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ac
Member
8 years ago

Confusion with path results after ALND- no lymoh nodes found

Hi all, firstly I want to thank everyone for this amazing network. I was diagnosed in early August with what they first though was a very small malignant lump in my right breast. After a lumpectomy the lump ended up being 38mm but margins are clear and pathology is +ve ER and PR. HER 2 appears to be marginal and after 2-3 tests by different pathologists they think that there are some cells that are HER 2 +ve and some that are not. The frustrating thing is- during first surgery they could not find any sentinel nodes- the radioactive trace went no where and what the surgeon thought was a node in my axillar was actually an extra nodal mass. I then had CTs and Bone scan which were clear thank goodness. I then went Back to surgery for a ALND and again first path test has found no nodes BUT the tissue that was removed does show cancer spread to axillar tissue- all HER2 +ve. Surgeon has said I am the first that she has seen with this result, and she has been doing breast surgery for 30 years and is well respected in Geelong. I see my med oncologist on Wednesday. Surgeon is treating it as node positive but cannot establish how many nodes!!! has anyone heard of this before? Does anyone know what treatment they are likely to suggest when they can't do pathology on nodes?? thanks

  • Hi thanks for your responses. Given no one else has indicated they've had or heard of results such as these I will assume I am "very" special. Thanks for the advice re likely treatment Kath-that has helped me prepare for meeting with med onc Wednesday. I am determined to stay strong and positive so will deal with whatever they say will give me the best chance to grow old with my family. Take care all. x
  • I would imagine that they will treat you as an estrogen and her2 postive patient with lymph nodes...since it is unclear. So my best guess is they will offer you ACT-H chemo and radiotherapy to the area and axilla...to be sure...to be sure (said in Irish accent) However it is only your oncologist who will decide and your case will be discussed within your treating team and they will have all the information and make recommendations based on that. Hang in there.  Your plan will be set soon. Kath x
  • Don't you just love being special, not. Not just run of the mill but a perplexing one at that. Imagine they will do chemo anyway, just to be sure its killed off. Hugz <3