Forum Discussion
Keet
11 years agoMember
Early stage breast cancer
Hi,
I'm just wondering if anyone has the same as me, Google is not good to be looking at so thought I might ask for actual people's opinion who have also been diagnosed with cancer..
I have Stage 1 b/c, grade 2, er positive (moderate) pr positive (moderate to high) & her2 positive, The her2 is pending a second test but its 3+ from what I can see on my results I asked for a copy of after surgery.. I think they do another test to double check though? Good news is the lump has been removed and it hasn't spread to the lymph nodes - still had 1 or 2 removed.
I guess I just would like to know what to expect treatment wise or anything.. I'm 34 nearly 35, keeping a positive mind by taking it day by day but can't help but want to know what it all means.. Go to my oncologist on Monday, so hopefully most questions will be answered, but it's always good to ask for advice I say ??
14 Replies
- Donna02Member
Hi guys I'm new to this I've been diagnosed with ductile carsinoma grade 2 stage 2 they did a biopsy of the nodes not sure how many affected yet as having chemo first then surgery I've got 1 week to go and I have my third lot of chemo then 3 to go..... I can say it's a journey that I'm going to win
- kazza4450Member
Hi Keet
I was wondering a couple of things.
I too just had a lumpectomy and had a clump of nodes removed as apparently the dye didn't work as well as it should of and didn't pinpoint main node, so guessing that's why they took a clump.
My question was how do you know the grading straight after surgery and that the nodes are clear. I was told I have to wait around 10 days till my follow up appointment. And also have not been told the grading of the tumour either. All I have is the initial biopsy information that I have a invasive ductal carcinoma.
I have read a few people have said they knew the nodes were clear. So ? would love some feedback how they got this information back to them soon after surgery etc.
Great news your end by the sounds of it. Keeping you in my prayers.x
Thanks...will also post this a another post on main page. Thanks Keet for any feedback..xxx
- KeetMember
Paula,
thanks, I never actually thought of putting where to look for answers as a question to the oncologist, it's now on my list too.
Thank you
- KeetMember
Hi afraser,
yeah that's what I will do, fix my sites on the end.. I actually really like that advice..
Sounds like chemo went ok for you.. How are you doing now since you have finished? Do you get tired after or things are traveling pretty well?
Thanks for your response
- KeetMember
Hi Jane,
congrats on being 2 years after the operation, that's great news!!! Sounds like you're doing really well!! The overseas op would of definitely been a well deserved holiday..
??
- KeetMember
Sorry nearly 2 weeks since surgery
- KeetMember
Thanks everyone, you have a been helpful and I appreciate you advice.. ??
google is definitely not good, it makes you feel worse sometimes for sure..
Just a question about under the arms where the lymph node/s were removed (I say that cause surgeon wasn't sure if it was one or 2 together cause they were close if it was 2), but how long does the burning take to go down? There is no infection but when my skin touches or if I touch it it burns and hurts so I have put a tissue there to stop the rubbing but don't want to continue doing that haha, it's been a week since surgery
- KeetMember
Sorry Karen, also all the best with your appointment tues too!!
- mum2jjMember
Hi there. The girls have given you great advise. If you really feel the need to read stuff on the net then ask your oncologist for relatable sites. Mine gave me a list and told me to steer clear of everything else as it can be and often is totally unregulated. It's great you have clear margins and no node involvement. The girls are right herceptin is a wonderful drug as its targeted to Her 2 and has really changed the outcome for those diagnosed Her 2+
Wishing you all the best.
Paula xx
- AfraserMember
Good that it hasn't spread. Very wise to stay away from Google - stay with reliable and well regulated sites that can give good information. Unregulated chat sites tend to attract those who are scared, unhappy and looking for sympathy - which is very sad, but can make you scared and unhappy too! Often for no good reason.
What happens to one person doesn't necessarily mean it happens to all. You may have radiation therapy (can't speak about that, didn't have it). If you have chemotherapy, fix your sights on the end - each week is closer! I did not have nausea or fatigue although these are common. If you are HER2 positive, you may be treated with Herceptin (for 12 months). Herceptin has proved to be effective, and as far as I know I had no negative side effects from my Herceptin treatment.
Best of luck, one step at a time will get you there.