Forum Discussion
Anonymous
10 years agoNot applicable
Deep breath....there goes my hair
Well here we go...I knew this was going to happen, but somewhere deep in my heart I was hoping I'd be the weird one that didn't lose my hair. It's day 14 from my first TC chemo treatment. When I woke up Sunday (day 13) I realised I was starting to shed a LOT of hair. My partner was away most of the day and I didn't have my usual morning shower because I just couldn't face it. I still have that scene from Breaking Bad stuck in my head, Walt in the shower shampooing, and clumps of hair start falling out. I've dreaded this. So this morning my partner woke me up to say goodbye as he went to work. I was afraid to sit up and kiss him good bye, afraid I would leave a pile of hair behind on the pillow. Finally I sat up and there it was, not piles but a lot of stray hairs. I felt my head gently and came away with half a handful. I cried a little. Partner came to hug me and said "But you KNEW this was going to happen." And he's right, I did. But it doesn't make it easier when it actually DOES happen. I don't want to be harsh on him, what do you say? But I wish he'd said something different. I think that is my problem, tho, not his.
I lost about 1/3 of my hair shampooing this morning, kept my eyes closed till the hot water ran out. I didn't want to see it till it was all off my body and hands.Took care of the mess. And I'm not happy but I feel a bit better now. How odd I'm more upset about this than the change in my breast appearance after the lumpectomy.
It's not forever. Itsnotforever.
20 Replies
- rowdyMember
Sorry for he late reply have been in hospital (not bc) I don't think it matters what chemo you have unless you have the cold cap I think everyone loses their hair. As for it coming back I think it does make a difference what it was like before treatment It will vanish from other parts of your body. I think I was just as shocked how much from every where else. During my treatment my friends who kept me laughing brought me a packet of Merkins. If you don't know what these are they are wigs for you know where. I have kept these as a reminder of my trip. One day at a time your body is going through alot of change. Take care xx
PS look on utube how to tie scarves I found this helpfull as I brought lots of scarves so I had different colours, you can pick them up quite cheap.
- jd48Member
????????????
I just LOVE that wig nickname - thank you for that giggle
I am still planning to rely on scarves beanies and caps so as soon as I got home and hosed myself with icy water (for some reason as super gentle as my hairdresser was the scal devided to take the procedure as being scraped with rusty nails) I tried a few scarves.
I also tried that 'Tshirt as headwear' thing and it worked really well so happy with that as being 'the plan'
I never expected to start getting THAT cold straight away though... Weird how much heat we must be losing through our head.... Had to wear a soft ski tyoe beanie most of yesterday indoors just to keep myself from shivering
Jel.
- AnonymousNot applicable
Hey Mishie, it is the pits when the hair starts to go. Mine fell out 2 weeks to the day after my first chemo, my oncologist said that no chemo worth its salt doesn't lead to hair loss. I kept that in mind over my treatment, lost all, and I mean all my hair, including eyebrows, eyelashes, nether regions, etc, etc ...... The worst was up my nose, as it ran constantly, my eyelashes as my eyes watered and I had to wear sunglasses to keep the wind out of them.
I chose to wear a wig, and that gave me some confidence. I also you tubed how to apply makeup after chemo and learned how to brighten myself up, and this made a big difference. I also went to a Look Good, Feel Better workshop, and that was wonderful. They give you a bag of free cosmetics, show you how to use them, and have wig, hat and scarf demos.
It will pass Honey, and your hair will start to grow back about 3 weeks after your last chemo. It's gets better, I promise you.
Sending you a big cuddle, Trace ????????
- AnonymousNot applicable
Thanks Tracy :) I went in and got the rest of my hair cut, look like a proper army recruit now. I guess I'll be glad when as much hair is gonna fall DOES fall, then I can look forward to it coming back. I had a bit of a fright when one of my friends in the US shared that a small percentage of TC patients have never gotten their hair back, but I'm just going to try to put that out of my mind until chemo is done and worry about it then! Hopefully you and I will both be comparing hair length in a few months. I mentioned my worries to the ladies at the wig shop this morning (they specialise in wigs/headgear for cancer patients) and they've never seen permanent complete hair loss in a client. Considering they've been operating for years I like the statistics in that. So that's a relief! I really needed to hear that today.
Thanks for sharing, you ladies really brightened me up. I feel a LOT more positive today!
- AnonymousNot applicable
That's cute, Brenda, I like the thought of having proper fuzz start to grow back :) I had the shave today and feel so much better!
- AnonymousNot applicable
Thanks Kath, just got mine shaved today. What a relief! I'll try the massage with bio oil before bed, though my scalp already feels a LOT less irritated just having the hair off! It felt like such a big step having that shave, it's the final admission of the inevitable I guess, so glad it's over.
- AnonymousNot applicable
Hurrah for ornery, I have moments of ornery myself. Feeling a lot better today, had another bout of shower distress this morning then went to my GP then had my hair shaved at the wig salon. And I hope I DO always remember what that moment felt like, the first handful of hair coming away. It's part of my story now, though an ugly part, it's not the only ugly thing I've lived through and come out stronger in the end. Here's fingers crossed for us both, NEVER AGAIN :) But it's my life and my story. If it comes again I hope I can accept that chapter.
Oh the lumps and bumps :D I have a birth mark on the back of my scalp, never knew that before. Hullo, birthmark.
- AnonymousNot applicable
I hope your shearing went well lol, just back from my own. And I didn't cry at the salon. I choose to buy a wig before chemo started and it's sitting on my head right now. I think I'll name her. The Feral Headbeast. My bosom buddy for the next few months. You're right, it's better to focus on the treatment and killing stray cancer cells than on losing hair. It's just a shock many of us will have to get through. I feel a lot better today, hope your all good too!
Losing your hair is the signal to the world that you are a cancer patient...I wrote about it in my Facebook blog....Your cancer is a kind of secret from the outside world ....until you lose your hair....
As upsetting as it is, you do kinda get used to it! I remember sitting having my cup of tea one morning and I put my hand to my hairs edge and down fell my fringe...into my cup of tea! I just sat there staring, thinking really WTF? Then I laughed/cried.....That's when I visitited my hairdresser and got my soldier girl hairstyle....it still fell but not as daunting as when it's long..
I am now totally hair free...YES TOTALLY....eyelashes, eyebrows...EVERYTHING! I do look a bit alien, but I'm embracing it......Think of all the savings you have from no shampoo, razors or waxing!
I bought some groovy hats and some lovely scarves to dress up with when going out...otherwise it's the freshly plucked chook look at home...
I do miss my middle of my back length hair....but I know it's only temporary and am excited to see how it grows back....
Wishing you all the best for your treatments.....<3
Tracy
Xx
- Brenda5Member
I feel for you mishie, hair is a womans mantle and its not like it just thins over years, it bloody falls out in handfuls! It is a shock and just adds more depression to an already frightening time of cancer in your life. You do get used to it although I still think I have forgotten something when I go out, not doing my hair. I miss doing my hair I really do. I am 2 months past chemo and I have 1/8 inch of baby soft hair just showing. My family of men keep rubbing my head because its cute and soft and maybe they think I will grant them a wish if they rub it enough?