Forum Discussion

dawngirl's avatar
dawngirl
Member
13 years ago

Day 9 & 10, Round 1, Chemotherapy

I did it.

I made it to the nadir day, and I am feeling fantastic.

Yesterday - day 9 - I awoke early, was pottering around, enjoying the time of day when it's still pitch black but there's a line of blush pink lighting up the horizon. Happy day I thought.. Relieved as I had a huge work day ahead of me.

Twenty minutes later, curled up with the saturday papers and a cup of coffee (decaf sadly)  I literally felt like a switch was turned off within me. I went from feeling fantastic to feeling, perhaps I can just lie here and watch bad tv all day.

No chance of that.

It wasn't bad, but it was weird. I actually felt the switch from feeling one way to another take place within my body.

But my body didn't let me down, and I made the day, clocking up 20 hours from wake up to bed time, feeling a bit fatugued only during the first couple of hours of the day.

Another day of obsessive temperature taking. And relief when in the evening it climbed down from 37 to 36.5.

Not once since those fluids were pumped into me have I taken the state of my health, my being, for granted. I have felt so grateful to have escaped the long list of scary side effects I left the oncologist's office with. I have felt it has been a gift that my only break from work in nearly a year was able to be spent mostly as I had hoped, not bed ridden and sick. I have been so thankful I took the step to undergo chemotherapy and give myself the extra 2-3 per cent nudge against a recurrence when no one in my treatment team could come right out and recommned it because I fell into a "grey zone", and they left it up to me to decide if it would be worth going through. It was a decision that tore my husband and I apart as we wrestled back and forth with I should, I shouldn't, I should. The fear of what I would have to endure wrestling against the fear of recurrence and statistics, statistics and damn statistics.

I strarted this blog on this wonderful, wonderful forum because I had wished when I was trying to decide that I could read a day by day account of what it would be like.

Ultimately, as it is with the cancers we each have, our response to chemo will be highly individual, but I hope my experience -- which I know mirrors that of others too - might allay the fears some of you embarking on treatment may have. It may be really terrible...as others on this site describe..but it might not. You may experience very few side effects, or almost none. But by taking the brave step to undergo chemotherapy -- and it is a brave step for every single one of us - you are allowing one of the best things science can offer at the moment give you the best fighting chance to beat breast cancer into submission.

For now, I'm mentally preparing for the hair loss. I had reason to revisit photos for unrelated reasons today and kept being struck by what my hair can look on a good hair day. And how much there is of it! As I've said before, I've no doubt this will hit me harder emotionally than the mastectomy did (which didn't hit me at all because I just wanted it gone, and yesterday). I've never been vain about my hair. I don't blow dry it or style it. It spends half its life encrusted in sea salt from ocean swims, or in a pony tail on bad haiir days. But you know that cliche about you don't appreciate what you/ve got till it's gone? Before it's even fallen out I know I will be mourning even the bad hair days...not because I worry what my husband will think (our love is solid and we'll look like bobsy twins!), but because as open and public as I have been with my diagnosis and treatment within my friends and community, baldness, scarves, witty hats without the ensuing mop I usually sport, will be an instant announcement to anyone who sees me that I HAVE CANCER (though I actually try to think of myself as having had cancer - surgery took care of that, chemotherapy mopping up any strays, and in the not too distance future hormone therapy to keep the nasty cells at bay). And really, who wants to walk the planet advertising their personal affairs to strangers? Well unless you're Pariis Hilton or something. I don't want looks of pity, or fear, or curiosiity or OMG had no idea you had cancer when I run into acquaintances.

But welcome to my future. I'll deal. Perhaps in ways I didn't imagine possible. Bit like when I first got diagnosed.

Wishing everyone all the strength, calm and sense of humour to keep on fighting the good fight in the coming days.

x

 

 

8 Replies

  • Hi Dawngirl I am pleased I came across your post. I to am now looking like being in the 'grey' area for chemo. I was diagnosed with early breasts cancer - had lumpectomy, then re incision to ensure margins only to find had DCIS over most of the breast. This was then followed by a masectomy - with results stating that more cancer had been found but close to where the first was found. Was supposed to go on to Tamoxifen but now the 'team' now wants to see if chemo will make a difference. Now it's on the table - wasn't until got results back from masectomy. I've decided that I don't want them debating my life and feel the same that want to make sure 'mopped up' any stragglers. Then do the tablets. That way have done everything to ensure the bitch doesn't come back. What I want to know is how did you convince them to give you chemo? Or did they say 'up to you'. Hope all going well for you.
  • Hi Dawngirl I am pleased I came across your post. I to am now looking like being in the 'grey' area for chemo. I was diagnosed with early breasts cancer - had lumpectomy, then re incision to ensure margins only to find had DCIS over most of the breast. This was then followed by a masectomy - with results stating that more cancer had been found but close to where the first was found. Was supposed to go on to Tamoxifen but now the 'team' now wants to see if chemo will make a difference. Now it's on the table - wasn't until got results back from masectomy. I've decided that I don't want them debating my life and feel the same that want to make sure 'mopped up' any stragglers. Then do the tablets. That way have done everything to ensure the bitch doesn't come back. What I want to know is how did you convince them to give you chemo? Or did they say 'up to you'. Hope all going well for you.
  • Hi Dawngirl I am pleased I came across your post. I to am now looking like being in the 'grey' area for chemo. I was diagnosed with early breasts cancer - had lumpectomy, then re incision to ensure margins only to find had DCIS over most of the breast. This was then followed by a masectomy - with results stating that more cancer had been found but close to where the first was found. Was supposed to go on to Tamoxifen but now the 'team' now wants to see if chemo will make a difference. Now it's on the table - wasn't until got results back from masectomy. I've decided that I don't want them debating my life and feel the same that want to make sure 'mopped up' any stragglers. Then do the tablets. That way have done everything to ensure the bitch doesn't come back. What I want to know is how did you convince them to give you chemo? Or did they say 'up to you'. Hope all going well for you.
  • Ah now, didn't mean to worry you!

