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So sorry to hear you are having a hard time of it, Kellee xx It really is a
"b i t c h" isn't it? (take out the spaces .... otherwise it might turn into a 'bleep'. I think that many of us can relate to your 'before' and 'after' health and vitality .... that is missing in action!
I can't help on the Docetaxel Side Effects .... but hopefully someone will jump on soon with their experience. xx. I was already in menopause when diagnosed & also had arthritis too ... but the Hormone Meds really made the arthritis MUCH worse :( I've been weaning off them this year & finish for good when I see the Onc. Hopefully, things will get better.
Like you, I was fit & healthy & 'up for most things' before my surgery, rads & Tabs, as most of us didn't 'know' that we were even 'sick' .... but like you now, just not as 'up to it' these days! (Even tho I still like to get out and fish from my kayak .... my fitness and strength has declined - the Covid years didn't help & the fact that I am now in my 70s will be a factor too, I guess?) INTERESTING that you mention "I keep getting small lumps on my crown and the nape of my neck." I do too - but I didn't have chemo, so can't blame that! If I scratch the top off one, I dab it with the perfume 4711!! It works. Is it an aging thing?
What were your favourite activities before your diagnosis? Have you gotten back into them? Hobbies, or regular activities that you enjoy (going to the movies, coffee & chat with friends, out for a meal?) Try & do at least one of your 'favourite things' once a week (or do 2!) as an outing - and to give you something to look forward to as well! Do you enjoy singing? See if there is a local choir & join it! Once you start looking, you'll be surprised how many activities are out there, for you to try! 😉. Often the local Services Club may have various 'sub groups' too, that may interest you? Are you still working?
I sign off with my Onc in a few months ..... even tho I only see her once a year now ... cutting those strings, will be difficult, I think.
Have you joined the Triple Negative Private Group? You can join via this link - then you can chat with others who have the same diagnosis.
https://onlinenetwork.bcna.org.au/closedgroup/triple-negative-breast-cancer
Have you listened to Charlotte Tottman's Podcasts on 'what you don't know until you do'? She is an Psycho-Oncologist who counsels women with Breast Cancer & was diagnosed herself in 2018 - and (as you'll read on the link below) she thought she'd be 'ok' with the diagnosis, as she'd heard so many of her clients talk about 'their story' ..... but it wasn't like that at all. She ended up having the same fears & side effects as the rest of us & now deals with her clients in a different, more 'educated' way, via her own experience.
The links to hers (and a chat with Raelene Boyle which is a terrific listen, too!):
Listening to Raelene Boyle's podcast is well worth it, as well as Charlotte Tottman's Series! | BCNA Online Network
Take care & all the best and big hugs xx
- Kellee2 months agoMember
Thank your reply Arpie,
You have given me alot of helpful advice. I will definitely follow up on those links.
A big appreciative hug to you, thank you xx