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Hazel_M's avatar
Hazel_M
Member
12 years ago

Aches and pains

Hi ladies, I am 5 weeks past chemo and I'm not sure how I should be feeling. I have developed aches and pains, I'm still retaining fluid, and my arms and legs are feeling heavy and tired. I did get my arm pain checked out, the nurse thought it was DVT, it wasn't, but they could find no other problem. I guess what I want to know is, is any of this normal? I was a bit naive thinking once chemo was over, I would bounce back. I have done 5/30 radiology appointments, so far, so good. Unfortunately, my mini holiday at the coast was spoiled when I sat down on the beach and my leg locked up. It seems I have cartlidge problems and if it should happen again I will require surgery, it is slowly getting better, I couldn't face another operation at this stage. I am treading water with my depression at the moment, sometimes I go down and then I pop up and soldier on. My partner has been a great support and I love him so much for putting up with me. I did dabble with the theory that at some time I must have done something wrong and all of this is payback. But my partner, doctor and psychologist all assure me it's just plain bad luck. I do have some good days when I appreciate all the good things in my life. I have a good prognosis, friends and family who love me. So it's not all bad and I realise it could be worse. Would appreciate hearing what others felt like in the weeks after chemo finishes. Don't see my oncologist again till May so can't really ask her. Thanks ladies and I hope you are all travelling as well as can be expected. Take care, 

Hazel xx

6 Replies

  • Thank you for your replies, you have eased my mind. It was silly of me to think I would bounce back quickly. I am back to 'one day at a time' which is what I should have been doing all along. I will get there eventually, feeling more positive, thank you, take care, 

    Hazel xx

  • Thank you for your replies, you have eased my mind. It was silly of me to think I would bounce back quickly. I am back to 'one day at a time' which is what I should have been doing all along. I will get there eventually, feeling more positive, thank you, take care, 

    Hazel xx

  • Hi Hazel

    I am nearly 4 years on from diagnosis and when  I read you blog I thought of how I was after chemo and you know I was very like you. I finished chemo at the beginning of Dec2010 and remember sitting at my mother-in -laws place on Boxing Day with feet twiceas big as they should be , no hair, and weighing 10 kgs more thanI had in a very long time and it hurt every time I got out of the chair!  I began radiation in Jan 2011 and had some issues with swelling in my chest but otherwise it was much easier than chemo and I began to walk the dog every day for 45 minutes. What you are experiencing is I think the normal path we have to travel. It does get so much better. In June 2011 I joined a Dragon Boat Paddling group which changed my life and my weight ! It's great exercise for your arm and also for the soul! I very quickly found I was so much fitter. I allowed 2011 to be my recovery year and then in 2012 my year to get fitter so I joined a gym and am now pretty fit. I am also paddling in the sports team and looking forward to the International Breast Cancer Regatta in October this year in Florida. i never imagined that I would be so competitive at 55 years of age!

    Good luck and you will find your new normal.

    Sarah x

  • Hi Hazel

    I am nearly 4 years on from diagnosis and when  I read you blog I thought of how I was after chemo and you know I was very like you. I finished chemo at the beginning of Dec2010 and remember sitting at my mother-in -laws place on Boxing Day with feet twiceas big as they should be , no hair, and weighing 10 kgs more thanI had in a very long time and it hurt every time I got out of the chair!  I began radiation in Jan 2011 and had some issues with swelling in my chest but otherwise it was much easier than chemo and I began to walk the dog every day for 45 minutes. What you are experiencing is I think the normal path we have to travel. It does get so much better. In June 2011 I joined a Dragon Boat Paddling group which changed my life and my weight ! It's great exercise for your arm and also for the soul! I very quickly found I was so much fitter. I allowed 2011 to be my recovery year and then in 2012 my year to get fitter so I joined a gym and am now pretty fit. I am also paddling in the sports team and looking forward to the International Breast Cancer Regatta in October this year in Florida. i never imagined that I would be so competitive at 55 years of age!

    Good luck and you will find your new normal.

    Sarah x

  • In the weeks after chemo I would get very tired.I still do.Today for instance, I have been shopping with my daughter.I felt fine earlier, but now I have crashed!!!Things will get easier Hazel.Be kind to yourself and don't expect too much.Cheers xxxRobyn ,
  • I only had not quite 3 weeks between last Chemo and radio. We tried to have a weekend away and I was shocked at how weak I was from the chemo. I struggled to walk 250m along the boardwalk to our room. I was fairly fit before chemo and up until my 4th chemo kept up with walking 5 km most days. So in a matter of weeks I had lost this fitness thanks to Docetaxel. I had aching legs, fluid retention and breathing was affected. So you are not alone with how you are feeling. I did start to feel better during radio, which surprised me as you are supposed to get more tired! We actually moved house during radio so maybe it was the excitement of this that got me going. However, I did feel really, really tired for about 3 or 4 weeks after radio finished. I finished chemo 19 Sept and radio 12 Nov and was only starting to feel like me around Christmas/New Year. I still get tired now (6 months after last chemo) but the aches and pains and fluid retention are long gone, thank goodness. I was surprised at how long the effects of the chemo lasted, I also did not get any hair regrowth for 9 weeks! It takes time, but you do start to feel better and once you do recovery can be fairly fast (one week I was still struggliing the next I was finally feeling good, but tired). Don't be too hard on your yourself, it can be frustrating but life will improve, it just might take a little while. Take care. Deanne xxxxoooo