully expected to get breast Cancer but when I did I was still terrified. I knew the 'why me' but that didn't help. I guess my message to you is to take one day at a time, not easy I know, but it can be too daunting to look too far down the track. You will get through this and come out the other side. All the best, big hugs to you,

    Hazel xx

  • Only about four fifths of all breast cancers are hormone receptive, so you may be like me and not have to go through hormone treatment.

    I am glad you got the IVF thing together: well done for fitting that into the process and preparing so well for the treatment. 

    Breast cancer diagnosis and treatment is a series of shocks, a very traumatic process, and you would not be human if you did not get very emotional and angry and hit out at people. The most important thing is to stop and ask yourself what do I need to do for me, or to ask others to do for me, to  get me through today in the best possible shape. You are not wingeing, you are sharing your story in an amazingly articulate way, and doing so is part of making sense of a senseless experience and a healthy and therapeutic way to handle things

    best wishes

  • Thanks for your kind words Rachel :)

    I thought I was doing so well, but today especially, I have been crying at everything and anything. I don't know what has come over me. I'm lucky that I don't have any children that need me throughout this process. My husband and i did a quick round of IVF before chemo started, so I have gone from being a hormone fuelled egg producing chicken, to menopause in one week & i think my hormones have gone into meltdown! Haha.

    I thinks it's the 'not knowing' which is hardest at the moment. By round two or three I should have a better idea of what to expect.

    I know I'll get through this but it's nice knowing others are out there when you have your dark days, so thanks :) x

  • Hi Tiffany so sorry you had to join us but this site will provide you with support & you can vent all you like as many of us have walked the path you are walking. My story: diagnosed June 2013 stage 1 grade 3 her2 positive breast cancer, lumpectomy, 6 months of Chemo, 6 weeks of radiotherapy & 3 weekly infusions of herceptin for 12 months, my diagnosis was a shock like yours & I too was fairly pissed off with the world at age 37 & 2 young children it knocked me off my feet - chemo does crazy things to our brain & you will have some days better than others - some not so good - however please please know that there will be an end to this & believe it or not but life will get better again, you may feel alone at times but pop back here as "we get it" take care xoxo