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chibipink's avatar
chibipink
Member
13 years ago

Curse you MRI!!

So here's my story so far,

Bilateral invasive tumours. Looks like grade 1. Was looking like stage 1.

 

Go for a second opinion. He says "You need an MRI before surgery". That makes sense but I needed to wait for my period to start and the surgery was scheduled for this Thursday.

MRI today. Shows two new lesions. ONe each side! And some lymph nodes show up. Back to radiology for FNA under US but they can't find the right lesion. Now I have to wait 2 weeks for MRI directed biopsy. (

 

I was travelling pretty well until today. It was all looking stratight forward. Bit of surgery. bit of radiotherapy and that's that.

Now it looks like I will have at least my left armpit cleared of nodes and if the the right thingy comes back malign that's game over for my right breast. Trying to be optimistic but its hard.

 

The rational brain says that of course this is a good thing. If those things had not been found it would have mean more surgery and who knows what? But my irrational brain says "better to have let sleeping dogs lie".

 

Thursday I will no about the left thingy (I can't believe its benign) and more than two weeks of trying not to worry to find out about the right.

 

2 Replies

  • Well it turned out that there's the time that the receptionist at the Radiology dept. will tell the surgeons PA when she rings to make an appointment, and then there's the time the radiologists will make with the surgeon when she rings.

    Then you turn up at the radiology dept. and the receptionist says "These results will be ready in a week"
    and I say "Ummm. Well that's no good, the doctor needs them tomorrow."
    and she says "Oh then they'll be ready tomorrow.".

    Makes you wonder.

    So I had my second MRI 3 days, not 2 weeks after the first one! And I had the biopsy yesterday. Today is D-day for my right breast. Trying not to get my hopes up. Its all jolly well for Kerri-Anne to say MRI saved her breast, but in my case, it could well be its death knell. But it could save me a second round of surgery in 6 months and it maybe it will save my life.

    So she's absolutely right! There should be rebates for breast MRI. Its outrageous really that things that have been shown to have little clinical significance are rebated and not breast MRI for proven cancer cases!

    Enough ranting. Fingers crossed for today.

     

  • Hey ChibipinkWelcome but so sorry you have had to join us but glad you did find us.I luv your profile pic by the way, where did you find that beauty?As your profile is private do you mind telling us how old you are and where you come from?  This bloody BC has a way of catching you unawares and knocking you down flat for a bit until you pick yourself up and dust yourself off and carry on.I know when I walked into the surgeons office after my first surgery to be told the tumour was much bigger than expected, they couldn't get a full clearance due to the chest wall and that 2 nodes were involved you could have knocked me over with a feather.  I had it all planned - fit the little bit of radiotherapy in to fit in around my daughters wedding where I would be in Perth anyway.  Bob's your uncle and away you go. Uh uh not to be sorry but you have to have the full works.  My first thought was #%&* I don't have time for this. BUT it had to happen.  I had my first surgery 23rd December and then they shut up shop for the silly season so I also had to do the horrible horrible waiting game.  I can tell you my Xmas was pretty crappy.Go with the rational brains thinking as it is the right one.  Keep yourself busy doing lots of lovely things you enjoy doing is all you can really do.  Throw yourself in to your work, housekeeping, ironing, washing, partying, movies, anything you like to do just to keep yourself busy and the time will pass quickly.Have you gone online and ordered your My Journey Kit yet and any fact sheets that may help you.  I spent my time reading as much as I could about BC as I wanted to be informed but that is me personally.You have found yourself as part of a group online who welcome you with open arms and we will be here for you the whole way thru as you need us to be.  I wish you strength, patience and lots of love, Mich xoxo