    There's not a lot I can control about this particular part of my life, but not drinking and losing weight were two things I knew I could do. As well as continue to exercise (women who exercise at a mid to strenous level also fair better statistically). But as we also know it's all such a lottery, and statistics schmatistics sometimes.

    See I measure out 150ml standard drink into a lovely large wine glass and think...hmm..so that's what a standard glass looks like ;-). So for me, it's just easier to say I don;t drink, and enjoy a few glasses of something fabulous on special occassions.

    And I look back and remember that in times of serious crisis (rather than OMG have I had a bad day at the office), I instinctively turn away from drinking to cope/destress/relax (which is definitely my preferred mechanism with an OMG day at the office)...so I'm guessing I have insitinctly clicked into serious crisis mode. Had dinner last night in a gorgeous Paddington pub with my husband and not for one moment did I want to drink anything but lemon lime and bitters. So not what I would have done and felt like doing three months ago!!!!!!

    Are you QLD Paddington or NSW Paddington? I suspect we may both love different Paddingtons :-). Haven't heard of the Kinghorne.

    x

  • Ah now, didn't mean to worry you!

    There's not a lot I can control about this particular part of my life, but not drinking and losing weight were two things I knew I could do. As well as continue to exercise (women who exercise at a mid to strenous level also fair better statistically). But as we also know it's all such a lottery, and statistics schmatistics sometimes.

    See I measure out 150ml standard drink into a lovely large wine glass and think...hmm..so that's what a standard glass looks like ;-). So for me, it's just easier to say I don;t drink, and enjoy a few glasses of something fabulous on special occassions.

    And I look back and remember that in times of serious crisis (rather than OMG have I had a bad day at the office), I instinctively turn away from drinking to cope/destress/relax (which is definitely my preferred mechanism with an OMG day at the office)...so I'm guessing I have insitinctly clicked into serious crisis mode. Had dinner last night in a gorgeous Paddington pub with my husband and not for one moment did I want to drink anything but lemon lime and bitters. So not what I would have done and felt like doing three months ago!!!!!!

    Are you QLD Paddington or NSW Paddington? I suspect we may both love different Paddingtons :-). Haven't heard of the Kinghorne.

    x

  • Oh dear your comments have me worried re the wine business and both surgeon and oncologist seem happy with a glass a day but... Maybe what I will do is wait until this is all over, mid June, and then have a week at a health farm which always helps me get off alcohol ( makes me sound as if I'm addicted) and then stay off for a while but at the moment don't think I can do it. Will do a bit more research. Are you at the lovely Kinghorn as well?
  • Thanks for loving my little reports. I think it's important to share as much of the goood as possible when there is so much fear attached to chemotherapy. As I read elsewhere on here - we need to think of it as a good thing, helping us get better.

    Happy to report on day 9 round 2, all has beren trotting along much as for round one, I've had just the one day of feeling off -- two days ago - and I am now looking seriously like a buddhist monk gone wrong, with my number 2 a number 0 in some spors and a number 1 in others.

    Are you doing the wig thing? I am and haven't found it that hard to get used to (again so often read of people buying them and not wearing them). I just enjoy the fact I can get out and about in the world without being the suibject of couriosity/pity/etc. I've been very open with my community and friends with this, so enough already with having to constantly be treated as Someoine With Cancer.

    Sounds like we share a love of good food and you are definiitely in the place for it. My stomping ground with Surry Hills thrown in for good measure.

    I actually ditched alcohol on diagnosis -- trust me a huge thing as I love my wine and champagne!! I'm saving it as something to enjoy on special occasions. So I enjoyed matched wines with a dinner out the night before my first chemo; half a bottle of Veuve on New Years Eve; a cider on the day I dealt with hair loss and donning a wig (and then realised I had not enjoyed it..perhaps I need to stick to the french stuff ;-) ).

     The advice is to not have more than 1-2 standard drinks a weelk because it increases the risk or recurrence, so my  view is why bother with just the one. They haven;t worked out how alcohol and breast cancer are linked yet -- they just know that it is :-(. So in the interests of giving my all to do what I can to stay healthy, I now drink very rarely (8 standard drinks in the past three and a half months -- definitely a first by me!), and once chemo is ove,r a concerted effort to get my body weight back to the lower end, as this is another no no for staying cancer free (bellieve this has something to do with the fact that our fat cells produce oestregen as well as our ovaries, so being lean, means fewer oestrgens floating around to feed my particular type of BC).

    So winter like out there. Perfect day to find a great warming meal in one of Paddo's great pubs -- especially if they have sense to fire up up the fireplace. February I know, but it is only 15 degrees!

    x

  • Loved reading some of your reports, am just about to start chemo no 2 and hair is coming out. . I never even thought of not going to restaurants and shopping centres and am so glad you kept on eating out. At the moment I live in Sydney's Paddington and there are just so many good little places to eat and on day 7 after chemo I had half a glass of wine again and every day since...so all good as far as I can see. Next week will be another matter but these AFDs are not a bad thing! I totally agree with your positive attitude to fighting/mopping up the strays and I feel extremely lucky to be able to have all those treatments, just imagine living in Bangladesh, we'd be goners ... Best wishes, Kristina