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SueRi's avatar
SueRi
Member
14 years ago

Back agian

here I am again and not much has changed, I am still getting the hot flushes, fatigue, joint pain, depression and now the weight gain seems uncontrollable. 

I saw the oncologist who reckons its better for me to put on weight as it would be worrying if I lost it. Which is ok for her to say for me its depressing as clothes are getting tighter I feel the heat even more and it does make you feel even more tired and just plain uncomfortable. I have done the usual cut back the food and tried to get more active but the joints dont like it much and when I get hot and then have a flush its like I'm gonna die almost.... Oh well I will get there eventually if I just keep pushing myself a little bit at a time.

I complain about the side effects but I am still so grateful for Herceptin being there for me and for keeping this disease at bay. I must admit to thinking if I get these SE from Herceptin what will the next drug do to me when Herceptin stops?

Here's hoping with a new year not far away things will get better for all.

Sue  xo

 

4 Replies

  • Sarah_51's avatar
    Sarah_51
    Member
    14 years ago

    Hi Sue

    I am also a sufferer of the dreaded flushes and sweating ( on tamoxifen) I am taking a small dose of Effixor which does help but am still sweating like crazy at work as it's just too hot. Have you tried taking glucosamine, Fishoil or green lip mussel caps to help your aches and pains I take them every day and only have painful feet in the morning now. They are all safe to take have checked them out on-line and with my onco.

    I also put on 10kgs while having chemo and can ahppily say I have lost it all now took about 3- 4 months after finishing treatment.One of the radiation doctors told me it would take the same amount of time to lose the weight as it did to put it on! Think he might have been right!

    Hope you find some salvation!

    Love Sarah x

     

  • Sarah_51's avatar
    Sarah_51
    Member
    14 years ago

    Hi Sue

    I am also a sufferer of the dreaded flushes and sweating ( on tamoxifen) I am taking a small dose of Effixor which does help but am still sweating like crazy at work as it's just too hot. Have you tried taking glucosamine, Fishoil or green lip mussel caps to help your aches and pains I take them every day and only have painful feet in the morning now. They are all safe to take have checked them out on-line and with my onco.

    I also put on 10kgs while having chemo and can ahppily say I have lost it all now took about 3- 4 months after finishing treatment.One of the radiation doctors told me it would take the same amount of time to lose the weight as it did to put it on! Think he might have been right!

    Hope you find some salvation!

    Love Sarah x

     

  • TonyaM's avatar
    TonyaM
    Member
    14 years ago

    I hear ya sister!!Those hot flushes are the pits.I had chemo last year and am now on Tamoxifen.I now take Endep 10mg to counteract them and it does help. But you feel like you are going to combust when they happen don't you. What with hot flushes and a dodgy ankle,I find it hard to exercise.I try to control my weight with just diet.I had put on about 4 kilos so am trying to gradually get them off.Celeste,you have some good tips.I must try panadol osteo and will google the calorie king. Karen,I try to stop the hot flush before it takes hold.I keep a hand fan with me at all times and iceblocks in the fridge.I know it's healthier to drop abit of weight but you look lovely in your pic Karen,not overweight at all.

                                                        Tonya xx

  • Anonymous's avatar
    Anonymous
    14 years ago

    I know what you mean about the weight gain. i put on a lot of weight going through treatment and it was very depressing...it slowed me down, was uncomfortable and didn't do much for the hot sweats either! I wasn't having Herceptin at that time, but chemo. After treatment, I decided to join weight watchers online and I gradually lost about a stone which was wonderful. There is also a great site called The Calorie King that is free and you can get really nice healthy recipes, count calories etc and monitor your weight. I also went to the hospital dietitian to get some information and advice.

    I have just started Herceptin (3 weeks ago) in combination with chemo for secondary BC, so I'm not sure what the side effects of Herceptin are for me, or even if it will work for me...it is too early to tell. I am hoping, like you, it will keep this disease at bay. I have lost weight since my secondary diagnosis (8 kilos in fact) due to the stress of it all I think, and have re-vamped my diet. I am hoping to keep the weight gain at bay, but I know with this being a hormonal type disease, that makes things difficult.

    I'm taking Panadol Osteo at night for joint aches and pains, and this seems to be helping me....have you tried that?

    Hang in there Sue....I know the weight gain is terribly depressing at times...it's awful and it's ok to feel awful about it now and then!

    Take care,

    Celeste x