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kabash's avatar
kabash
Member
6 years ago

Adjusting to bad news, staying hopeful, changing habits

Hi,

I am a 44 year old mother of two girls, 3 and 7. Was diagnosed with breast cancer on Tuesday evening after a mammogram and ultrasound in the morning. On Wednesday I saw a specialist who sent me for biopsies and scans. On Thursday afternoon I learnt that I have HER2 positive BC in my right breast (3x3cm with two smaller tumours nearby), and one lymph node biopsied because it was enlarged was also cancerous. A lump on the left was benign. It does not appear to have spread to bones, pelvis, liver etc however there were two 5mm nodules in my lung that might be BC. I am hoping they are something else but have to be prepared in case the cancer already is stage 4. I remember the doctor said it was grade 2-3 but not sure if that is the same thing as stage 2-3.

I have somehow lost the reports, so I can't look over the details until they are mailed but I have an appointment on Wednesday with a different specialist to plan treatment. I am glad that things are moving quickly but am still reeling from the news and wish the appointment was sooner. I think I will be having preadjuvant chemo and/or targeted treatment, followed by a mastectomy of the right breast in several months (with optional rebuild), however I have not met with the oncologist so am not sure what to expect.

I should have gotten to a GP weeks ago as I had noticed hardness over many months (which I had thought was related to it being dominant for milk production) and had a sore breast in early July, however because I was breastfeeding and fairly ignorant of BC I mistook the symptoms including a swollen lymph node for mastitis. Only when all pain went way and I noticed the boob seemed bigger and misshapen with a prominent lump did I get myself to a doctor. Waited a week and a half for the scan that showed it was as suspected a malignant carcinoma. Strange thing is it only started hurting again after I learned what it was.

I don't know much yet but am trying to learn a bit without scaring myself too much or googling into the night. My youngest daughter has weaned herself, and on the night of the diagnosis she accepted bedtime without breast, understanding that I have sick boobies and the doctor said we should stop. In the middle of the night she was desperate to breastfeed, and I allowed this briefly. That is the last time I fed her, and she has been proud of herself for giving it up but has wanted to kiss it and hug it today.

Next move is for me to give up smoking, a bad habit of mine for many years off and on, which is not easy when it has been a response to stress and I have been quite stressed at times. It must be done, as I understand that it increases the risk of metastasis (if it has not already happened) and I wouldn't want to invite another cancer along right now. But I am trying to be gentle with myself when I occasionally light them only to put them out shortly thereafter. I hope to eliminate this habit fully by Wednesday. I have to clean up my diet and prepare for the treatment. I was a lifelong vegetarian until my early thirties however I have eaten a tiny bit of fish in the past ten years. I eat lots of fruit and veg. However I do have too many sugary things and processed stuff so I need to cut the crap out of the shopping list.

Emotionally I have been struggling a bit and I should arrange some counselling to work through my feelings. My mother and friends have been amazing, my husband has been a good support but doesn't like to see me crying, which I think is just a normal thing from time to time in such a circumstance. I am being open and honest with the kids and have been giving them lots of love and sweetness. Honestly I am sometimes very scared but I am trying to be strong for myself and for everyone around me.

Sending love and understanding to others with BC, and those who have recently been diagnosed, it's pretty tough to take, huh?





67 Replies

  • Wishing you all the best for the scan results on your lung xx
  • Welcome @kabash.  You're sounding remarkably together for this point in your treatment.  I can remember veering from despair to fog then back again.  Everyone else has given good advice so I won't bother repeating things.  By all means, if it gives you some feeling of control (and that's a big thing on this rollercoaster) do keep on with quitting smoking and refining your diet but don't beat yourself up about it if it gets hard - as @iserbrown says, it will come.

    Partners sometimes find it hard to cope as their first instinct is to try to fix or protect and your husband can't do this.  It is important, though, that he understands what you're going through and that you need to be able to cry.  If he is able to, take him with you to your appointments as it will help him to understand what is going on.  If he isn't able to go, take someone else who you trust and who is likely to listen and pick up on things.  So much of what you're going to be told in the next few weeks/months is probably going to sail right over your head no matter how intently you listen.  If you can't find anyone to go with, ask your doctors if you can record the appointments.  I also found it useful to jot down questions as I thought of them so that I would be prepared when I went into an appointment.

    Take care.
  • Hi @kabash, fellow Melbournian. Sorry you're here but welcome.

