An actual diagnosis FINALLY!!!!

Hey Gina 

Lovely to hear from you gorgeous.  How are you going??

I have watched 8 DVD's out of my 9 hyper sessions so far and have learnt don't watch sad ones while I am in the chamber as 

1.  I am not allowed a tissue in there to wipe away the tears.

2.  I can't just turn it off and say I not watching it.

3.  I can't go anywhere to get away from the sadness so you just have to keep watching it.

One good lesson learnt :-)  I am off to the video store and heading for the comedy section only.

9 sessions down so only 26 to go.........

I will get there don't you worry about that.  I have so many people that inspire me to make it.

Luv n hugs to you, Mich xoxoxoxo

Dear Janey

I was just thinking as I was opening my post that you are such a lovely lady and I was so happy to see the post was from you as you seem like such a beautiful person.

So I had a little cry at your words as they are so sweet.  It is the first cry since getting the news but I am sure it won't be the last.  I am sitting hear writing this and my heart is a bit achey and tears rolling down my face but it won't last long cause I just have to pick myself up and carry on as for me this journey is far from over.  I am thinking that I have so much to do before 7th October.  Got to have everything organised, bills paid, house clean, dog clean and all that stuff because I know this treatment is going to take such a large chunk out of my day and I am not sure how I will feel after them. It seems it does affect your eyesight which continues afterwards for about 3 months so I won't be able to drive alot so that will be interesting for me.

I really do thank you for your post and I am glad that you have made me cry as I guess I am over the numbness I have been feeling and can move on.  Crying is healing so that is good.

Like you I will soon be having breast surgery but are yet to discuss the nitty gritty with my surgeon but I don't think I will be lucky enough to make choices because they won't have much to work with with my alien boob so will have to wait and see.

Thank you from the bottom of my heart and I hope your healing and happy with your surgery.  I wish you nothing but the best.

Luv today, tomorrow and forever, Mich xoxoxoxoxoxox

Hey luvly lady I will be fine.  I am tuff, any tuffer and I'd rust.

So far I am doing okay.  Still trying to get my head around it I think. Really not sure what it is all about yet.

Long road ahead but it will all work out in the end.

C U Next weekend!!!!! Looking forward to catching up. Don't forget the pink :-)

Luv always, Mich xooxxo

Thank you so much Ngaire.  The same best wishes come your way for today, tomorrow and always,

Luv Mich xoxoxo

Hi Mich,

I am so sorry to hear this news! Sending you best wishes for the days ahead.

Ngaire xx

Thanks heaps Jeanine for your post.  Persistence and being proactive with the medical field has paid off that is for sure.  I knew I had to keep pushing to get some answers sooner or later.  Not really the best answers but I knew from what I was seeing and the pain I have been putting up with that there couldn't possibly be a good outcome.

Life wasn't meant to be easy.  Roll on the good times.  Maybe next year will be a better year for a lot of us.  I am hoping to have had my surgery before the new year but will have to wait and see.

You look after yourself and I hope you are travelling okay.  

Lots of love always, Mich xoxoxo

It sure is a bit of a bugger Michele.  Thank you for feeling upset and angry for me.  I don't think I have got to that stage yet.  I am thinking it is just a little bit unfair though. I can say I am cancer free but can't really say I am free from what the cancer has done to me.  Life really hasn't been much chop since November 2011 when i got my original diagnosis.

Yes from our place in Midland I will drive to station and catch the two trains and then a nice brisk walk for me for 15mins to get there or I can drive there and back but it is a 40 min drive one way on a good day.  I am sure it will all be worthwhile if it helps somewhat with healing the skin and making me feel a bit stronger before the surgery.  They won't even consider surgery while my skin tissue is in this state.  

I will be in the mono tank which is the single one so I might be lucky there is a dvd come with the tele otherwise I will be able to watch all the morning shows.  I don't think I have ever sat and watched a TV show during the day before so I will find it interesting. I will have to rest that is for sure.

The plate in the sink sounds like a good idea.  How about a whole dinner set perhaps. hee hee.

Take care, luv n hugs coming your way luvly lady. xoxoMich 

Hi Mich I have just read your post and want to say that I'm glad you have answers and that there is some treatment available for you which will help you on your way to being healthy. Persistence has paid off it seems. I'm wishing you well and sending healing energy your way. You sound like a very strong lady and I can see that you have many friends on this site. Xxx Jeanine

Thanks precious Adean.  I am so glad you are finally getting somewhere with your treatment and don't need to go down the same path as I have.

I think I need to just send along a nice letter to the Breast Centre and Surgeons and registrars to take note and if they see a boob come through the door looking like mine or if the skin punch reports that were done to dismiss that I have inflammatory BC and says no cancer BUT does state possible morphea or radiation changes then maybe they should not just brush it aside like the surgeon actually did when I asked him what this meant and maybe referred me back to the radiotherapy department in the same hospital.  I think they need to communicate a bit better.

Anyway water under the bridge now but I feel they should be made aware of it.  I am sure my alien boob is something they have never seen before being as I am in an "elite group" of very few lucky ones to have this diagnosis.

You and your medical team keep up the good work and you will get there.

PS:  I do sit down for 2 hours sometimes - when I am online to BCNA and all my beautiful pink sisters out there.

Lots of luv to you and good healing vibes on their way to you. Mich xoxoox

Finally an answer radiotherapy morphea definitely sounds alien, and your very special of course to be in an elite group, ha ha, you must be relieved to know your not going crazy. You give so much of yourself to everyone Mitch, don't forget now it's time to concentrate on you. This will actually make you sit for 2hours which I'm sure you never do. It's true isn't it we just do it because. Just to let you know I'm finally getting relief from my treatment to my alien the combo of massage and lymph drainage is actually alleviating the pain. I wish you well and will cross all my parts for you . Love adean