Forum Discussion
jd48
10 years agoMember
AC Chemo - Day 5 (or should we say 'my arse is on fire')
OK... Day 5 slightly more eventfull than desired.
Started off normal - like other days. Considering my day 4 fiasco with meds I took extra steps to ensure I took the correct meds in the correct order.
Made myself nice spelt bread toast with avocado and red pepper dip which really hit the spot brekkie wise. Just love that tangy vinegary red pepper taste as cuts through this coated tongue of mine allowing me to actually taste the food.
The story obviously starts nice and easy and one would think birds are about to chirp, butterflies are circling my head, Bamby is grazing nearby etc...
Yeah right... maybe 10 minutes post finishing my brekkie before I could even make myself a coffee from the just boiled kettle that horrid queezy feeling in the gut - the one that usually gets your brain to scan for the nearest loo as there is an explosion about to happen hits me.
OMG - there is a volcano in my gut... I managed to get to the loo in time (THANKFULLY) and all I can say is MY ARSE IS ON FIRE !!!!!
I appologise if this offends anyone and I thought long and hard how to express what happened but there is no delicate way of going about it and we are all adults so not going to sugercoat it.
The explosion that took place and what was thankfully expelled was like molten lava and hydrochloric acid combined. I imagined and craved for a paddle pop icecream which I felt at the time would be beast used to shove it where sun does not shine to help put out some of the fire ????????
Well all said and done I dragged my sorry arse off the loo and offcourse the fire in the belly still raging making me think there is part 2 of the "Dragon Arse" about to take place so I set myself in the sofa both feeling sorry for myself and panicking at the same time that I must have food poisoning and cursing those 2 tablespoons of yoghurt I added to my spag bol the day before.
Yes offcourse I reach for the thermometar but it sits happily on 37.2
I should be happy at that but offcourse until then it was below 36.7 so egged on by my burning backside and the tornado that is spinning creating a vortex in my gut I am starting to panic... I have an infection!!! I am so stupid!!! How could I have been THAT stupid!!!
And all that time offcourse sucking on a bottle of water that the taste of at this stage is making me want to puke but I had the runs so need liquids
Am embarassed to say that the case of runs and seriously scortched backside had me curled up in a sofa for a good hour like a baby.
I mean seriously - I am 44 years old and here is me sitting like a kid admonishing myself over my weakness for what at the time seemed like a nice cooling refreshing tablespoon of yoghurt. I was certain that it was food poisoning. The damage was done...
Well after an hour of being a sooky freak (still feeling like there is a volcano in the gut but managing to avoid further loo trips) I decide to use the "help" card I was given in case I did contract an infection - the 'advice line should I hit 38deg'
Temp still happily sitting at 37.2 I dial the number sheepishly thinking how do I explain I am calling over a case of a burning backside...
Fortunately it did ring out a few times before I got through and by that stage brain did start to function and I did explain in a cohesive manner what had happened and just wanted to run past them if that was normal or if I should worry about food poisoning.
Thankfully, seems I must not have been the first as the calm friendly voice on the other side implied that was Chemo and not food poisoning, to keep the fluids up and if it persisted to get myself a tablet from the Chemist the next day. Offcourse I was to stop movicol until this settled but to proceed with everything else as previously instructed.
This is where me and my burning arse are put to shame. I start to think just how much of an idiot I was freaking out the way I did. Yes a 44yo freaked out like a toddler... BUT that stays between you and I ladies - not admitting that in pubnnI or to anyone that knows me - ever...
Well I got my sorry still on fire backside off the sofa and made myself a coffee then proceeded to plonk back into that same sofa too scared that moving about would result in further lava erruptions.
That is when what will be from this day forward be known as the 'endless toxic cloud' hit. OMG!!!! For the rest of the day and frankly throughout the night the amount of gas my poor belly produced was astounding. There was no stopping or slowing it down. And unlike the burping of the days before this was hitting south and sounding like Moses was parting the Red sea... I should also mention that it continued to cause my backside to burn as I swear after it is expelled it feels like someone has washed my backside with hydrochloric acid. Weirdly there is no smell to it - well not weirdly - I should say THANKFULLY... but the soundeffects had me hide my 'shame' from other human populace. And I am still in hiding.
So the rest of yesterday went by with me sitting on a sofa not wanting to move my tender tummy in fear of erruptions, unsuccesfully trying to drink water which suddenly to me tasted like mud and attempting to not think about my burning backside (easier said than done as I am preocupied by a case of a seriously burning arse)
I did also have a call from the lively breast care nurse who wanted to touch base who also reassured me my newly discovered volcano was normal and suggested that since I have been avoiding nausea thus far it would be a good idea to cease anti nausea meds.
So what did I learn yesterday?
I have a newly found respect for my gut as the toxic mess that it has been contending with these 5 days obviously is trully toxic considering my backside's failure to handle it with dignity.
Soap free skin wash is just brilliant at dousing and mittigating the fire left behind on one's private parts by the toxic lava. Seriously helped a lot being able to wash with cool water and creamy soap free gentle wash.
When you cannot stomach water do mix it with pure fruit juice or make a 'clear soup' by pouring boiling water over 1tsp of vegetable stock powder. Both helped me down the liquid which seemed like an impossible task previously and apart from helping hydrate both the sugar and salt help with electrolites...
Do not panic when faced with your body doing the unpredictable even if it is scary at the time as these damn toxins do their own thing so it may not be something you did that is causing the grief but it may be just simply part and parcel of the damn Chemo.