    Just a quick answer (cos it's late!) to your question. Grade 1/2/3 refers to how rapidly the cancer cells are multiplying, how aggressive they are. Stage 1 - 4 refers to size and number of tumours and how far they've spread in your body.

    You sound like you've getting a good handle on things pretty quickly. The beginning of the BC shit show is usually the worst bit. Things tend to get better when you get a treatment plan, so hang in there and try not to cross bridges until you come to them. Big hug, K xox


  • I am very grateful to hear from a few people so quickly and to feel like there is support in a community of people who have been through similar awful stuff... I am in Melbourne which I have heard is a relatively good place to be in Australia if you have cancer...will be treated at St Vincents. I have so many questions and will surely use this forum moving forward as I adjust and commence treatment. Love and Thanks for the kind words and useful links 
  • Hello @kabash and welcome. It can be very overwhelming in the beginning when first diagnosed with breast cancer, but as the other members have mentioned, once you have a treatment plan in place you will feel much more in control. Your treatment team is there for you and your family every step of the way, as is the community here.

    Below are a couple of links to help you find your way around the forum and also how to find a breast care nurse and order the My Journey Online  information tool if you haven't ordered it yet.It can be a whirlwind when first diagnosed.... Breathe and take it one step at a time. 

    How to post on the main forum – use this link to get to the main forum and begin a new post. https://onlinenetwork.bcna.org.au/post/discussion

    Navigating the online community formerly the what and how thread

    http://onlinenetwork.bcna.org.au/discussion/14879/navigating-the-online-community-formerly-the-what-and-how-thread


    Breast Care Nurses

    https://www.mcgrathfoundation.com.au/OurMission/OurNurses/FindANurse.aspx 


    My Journey online tool and other resources

    https://myjourney.org.au/hp/step5


    BCNA Helpline 1800 500 258

    If you have any questions, concerns or require any further information or support please call 1800 500 258. BCNA’s helpline will now be open from 9 am to 6 pm Monday to Thursday and 9 am to 5 pm on Fridays.  


    How to understand your pathology reports

    https://www.cancer.org/treatment/understanding-your-diagnosis/tests/understanding-your-pathology-report/breast-pathology/breast-cancer-pathology.html

    Take care of you and please do not hesitate to contact the BCNA Helpline to speak to a cancer nurse for information and support.

  • Deep breaths!
    You're on your way to having definitive direction for treatment and or surgery; whichever they decide comes first
    Deep breaths!
    Take hubby or someone to next appointment as there's lots to take in.
    The most important thing is it has been detected.
    As to diet and smoking....that will work out in good time.  
    At present try not to google and second guess what may or may not happen.

    Take care 

  • Welcome to BCNA - pretty well the best BC forum out there.  You can use the 'search' section at the top of the 'Discussions page' to search out specific terms ...... we are here to help support each other as we go thru this shit fight, called Breast Cancer.

    Sending you big hugs and supportive thoughts as you face this with your young family @kabash.  Yes, it is a tough ask - It is such a shock to the system to be diagnosed - and we've all been there so can feel your anxiety.

    Put up any questions that you think of .... someone will have excellent advice relating to it xx

    There is a section here for Young Women - maybe ask @Giovanna_BCNA about joining that group, where all discussions are not 'public'.  

    Difficult tho it is, try not to pre-empt the meetings with your specialists.  Others will jump on who have experience in HER2+ .... your team will be discussing the best options for you right now.

    Fingers crossed it isn't Stage 4 ... definitely try & arrange some counselling to get on top of things - often your Breast Care Nurse or Meds Team will be able to put you onto someone local

    You haven't said where abouts you are (state & town) as others may know specific services that may be available to you.  If you are in 'remote areas' you can claim both petrol costs and accommodation costs thru IPTAS (Isolated Patients travel Assistance Scheme) or similar - most states have them.

    It is totally normal to have a raft of emotions - from rage, to disbelief & tears & everywhere between.  Better to 'let it out' than  to bottle it up & be very stoic.  

    Take care, all the best with ditching the ciggies ... maybe don't take on too much 'to change' at this point - focus on what your team recommends - tho eating healthily is a good way to go.  When I was diagnosed in Jan 2018 - some well meaning friends suggested some of the most stupid advice I'd ever heard of!  So be selective in what you accept as being 'good for you' ..... and just walk away from the dipsticks!

    Thinking of you and the family xxx