First FEC chemo treatment 3 cycles

Hi ladies,

It's so good that we can check in with each other and know we are on the same journey but not alone. Annie I was shocked to hear how quickly you went down hill and didn't even know how serious you were until you took the temperature. That must have been so scarey. I am glad you are back and  fighting fit and got round 2 in and that you will be able to have a great escape on your long weekend.

Anne, I can totally relate to you being emotional. I can feel myelf heating up with rage especailly with my two teenage children and I manage to escape to the garden and not chopping heads off. I am a sole provider but  I have good friends and brother and sister-in-law nearby. Lucky, you have a great partner Anne. Sometimes we have to bite humble pie and allow others to walk the journey with us.

It is one hell of a journey, ne'r a dull moment. It took a week for the rash to settle. They are not sure whether it is the autoimmune disease or chemo symptoms. Igot an infected nail too so now I am on antihistamine and antibiotics. More pills to help that ratlle!!

I felt a little more vague after round 2. I came home and had a big sleep, but am not feeling as nauseated and fatigued the day after. I hope I can sleep this time around as I only slept for 3 hours nightly on the 1st week but then again I am on 10mgs of prednisone for the disease. So I am pumped. How are you feeling after round 2 Annie?

Enjoy a great weekend ladiesxxx

Thanks for your thoughts and support Anne. Went in for 2nd chemo today, not being sure if it would happen or not as still have sniffles, but great decided to go ahead, so all still on track at this early stage.  Mmmm the emotions can be a bit much at times, and am sure my dog and cat think their Mum has finally flipped her lid!!!!!!!!!!

I am sure you treasure your partner Anne, and to have that support is wonderful, my friends are my support base, but not quite to that extent, but would be soooo much harder if I didn't have it.  My daughter is also wonderful, even though it is from a distance, calling, texting and nice care parcels.

Hope all continues to go well and that the fluid is being able to be controlled. Take care xx

Thanks for your thoughts and support Anne. Went in for 2nd chemo today, not being sure if it would happen or not as still have sniffles, but great decided to go ahead, so all still on track at this early stage.  Mmmm the emotions can be a bit much at times, and am sure my dog and cat think their Mum has finally flipped her lid!!!!!!!!!!

I am sure you treasure your partner Anne, and to have that support is wonderful, my friends are my support base, but not quite to that extent, but would be soooo much harder if I didn't have it.  My daughter is also wonderful, even though it is from a distance, calling, texting and nice care parcels.

Hope all continues to go well and that the fluid is being able to be controlled. Take care xx

Annie, feel free to whinge anytime! Sorry to hear you ended up in hospital but glad you're out and back home. I hit the wall two days ago and was so emotional all day, crying at the drop of a hat or someone asking me how I was doing. I was just over everything, especially the intense "personal care" routine I'm now on, what with looking after nails, moisturising, gentle shampoo and creams and now lymphatic massage by my partner (who already has so much 'looking after' to do) to try to mitigate the fluid in my breast and reduce the swelling and having to watch out for fluid build up in my right arm. Aargh! :-) Anyhow, I felt back to myself the next day and back on track. Mares, I have a couple of dry-ish kind of spots on my face but no rash. I hope that settles down for you quickly. Yes you're right about my treatment, next Friday 6 is number two. I've not gone into work today as I have a cough and a bit of a cold so hoping it doesn't stay around too long or get any worse. Like Annie, I'm on a schedule to finish chemo at the end of August and I certainly don't want any delays. Other than that, I've been travelling pretty well after the first so will wait and see what happens after the next. Still have my head hair at this point but appears as though other hair has decided to start falling out this morning. Thinking of both of you today as you tick off number two :-) rest and take care of yourselves. I too am looking forward to our long weekend in WA so hope you get away as planned Annie xo

Hi Annie,

Isn't it a good feeling to actually get your head shaved before it all starts to fall around your feet? I did it last Tuesday and yes I got a shock when I looked in the mirror the next mornig! However, I donned the wig and everyone tells me how fabulous it looks!!! I am glad you found some new head gear to play with.

I am now fighting a terrible rash on my face and neck which I will blog about and see if any of the others had to deal with that. Ann D I hope you are going along smoothly.

I go back for round 2 this Thursday. Annie you are on Friday, am I right and Ann D I think you are a week later than me.

Have a good start to the weekxxx

Hi Annie,

Isn't it a good feeling to actually get your head shaved before it all starts to fall around your feet? I did it last Tuesday and yes I got a shock when I looked in the mirror the next mornig! However, I donned the wig and everyone tells me how fabulous it looks!!! I am glad you found some new head gear to play with.

I am now fighting a terrible rash on my face and neck which I will blog about and see if any of the others had to deal with that. Ann D I hope you are going along smoothly.

I go back for round 2 this Thursday. Annie you are on Friday, am I right and Ann D I think you are a week later than me.

Have a good start to the weekxxx

Hi Annie,

Isn't it a good feeling to actually get your head shaved before it all starts to fall around your feet? I did it last Tuesday and yes I got a shock when I looked in the mirror the next mornig! However, I donned the wig and everyone tells me how fabulous it looks!!! I am glad you found some new head gear to play with.

I am now fighting a terrible rash on my face and neck which I will blog about and see if any of the others had to deal with that. Ann D I hope you are going along smoothly.

I go back for round 2 this Thursday. Annie you are on Friday, am I right and Ann D I think you are a week later than me.

Have a good start to the weekxxx

Hi AnnD,

Well yesterday was a big day, started to notice a lot of hair coming out, so after a bit of a think decided I could control this one thing. Didn't like the idea of looking around the tiles, pillow and heaven forbid food and seeing my hair, so rang my hairdresser friend and had her shave it for me, so it then became something that I was able to decide when it actually happened.

Sure looks a bit strange, and feels odd too, but have started to play with different hats and bands. My parcel arrived this morning, great timing, so now sporting a fringe under my beret, with the result being fairly natural.

So apart from the hair, going along pretty well. Hope you continue to feel okay for as long as is possible. Take care x

 

Hi AnnD,

Well yesterday was a big day, started to notice a lot of hair coming out, so after a bit of a think decided I could control this one thing. Didn't like the idea of looking around the tiles, pillow and heaven forbid food and seeing my hair, so rang my hairdresser friend and had her shave it for me, so it then became something that I was able to decide when it actually happened.

Sure looks a bit strange, and feels odd too, but have started to play with different hats and bands. My parcel arrived this morning, great timing, so now sporting a fringe under my beret, with the result being fairly natural.

So apart from the hair, going along pretty well. Hope you continue to feel okay for as long as is possible. Take care x

 

Good to hear from you again, and you might have me mixed up with someone else, I am only day 11 1st cycle. I have been pretty lucky with not too many effects, and yay.... at this point still have my hair, but who knows for how much longer???? At the moment not too worried about hair, but when it does happen that may be different. I have played with wigs, but not sure I will go down that path either, have seen the fringe wigs and that seems more like me. Have a few bits and pieces for when it happens and some arriving in mail on Tuesday I hope.

The light headed bit is something I have also felt, really weird feeling, and on one day didn't even feel I should drive, but that has all gone for now I hope. Had bloods done today to see how my count is going, so will probably find that out on Monday. I took Dex for nausea and it seem to have worked with it not being a big drama. Being tired for me has been a pain, but not life threatening and just have to learn to pace my self and listen to my body. I am wondering if things will get worse as the chemo builds up in the body after another couple of cycles?

You have a great weekend too and take care xx