Hello again
Was just curious to know if anyone has or has had a diagnosis of invasive Lobular Cancer.
Although it is still a common breast cancer I understand that invasive lobular cancer is only found in about 10% of invasive breast cancers.
Hi Anne - I was diagnosed with ILC in Late Nov 2015. Mine was very early stage, 7 sites and in total less than .5 cm. It took 3 months to diagnose and was discovered by pure accident. I had a cyst and after ultrasound aspiration of the cyst my breast surgeon saw a slight shadow on the ultrasound images - sitting in the area behind the cyst. She ordered a needle biopsy, but this did not find anything.
My breast surgeon was still intuitively suspicious. She next ordered an MRI which showed that breast was behaving differently to the other. A surgical biopsy was ordered and only then was the ILC identified.
No clear margins on the biopsy, and a large field of LCIS and pleimorphic cells (in the process of change) meant I needed a mastectomy. I've been told there is no higher risk of it appearing in the other breast as compared to someone without breast cancer so I've was encouraged to have a unilateral mastectomy.
If I had not had the benign cyst aspirated and a vigilant breast surgeon it would not have been found. I am very thankful.
K
HI Anne and all ILC friends.
I was diagnosed with ILC April 2015. After a lumpectomy with clean margins they found a 2.8cm mass and small amounts in two sentinel nodes. I am oestrogen and progesterone positive and HER negative. I think "most" ILC generally is. My KI 67 was between 10 and 20 so because of the lymph involvement, my oncologist recommended 6 rounds of FEC and 28 rads. I finished those in October 2015 and have been taking Letrozole ever since. (I was not menopausal prior to diagnosis). I feel pretty good, a little breast lymphedema but nothing else. I am due for my yearly scan this September and I chose to have an MRI, even though I have to pay for it as ILC doesn't seem to show up that clearly on a mammogram. The problem with MRI's are the false positives but I would rather have false positives than unfound negatives :) I also used an integrative oncologist and have been treated by a Chinese herbalist as well. I found massage and exercise kept me sane during the treatment. The Letrozole makes my joints pretty tight, but it's do-able. Happy to chat any time.
Be well ... Dany
Hi Anne, Yes I have (had?) ILC, stage 2, 1.5 cm estrogen and progesterone positive, HER negative. It was picked up during my first routine mammogram in Feb this year, there was no sign it was there otherwise. Lumpectomy in March that got clear margins and no node involvement evident in the sentinel node biopsy. Due to a high Ki index I'm undergoing 4 rounds of TC chemo. My last round is the day after tomorrow, Monday. Then will have 5 weeks of radiation therapy and hormone therapy starting in about 4 weeks. I've had a few complications with chemo so I'm going to be SO happy to see the end of it!
Hi,
yes, I had invasive lobular cancer in July 2015.
I had a mammogram in 2014 and got the all clear. I found than a lump in my breast in July 2015. Ultrasound showed just a little lump. With a MRI they could see much more but also not everything. The surgeon told me after my mastectomy that they found over 30 spots (from small to very very little) of cancer in my little breast.
Luckily nothing in my lymph nodes and also all other scans were clear.
I will have a prophylactic mastectomy of my second breast.
Hi Anne, I was found to have invasive lobular cancer in my right breast in 1987. I had a mastectomy and have had no recurrence.
Julie
Hi Anne
Yes, I had an invasive lobular in July 2015. ILC is less common than Invasive Ducta Carcinoma, my surgeon explained that it is not easily detected from a routine mammogram and there is no lump to be felt as in the case of IDC.
However, I am lucky that with the through checked from the Qld Health Breast Screen team the lesion was detected and confirmed by close up mammogram, ultrasound and core biopsy.
As my ILC was small and in an early stage it was completely removed and with negative sentinel lymph node.
I only had a lumpectomy and followed by 30 sessions of radiation to kill any cancer cells which might miss a detection (40 % chance of recurrence without radiation).
Now just a matter of annual check up for 5 years (fingers cross)
Now you know that other shared with you the 10% uncommon case of breast cancer. However, have peace in mind that ILC is less aggressive than IDC.
Cheers
Piak
