'Bone mets' are you kidding me!

Dear Tracey Thanks again I will probably take you up on your offer. Jenny

Hi Herb Lady,

My secondary is in my sacrum.  I had pain on and off for quite a while prior to diagnosis but having been in car accidents, fallen over etc you just think it is an old injury.  When they told me I had it in my sacrum they organised for me to have radiation straight away.  The radiation got rid of the pain for me and touch wood, I still seem to be pain free in that area and it has not changed very much at all since diagnosis.

With regards to any pain, I find that Voltaren 25 seems to work the best for me.  Panadol and panadeine didn't help me at all.  Just make sure when you take Voltaren, you need to eat before you take it and don't lie down for about 30 minutes after you take it.

We all get worried with a new pain and I admit I was terrible at the start.  Then when I had got to my worst worrying day, the pain would disappear.  So I started to try and make myself calm down and think about what I had been up too.  More often than not, I could come up with something like you say your dog pulling on the leash.  We don't tend to think about every little thing we do each day, like sometimes you probably wouldn't remember what you had done to get a bruise on your leg.  We don't tend to think about absolutely everything that has happened to us each day as we just try to be  and feel normal.

The writing helps because sometimes I don't hear everything the Oncologist says so I take notes etc.  Then if I have a panicky day, I can go back and have a look at what was said and it helps to get your head straight.

Take care and feel free to contact me or anyone on this site if you want a chat.

 

Tracey xx

Dear Tracey Thankyou for your message. It's encouraging to know you have been managing to live with it for many years. I like your idea a to write things down. After I calmed down I guessed my shoulder was sore from the dog pulling on his leash. I don't know much about living with bone mets Do chemicals slow it down quite successfully? How well is the pain controlled? Thanks for your kind wishes. Take care and keep smiling. J

Hi Herb Lady,

I have been living wih Bone Mes since my original diagnosis of ABC 6.5 years ago.  I also wasn't particularly worried about the pain as a Voltaren25 used to get rid of it almost immediately, so i didn't think it was anything serious.

It is difficult at times when they add something else to your diagnosis.  I write things down and get it out of my system.  I find this helps a lot.

I know how you panic when a new pain crops up but I try not to jump the gun and have a think about what I have been doing for about 3 days before.  I can usually find a reason for it other than cancer and it usually disappears within a week.

I want to wish you well with your treatment.

Take care and all the best.

Tracey

Hi Chris. Thanks for your reply and good wishes, much appreciated. I had a moderate radical mastectomy so lost many lymph nodes. I then had 6 months of chemo. I also had liver mets which were radiated and last week 9 months later found out I have bone mets. It has been a shock as I didn't have any severe symptoms. I have been having routine scans every three months since my ca markers went down. I can relate to your 'waiting game' comment. It's good to hear there are others who may share their knowledge with me. Are you feeling happier and stronger now you have had your implant procedure ? I wish you a healthy future. Herb Lady x

Hi Herb lady, I'm so sorry to hear about your bone mets. When were these discovered? There are a lot of ladies on this site who are experiencing bone mets, who will be able to offer advice to you if you need it. Have you had a mastectomy, or lumpectomy, and did you need to have lymph nodes involved? I have had a double mastectomy, a third of my nodes removed from my breast cancer side, 4 rounds of chemo, and have just finished reconstruction with implants. I have been taking Femara for the last several months, having finished my chemo exactly one year ago. This period after treatment is good, but scary as well. We have no idea what is happening in our bodies, and I never feel completely confident, due to the fact that the Drs don't routinely do scans to check up on the possibility of secondaries. It sometimes feels like a waiting game. I don't like to be pessimistic, but I think we all feel a bit like that at times. All the best with your treatment, and I hope you get results so as to avoid more chemo. Love Chris xx