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Tazzy's avatar
Tazzy
Member
13 years ago

Bilateral mastectomy

Hi ladies I have recently made the decision to have a bilateral mastectomy after finding two lumps in one breast and DCIS in the other. I under went surgery on 28 May 2013. I am fortunate enough that I will not need to have chemo or radiation but will have to take the 5 year course of tamoxifen. I opted to have expanders inserted during my surgery and later changing to the permanent implant. I know I'm only in the early stages of the healing process but if there are any ladies out there that are able to help with hints or ideas in dealing with the pain I would be grateful. As you would all be most aware it's a very emotional time and the pain only makes matters so much worse. Right now I don't see the light at the end of the tunnel, but I'm sure it's there.

3 Replies

  • Hi Taryn My journey has been identical to yours. I had bi lat mastectomy March 22nd this year immediate reconstruction, expanded over a few months the pain got worse every time but only lasted 24hrs. No chemo or radiation and on tamoxifen for 5 years. And 5 days ago just had the exchange surgery. I now have new silicone boobs and I am over the moon. The surgery was a million billion times easier than the mastectomy. Recovery is great for eg. I can do my hair straight away lol. They feel so good after those blasted expanders. They don't look perfect although pretty close but considering it's only been 5 days they could get better. I love them regardless as they feel realer. I hope that you have the same great experience I have been blessed to have. If you want to ask me any questions what so ever please don't hesitate. Trust me 100% there is definitely light at the end of the tunnel and you can stop thinking of "what's next" or "whats to come" as this is the finale. Good luck with everything. :-)
  • Hi Taryn My journey has been identical to yours. I had bi lat mastectomy March 22nd this year immediate reconstruction, expanded over a few months the pain got worse every time but only lasted 24hrs. No chemo or radiation and on tamoxifen for 5 years. And 5 days ago just had the exchange surgery. I now have new silicone boobs and I am over the moon. The surgery was a million billion times easier than the mastectomy. Recovery is great for eg. I can do my hair straight away lol. They feel so good after those blasted expanders. They don't look perfect although pretty close but considering it's only been 5 days they could get better. I love them regardless as they feel realer. I hope that you have the same great experience I have been blessed to have. If you want to ask me any questions what so ever please don't hesitate. Trust me 100% there is definitely light at the end of the tunnel and you can stop thinking of "what's next" or "whats to come" as this is the finale. Good luck with everything. :-)
  • With surgery only a few weeks ago sounds like you are still sore. I didn't have expanders but hear they can be painful or uncomfortable while they do their job. I read that with the exchange to the implant there is relief. I did have a mastectomy though and was very sore and sensitive between the breasts for aboùt 4 weeks after. I'm not sure if this is a mastectomy thing or specific to the procedure I had. But it did go away. You are fortunate to not be having chemo treatment and that you were diagnosed early. But loosing your breasts is a huge adjustment emotionally and physically. A very strange place to be that those of us who have been there understand. For me it was the most difficult emotionally about 4-6 weeks after. The breast care nurse said its normal to have a bit of a crash then. When you get past the surgery and take stock of the new you. I'm only a few weeks ahead of you, my op was April 12 and I can tell you that you will see the light and you will feel better. Is that your daughter in your profile pic? She is stunning. Daughters are special and she must be a great support to you. I think children are the reason behind so many of our difficult decisions and give it all a purpose. So I'll see you at the end of the tunnel, that's where the rest of us are holding that light for you, just keep moving forward and you'll make it. Xxxlouie