@Mjheke @Wonk I have never experienced feelings of not wanting to be (excellent phrase) in my life (I'm 53) but now have them regularly. They scare me and I'm very careful about how and where I am when I'm experiencing them.
These medications are pernicious, but the best we have. Yes, some people have little to no trouble with them, but look, in one little thread, in the space of a few days, there are several of us writing about the same serious side effect.
I know the doctors don't want to scare us, they don't want to frighten us into not taking these medications. The benefits into lengthening survival are clear. However I too wish they'd be more honest and transparent about them, that the whole breast cancer 'industry' would be more open. Surviving is good! But surviving at the expense of your happiness, surviving with the risk of developing other serious health conditions, surviving to manage chronic pain, doesn't really get much of a run in the survivorship PR does it...
