FIRST INFUSION OF TAXOL HERCEPTIN AND PERJETA ADVICE PLEASE

Thx melcarity 

Tessy, I so understand, I felt like I was kicked so hard in the guts, and honestly was a mess at my recurrence. I couldnt fathom how on earth, I was so incredibly angry and sad and upset! I wondered how on earth was I going to face this again. You know how?? baby steps and with some love and support. I honestly cant stand the thought of this again so thats why Im doing the Mastectomy, but if I honestly felt I had a choice I wouldnt choose it. Like so many other ladies been dealt their hands, its downright cruel!!! so many don't even get a choice which is just so so hard! In my mind I think Ive prepared as much as mentally possible for how Im going to look with a Diep flap recon, there are some great photo stories in Breast Reconstruction Group, then I think about the lack of feeling I will have. The hardest part is coming to terms with acceptance of whatever our next step is. I think its still a shock and you need time to process it all. Don't be hard on yourself, you will make the absolute right decisions at the right time for you. Sending a big hug!!! You will get through it, I promise you that!! Hugs Melinda xo

Thx Kath 

Let the tears flow @tessytink. You have every right to, so sad of the recirrance so soon. But know that soon that cancer will be gone and nothing left to recur in. Be open to reconstruction ideas, often easier to plan from the start. Hope your appointment goes well. Kath x

Forgot about the eye twitching and nose running.  It all seems like small stuff, but if you get them all don't be surprised if some days it really gets to you.  Today I am typing with a REALLY sore quick area around my fingernail and each time I use it, it reminds me!!   :D

Hi, I had 4 FEC and 8 Taxol, not Herceptin or Perjeta though. I had muscle, nerve and bone pain, which is incredibly normal. This was the biggest battle with it unfortunately and then a rash on my hands, which goes away at the end. Hugs Melinda xo

Sorry, should have explained better - I had 6 chemo treatments (every 3 weeks) in total - first 3 x FEC and second 3 x Taxol together with Herception and Perjeta, after that just the H&P.  

Thank you so much for your reply. So did you only have 3 weeks of taxol? And why was that? I really appreciate your response talk soon :)

Hi Sam

I have been on Herceptin and Perjeta (first 3 with Taxol) since 2015.  The first few I had bone aching and mild diarrhea, I think the taxol caused the aching.  Side effects now are very minimal - some weeks I have mild diarrhea, soreness around the fingernails, numbness in my foot that comes and goes.  For me the most annoying is my fingernails are weak and just split (never happened before cancer) and the last few months my skin on my back, neck and upper chest has heaps of little like heat pimples and feels like sandpaper.  Don't know for sure if its from the herceptin/perjeta, I'm on it inidefinately so I guess if it never improves I will know for sure!!  

Kari