Forum Discussion
Chrismar
9 years agoMember
Debilitating joint pain
Good morning, I'm new to this group and I'm wondering if anyone else is suffering from body/joint pain since treatment. I don't know really what has caused it but I didn't have it before I started treatment.
At first the oncologist thought it was from the estrogen blocker but I have been off it for a month and I still have it.
I have tried several types of pain meds but nothing stops it.
I'm now going to a physio therapist but it isn't having any effect so far.
Does anyone else have this and if so what are you doing for it? Do you know what is causing it?
At first the oncologist thought it was from the estrogen blocker but I have been off it for a month and I still have it.
I have tried several types of pain meds but nothing stops it.
I'm now going to a physio therapist but it isn't having any effect so far.
Does anyone else have this and if so what are you doing for it? Do you know what is causing it?
28 Replies
- viking1MemberWith the plantar f. one of my exercises from the physio was to take a rolling pin to work and as I was sitting at my desk, and roll my foot on it backwards and forwards. I had a gov admin desk job then so plenty of time to roll! It did give a little relief but nothing like the acupuncture stopping it completely. I still wear my comfy shoes though ... some are orthotics. I never bought expensive shoes till plantar f.! Some look a bit 'granny' like but I don't care. Others are quite pretty and comfy too. 'Stride' online stocks some of my fave bands, ecco, naot ... Good for walking, the ecco sandals. Survived Angkor Watt in them!☺
- primekMember@melclarity I've had plantar fasciitis x 3 times. I know my femera ankle pain was very different from this. It has improved. My plantar fasciatis actually improved dramatically after all the rest I had on chemo...haha. Hope it improves soon gor you. The rolling on the ball (I describe as exquisite pain)and constant foot stretching heals it much quicker.
- melclarityMemberHey @JanineG thank you! Well I only got the ball last week, but when I sit I roll it back and fourth under each foot about 10 times. I also use it for my upper back as the muscles are so bad and it really helps when I lean into it and roll it a little. Just makes sense to me, the damn muscles are so tight and sore all the time because chemo shrinks the sheath over all muscles. Ha!!! have to laugh! xo
- JanineGMemberPs Melinda can you tell me how many or how long you do your spikes ball exercise for. Il get myself one of those cheers
Janine xo - JanineGMemberWow Melclarity. I am in awe of your strength. I know what it's like to struggle as a sole parent but to achieve what you have with cancer as well!
- melclarityMember@viking1 That's interesting, I got Fibromyalgia before I started working in Education LOL, but yes you are right this is a highly stressful environment. Uuuugh Chemo brought mine on and they said they dont know why but people who suffer Fibromyalgia seem suffer worse with Chemo bloody hell!!!! I dont know if thats true though.
Thanks a bunch, yes my friend @nikkid has recommended someone so after reading your post I think I'll give the acupuncture a go, Im intrigued!!!
Hugs Melinda xo - viking1Member@melclarity wow I think you are a pretty amazing woman! That's a lot of stress to go through and one thing after another. I was working as an Education Assistant when I got my fibromyalgia. It was supposed to be my dream job (I also do Special Needs) after retraining from teaching high school ... too stressful. I thought I'd be in this job till retirement but it was horribly stressful - never had a prob hanging up my teaching hat before and working 'under' a teacher...but this one was a passive aggressive nightmare lol. It was amazing how when I gave up the job the fibro slowly ceased. Rarely get it now so hoping the chemo doesn't bring it on. No good when you feel pain even in your little toes. I'd give the acupuncture a go for the plantar f. ... but choose a qualified person, not one of those supermarket drop ins. I don't think you're in Perth or I could pm you mine and another good place. Blab anytime, I enjoy reading your posts! xx
- melclarityMember@viking1 that's interesting, I hadn't heard of that treatment before. I do have Fibromylagia, I was diagnosed about 10years ago, I was debilitated with it at 39 and had to take a year off work. I did alot to help myself get back to where I needed to be, I guess from there I never thought about it again. I used to take Endep which blocks the senses to pain in the brain and stopped that after a few years, found it useless. I've learnt I think that its just normal to feel that way all the time. My Rheumatologist said muscle work was imperative for the condition and I used to do that as well. 7yrs ago however my Mum was 1yr suddenly passed and my marriage brokedown and was on my own with 2 kids starting over, so so hard. 7 months out getting on my feet I got my 1st diagnosis of Breast Cancer and had to work full time to support us all through rads. I work in an Autism Specific School as an ES and it's extremely stressful on many fronts. I'm not surprised in a way I had a recurrence in 2015 as was under an enormous amount of stress still with work and raising 2 kids with little support.
I think you are right, I think it's a combination, the Chemo they told me brought the fibromyalgia back with a vengeance and it usually does with anyone who has ever suffered with it. I think too what I learnt to do different was I finally stopped being everything to everyone..I was worn out and Chemo nearly killed me I was so ill. I put me above it all...work comes last and yes I need to work...but my health and ME became finally in all these years THE most important thing. I'm lucky to be on part income protection but still work 3 days. But bloody hell!!!!! that shit heel pain is a bitch!!!!
Sorry about the blab LOL but I think you've put the other piece to the puzzle together. Uuugh!!! BUT I refuse to be beaten says me who gets up hobbling around getting ready for work exhausted because I haven't slept haha!!! Hugs Melinda xo - viking1Member@Chrismar If you had described the pain but not mentioned the cancer/chemo etc I would have said it sounds like fibromyalgia. I've had this in the past and you tend to feel like you're 100 when you wake up! (I had worst of it at 50.) I found relief from metagenics fibroplex, magnesium, turmeric and stopping a stressful job. @melclarity re plantar fascitis, I had a year of physio doing things from taping, rolling balls under my foot, water treatment, etc. Plus orthotics. No luck. The physio said that I needed a Drs referral for a cortisone injection in the heel which doesn't heal but blocks pain. Plus injection is sore. The GP said before doing that, if I was open to acupuncture he could treat me. He said after 4 weeks I would be pain free but he wanted me to come for 6. I had the one where the needles are attached to what looks like a battery charger! I was a bit worried but he could turn back current if too much. He was spot on. Plus I was bulk billed! I haven't had it since. Was quite irritated that I paid out for all the physio - but hopefully this may help others!
- JanineGMemberI too have joint pain. Every morning my legs are almost rigid for the first few steps until they begin to loosen up. I can put up with this but I am struggling with terrible heel pain. I'm on arimidex.