Oh dear.. so much to do to personalise each persons treatment and put each of us at the Center of that care. We are the lived experience.our consent to any treatment needs full disclosure..
so we consent in our best interest. How do we argue against powerful guidelines that are inadequate. .that protect the practitioners. Sometimes, I wonder if the guidelines are there not because of best practice but a regulation to protect against overservicing. The Guidelines regulate the industry.. not particularly
helpful in our living experience. Stats can be used to argue anything.
Doesnt mean they are representatively true for all and individual
experience should challenge them. What the onc quote in generic
answers seems to be a smoke screen for their own protection!
Do no harm has been quoted to me.. to exclude imaging.. but what of the suffering induced by hormone therapy! What of the unknown long term effects of Chemotherapy, what of false negatives of Mammograms. What if Radiation burns.. Treatment does inflict harms! And it is argued that the benefit will outweigh the harm..
More precise treatment is needed to treat the disturbing effects of treatment. We women and our bodies should not be dismissed.
where is our collective advocate .. ..There is enough evidence BCNA
to advocate for change in cultural entrenched medical attitudes of
‘Do nothing’.. suck it up...
.
