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Sophollie's avatar
Sophollie
Member
9 years ago

Confronting day

Had a biopsy on my lymph nodes today.  The lady and I were talking and I told her my Bone and CT scans didn't show signs of mets so I wasn't too worried about the lymph - I assume it's there anyway but at least its nowhere else at this point.  I made a joke that by now, a biopsy was just a chore to tick off todays To-Do List (Chemo cardigan - check!).  And I wondered if my cancer has really become so normal now?  It seems like such a short time ago it was nowhere on my radar but it also seems like this has been my world for an entire life time. 

Afterwards I had my Chemo Education session where I learned about what to do to keep healthy etc and I got a tour of the chemo ward.  The ward itself wasn't too bad.  I imagine it's the same as the wards most of you are going too.  The people though.  Some sitting there quietly reading books/watching tv.  Some with friends or family laughing and joking with the nurses.  One or two just staring off into space.  Everyone and no one looked out of place.  I wonder what they think when they see me looking like a lost little lamb next to the chemo nurse.  Clutching my blue folder full of information, I wonder how many cycles it will take before I laugh with friends whilst I am being treated?  How many before I am content to sit on my own with a puzzle or magazine?  Where do I have to be before I do nothing but sit and stare?  Too many questions.  People tell me I have to accept my new normal and even I say it all the time to my husband but I dont want Cancer and chemo to be my new normal.  I want my old normal back. 

  • Hi. I remember that feeling too. It was just over a year ago now. It's very surreal because you know, looking at these people, you'll be one of them soon. But I quickly adapted and ended up kind of looking forward to the session. I took my laptop and watched all the Game of Thrones series again with earphones! As a mum of three young boys it was a welcome respite to be honest..... but one I never EVER want to repeat. I was also lucky my premeds worked and I didn't experience nausea etc. 

    I also remember seeing a couple of people come through on their tour during my sessions. And I remember just feeling sad for them. I guess it reminded me of feeling so unsure about it all and so afraid of the unknown of what lay ahead. I was pleasently surprised to find it wasn't anywhere near as bad as I had anticipated, the sessions or the aftermath. I hope it's the same for you too.

    Not that you're asking for advice but I'll give it anyway ??... take the anti nausea meds to the exact hour or half hour they're due and the highest dose they suggest for you!! Even if it means setting an alarm for overnight to take them. 

    Wishing you all the best Shellie oxox

  • I'm  just finished  my 3rd cycle and still get really really anxious pre treatment. ..but much better when there. The chemo nurses are great. My hubby comes  too and we just yak to the nurses and some patients when there. I don't  do puzzles or anything...can't  concentrate and invariably now my pre med makes me too sleepy. All I can say is everyones response to this disease and treatment is unique. Don't  worry what others think. Take baby steps on your road to acceptance. I want my old life back too. Kath x

  • Dear Hollie, I am so sorry you are going through this.  I read your post and it feels like an extraction from my own diary one year ago.  I was taking the tour of the ward myself and experienced exactly what you are and remember feeling exactly like you did.  I guess it can be compared to any new and scary situation.  Remember when you went to a new school and looked at all the kids looking 'different' in their uniforms and they all laughed and played while you might have wondered, who will my new friends be? will my teacher be nice? when will I laugh and run a play again like they do?...it is such a normal thing and we all experience the same thoughts.  You will be ok!  I promise you that!!!  Soon you will become familiar with the nurses, and laugh and talk and depending on your personality you might strike up a conversation with some patients there.  I noticed a very frail and old lady having chemo in my ward one day and was so drawn to her that I took the courage to talk to her.  We ended up becoming so close, hugging and sharing stories every time we see each other there.  You form a very strong bond very quickly with fellow 'cancer' patients because you have an appreciation for the circumstances that you share.  And soon you will see someone new walk into the ward and you'll think to yourself 'That was me not too long ago'.  The thing is we all want to 'know' what to expect and 'know' that we will be ok.  I used to be petrified of death and remember just not wanting to die of cancer!  Just wanting to know that I would survive.  A year later and it has all become just another part of my normal life.  I have dealt with my fears and I have made peace with whatever comes.  I believe that God sustains us in life and in death.  We are so much more resilient than we realise.  Be kind to yourself, try to focus on what is at hand at the moment and only work through that bit of your journey.  One small step at a time.  Put everything else on the virtual shelve and only deal with the next challenges once they arrive.  Don't try too hard to understand or comprehend the whole process right now.  Your family, friends and medical team are all holding your hand to guide and support you through this.  And so are we!  Big hug to you xxx One day at a time