HI Anne and all ILC friends.
I was diagnosed with ILC April 2015. After a lumpectomy with clean margins they found a 2.8cm mass and small amounts in two sentinel nodes. I am oestrogen and progesterone positive and HER negative. I think "most" ILC generally is. My KI 67 was between 10 and 20 so because of the lymph involvement, my oncologist recommended 6 rounds of FEC and 28 rads. I finished those in October 2015 and have been taking Letrozole ever since. (I was not menopausal prior to diagnosis). I feel pretty good, a little breast lymphedema but nothing else. I am due for my yearly scan this September and I chose to have an MRI, even though I have to pay for it as ILC doesn't seem to show up that clearly on a mammogram. The problem with MRI's are the false positives but I would rather have false positives than unfound negatives :) I also used an integrative oncologist and have been treated by a Chinese herbalist as well. I found massage and exercise kept me sane during the treatment. The Letrozole makes my joints pretty tight, but it's do-able. Happy to chat any time.
Be well ... Dany
