Forum Discussion
Anonymous
9 years agoNot applicable
Arimidex side effects
Hi Everyone,
Ive been on Arimidex since July 2015, and up until the last few weeks have been experiencing cramps in my hands and feet, ankles and wrists. My Achilles' tendons go on strike first thing in the morning, so I walk like an egg bound chook on the initial trip to the loo.
About 6 weeks ago, my trapezius muscle went on strike, causing sore shoulders and neck. At one stage I couldn't lift my arms up past my shoulders without pulling and pain. This has now become more localised to the right side of my neck, and my lower back is now on strike with lumbar pain and into my gluteus maximus.
With the assistance of tiger balm and panadol, I'm doing my best until my oncology appointment in 2 weeks time.
Does anyone else have side effects from this bloody medication, and what do you do to manage it?
Cuddles, Trace xx
Ive been on Arimidex since July 2015, and up until the last few weeks have been experiencing cramps in my hands and feet, ankles and wrists. My Achilles' tendons go on strike first thing in the morning, so I walk like an egg bound chook on the initial trip to the loo.
About 6 weeks ago, my trapezius muscle went on strike, causing sore shoulders and neck. At one stage I couldn't lift my arms up past my shoulders without pulling and pain. This has now become more localised to the right side of my neck, and my lower back is now on strike with lumbar pain and into my gluteus maximus.
With the assistance of tiger balm and panadol, I'm doing my best until my oncology appointment in 2 weeks time.
Does anyone else have side effects from this bloody medication, and what do you do to manage it?
Cuddles, Trace xx
17 Replies
- AnonymousNot applicableAlways open to other options, what a pity that we have to go through this. We had visitors yesterday, and we discussed my circumstances. It's surprising how many folk don't realise that it's not over after surgery, chemo and rads, it's dealing with the other therapies that are designed to protect us from recurrence. I'm a real advocate for community education, understanding just isn't out there unless you talk about it, and how many have gone before us who have just gone through it. I do believe also in research towards better medications that don't affect us like this. Here's towards a better future for all of us.
Cuddles, Trace xxx - melclarityMemberTracey and Sheran, I am EXACTLY the same!!! am over it! I can't live my life in this much pain and constantly living on panadol osteo/nurofen together every 8hrs. RIDICULOUS!
- AnonymousNot applicable
Great advice thanks Sheran, it's just holding me back mobility and health wise to have to spend each day supplementing my day with nurofen and tiger balm. Due to see my onc on Wednesday week, so hoping to discuss a change then.Sheran said:See your doctor and get your meds changed. No-one has to put up with unnecessary horrid side effects. I had mine changed to Femara, the side effects are no where near as bad.
Much appreciated, Trace xx - SheranMemberSee your doctor and get your meds changed. No-one has to put up with unnecessary horrid side effects. I had mine changed to Femara, the side effects are no where near as bad.
- melclarityMemberKath, I'd definitely ask about it for sure. x
- primekMember@melclarity. Mine was lower end normal pre chemo but that was 2 years before chemo (so it might have been like that before the drugs...who knows, as I've been on steroids and thyroid issues is why tested - Next due August.) My Adelaide bc nurse who supports during surgery recommended I ask again about starting prolia as she believes the breast oncologist would recommend it ...so I going to quiz the one who handles my case in Broken Hill.
- melclarityMember@Primek, oh ok I wasnt sure, I thought it was that Oestrogen can be stored in the fat not that it still produces after menopause? I must admit I'd sooner 2 Prolia injections a year and NO meds. I had no symptoms honestly so the bone density scan post chemo was a shock! so chemo really affected things. Certainly going to talk to him about it all when I go back.
- primekMember@melclarity . Post menopausal women still produce oestrogen in body fat. Hense why we are on aramatose inhibitors if Es + cancers and encouraged to lose weight. My understanding was it's the prolio with the aramatose inhibitor togther that reduces the bone mets risk. I'm going to discuss paying to have it as currently have osteopenia and why wait until have osteoporosis?
- melclarityMemberOh my period stopped at 46 then restarted when I started Chemo, but stopped completely after that I was 47 uuugh. So hot flushes now nearly 2 years on, but I just roll with it, I dont worry too much about it, its more annoying than anything.
Im 6 weeks post surgery so just got the all clear today to start exercising, so am seeing my Exercise Physiologist next week. I havent worked since Feb 27 when I had Surgery and I dont plan on going back til end of June hopefully. I'm on income protection but otherwise I have to return full time next year, no choice and Im stressed about it as I can't do this job anymore. So will be looking for another School. :) Your business sounds great, Id sooner something now from home but no clue LOL. I have an Office/Business background but I also am a Reiki Master and do distant healings so thats extra income too. Its alot of work and not consistent enough so couldn't do it full time from home. Aaaah time to ponder :dizzy:
x M - AnonymousNot applicableHey Mel,
That would be great to keep in touch during this time. I started with hot flushes from the age of 45, and stopped having periods at 54 (I'm now 57) I'm just wondering if this length of time with the power surges has also given me surges of oestrogen that could have contributed to my tumours. I've been walking most days within my limitations, even if it's 2 to 3 times to get my steps up for the Fitbit. I was going to a circuit class with little weights twice a week, but gave that away a few weeks ago, so that I didn't aggravate the pain, so it's like treading water, very frustrating.
Im glad that you're working though. I had to give my work away due to a company restructure at the time of my diagnosis, so had to make on the spot decisions in that regard. I run a small business from home assisting people with resume writing, job applications and small business plans. Other than that, I sell an occasional painting, still finding my way I guess.
Take care, and we will keep in touch, Trace xxx