Four years ago today I had the dreaded biopsy which confirmed my BC. Today I had to have a biopsy to check something seen on my US I had on Tuesday. They found something growing in my lymph nodes. Huh? What lymph nodes? They were removed. Full anxilliary clearance. Today the radiologist and the doctor both assured me I had numerous lymph nodes in my chest region. They both queried me as to the full removal and suggested maybe I only had a couple removed. The radiologist on Tuesday queried me twice as did the one from today and the doctor queried me three times. I have to wait a week to see if the lymph nodes 'which I don't have' are cancerous. My reports all show I had the full clearance three and a half years ago.

I just got back from the surgeon. She still needs to confer with the team but she gave me a preliminary. It looks like I will be on chemo for the rest of my life but it is not the nasty ones.Probably no surgery. And I will not be dealing with that BC nurse anymore!

@Blossom1961, this does not sound good but hopefully this will end up being a non-event for you.Have you moved far away from your usual specialists and supports ?Let me know if you are still 'local' and I can help you. 💖

So,sorry blossom to,hear your news . It’s news none of us ever wanted to hear and you’d been NED for quite a few years . I keep reminding myself that we MBC patients have so,many treatment options now and new ones seem to be on horizon as well. I try and take each day , one day at a time

I may be wrong, but I thought an axillary clearance referred to lymph nodes in the armpit only. People have hundreds of lymph nodes in the body. I had eight or nine clearly swollen nodes and a further eight nodes were removed (17 in all). But I am not sure that was all of them, in the arm/breast area, just the ones that looked suspicious and the ones next to them. Here’s hoping there is no problem, all except one of my very suspicious looking nodes turned out tobe benign. Best wishes.

Wow @Blossom1961 that must have been a shock. Fingers crossed for your results. While very different 30 years ago I had a sore throat and dr told me I had tonsillitis. What the? I had my tonsils out at as a child but they somehow grew half back. It's all very strange. Never had tonsillitis again. Hope you can keep busy to distract yourself till those results come back. Best wishes 💐

I'm confused | BCNA Online Network

53 Replies

arpie
Member
3 years ago
Good to hear that you had a good night @Blossom1961... shame about the vertigo tho. I've only had it the once & it was horrible.

Are you able to get outside help in to do the floors & general cleaning? (Tho I think you have to be 65 before signing up for My Aged Care & access subsidised assistance.)

take care xx
Blossom1961
Member
3 years ago
Had a good night sleep last night and felt pretty good. Decided to do my floors :s Vertigo hit after only getting the hard floors swept. The rest will have to wait until chemo is finished. Oops, I am now on chemo forever. Maybe we should move outside where messy floors are non existent :p
Zoffiel
Member
3 years ago
Thought it was unlikely, M. It is nice to be treated like a sentient beings, no?
Blossom1961
Member
3 years ago
@Zoffiel, no Javier made me have an Onco 'on the ground' here. They are keeping him informed of my treatment though as I told them I would be changing back to him as soon as I could. The three hour drive is worth it!
Zoffiel
Member
3 years ago
Best of luck chick. Hope that wasn't Javier's mix up.
Cath62
Member
3 years ago
You're amazing. Thanks for letting us know what's happening. What a day!!! Hope the next few days are ok after this treatment today. Take care
Keeping_positiv
Member
3 years ago
What an exhausting day it turned out to be for you today @Blossom1961 ! Rest up tonight and I hope your treatment wasn't too harsh on you today. xx
June1952
Member
3 years ago
Golly, @Blossom1961 they are throwing curve balls at you. Six hours is a long time - how on earth have you had the energy to get on-line ?
Where are you having your treatment this time ?
Good to get the physio on board early.
Blossom1961
Member
3 years ago
Change of plans. I started the herceptin and perjeta at the same time as the taxol. I originally expected this but Onco told me taxol only so got a shock when my treatment went for six hours today. Forwards we go!
Appt with lymphodema physio on Friday. It appears I may have early lymphodema. At least I am catching it early.
Keeping_positiv
Member
3 years ago
All the best for starting on Paclitaxol on Monday. You have a lot of ahead of you, but you are in good hands, and sounds like they are on top of everything for you @Blossom1961 . xx