Learn to accept that at some stage your body will do things that convention deems innaprioriate (like fart so loudly that the mountains 60km away shake in terror). It is that way for a reason I guess and there should be no shame to it and when we talk talk toxic crap - better out than in... I guess now just need to find Spot the dog to blame it on if I ever dare venture in public ??
As far as cloudy brain goes, itchyness and feeling like I could sleep forever all is still well and trully accounted for. Nothing overly drastic or impossible to deal with.
Still very much wondering how I can be this placid for this long and at the same time (while dealing with my backside that is still on fire) starting to mull over 'ice cream for your butt' or 'buttsickle' business ideas that may be a great way to make money out of one day... Wondering if I should call up that show "shark tank" and see if there is any interest - just need to figure ouT the best way to demonstrate it on National TV ????????
So much from the Chief Fire Bum here - off I go to try and put out the fire...
Jel.
18 Replies
- jd48Member
I called them today apparently my weight loss is really freaky so when I go in on Wednesday they are going t run more tests have me see the dietitian as well and try and figure out what is going on seeing that weight affects the amount of chemo meds they pump in so they do not want me fluctuating like this.
i swear the Big Fellow 'upstairs' has a weird sense of humor - I cannot believe for once in my life I am dropping weight like there is no tomorrow and need to figure out a way to put a stop to it
Jel. - Brenda5Member
You will eat not too bad at the end of each cycle. My weight went up down up down. There were times I couldn't even stand bananas. They just smelled and icky.
- jd48Member
Thank you Brenda ?
I checked my weight again this morning and turns out I had lost 3.5kg in 5 days so since I am.drinking water now made a resolution to eat all the time. Nothing exciting - just proper meals plus to snack on bananas...I have heaps of weight to lose but still reckon that much of a less is an extreme and do not want to cause damage to other organs...
Going to run it past the oncologist anywau when I see him on Wed. Just I guess that I do not know what is or is not expected at this stage
Jel.
- jd48Member
OMG MAGS YOU MADE ME.LAUGH ??????????????
Thank you....
Noting all the tips down and hoping the next round is a tad easier.
Holly crap - they should warn people about this and not let them learn the hard way...
I am kind of used to it now - that 'afterburn' becoming less distressing as it is expected so kind of when it hits at least I am not getting a desire to drag my backside arround on the ground like a dog full of worms...
I did het reicked this morning where I went to the loo and no molten lava feeling and then exhilerated went back to bed thinking all was behind me only to realise we are into a new stage where it trully is an afternurn as it starts to kick in a tad later and bloody well ligers on for an hours or so.
Hubby was joking that instead of a popsicle idea I should maybe be considering applying some cold ytoghur but he quickly shut up when he realised I was actually looking interested in the concept.
He is so grosed out by my constant tornado impressions (ie gas expulsions that shake the house) that is now worried about maybe having me follow through on my threats of using food as fire extinguishers and offcourse grosing him out even more.
You should hwar discussions in this home where her tries to explain to me the difference between men and women when it comes to farting - ie girls just do not do it 'cause they are girls... Lycky bastard was married to someone who really never had any gas issues so he has been spoiled. Well the shocked bugger is mot copping it and I am well and trully making it up for the past 16 years ????????????
- Brenda5Member
I never worried about too much of eating. As long as I drank copious amounts of water every day and just nibbled on a bit of toast or ate a little bit of banana or had weetbix, that was good enough. Its not like you are running marathons or anything during chemo, just lots of sleeping. BTW the bum burning takes a few days to heal, as did the membranes in my nose which is also a chemo side effect.
- MIrvineMember
Mwahahaha...so sorry but you re hysterical and just expressed my thoughts and experiences exactly. Yes both rounds and an arse like a japanese flag. And the terror of a tearaway chocolate flood from any random escaping bum burp.
I have found the following helpful and has reduced my 7 day arse ectomy from round 1 to a 2 day bump from round 2.
Keep buscopam close by. It s an antispasmodic which is great for cramp and colic or bloating. Peppermint tea works. Also flat coke or lemonade as you get your salts and sugar.
Also i ve start taking them wee yakult thingys once a day and i think they ve helped too.
As a last resort a bit of sudacream. Cool yet refreshing on your wee ring sting. Not too much as it might cause infection.
I found that after 2 days a bit of lomitil relieved the symptoms but just watch that you don t take too much and start firing out rabbit pellets like a machine gun instead.
Much bum hugs.
Mags xx
- jd48Member
Thank you ??
Jel.
- jd48Member
Thank you for the tips :)
Inhave actually need lucky that Inam only making between 1 and 3 trips to the loo per day so not needing the gastrostop yet.
Visits are memorable, loud and still burning everything in sight but I am just relieved that is is not the trafitional 'runs' where it would mean sitting on the loo arround the clock.
I found that eating the mountain of steamed zucchini and yellow squash helped yesterday as my gut has also been burning the past few days and weirdly after eating it it has calmed down for several hours (did not help the backside getting scortched again though)
Current plan is lots of steamed veg and if that turns sour (or bites me on the proverbial) then will be hitting the boiled rice boiled or baked potatoes or just plain toast...
And still am counting down towards that (currently thought of as 'blessed') week 2 where the fires are expected to subside ??????
Jel.
- iserbrownMember
BRAT which is bananas rice apple and toast are foods that are easy on the gut when trying to eat again
Good luck with it all
- primekMember
And...boiled rice...kind to gut and provide bulk to slow it all down.