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jd48's avatar
jd48
Member
10 years ago

AC Chemo - Day 16 (first long walk in weeks wiping me out completely)

Well happy to say day 16 also not overly eventfull although learned tummy not as healed as I believed it to be and I have become a weakling ??

Day started off well with my going to the GP and being cleared for a throat infection which I was suspecting as been dealing with a recurring sore throat for a fer days. Seems that salt water gargling is worth its weight in gold as has managed to stop the infection every time it reared its painfull ugly head.

Also had the great news that my liver is on the mend (have been having horrible liver function results for a year now which do worry me as I have a preexistong liver disorder) and my liver function results even though still way off the scale are way better than they have been in 12 months. I must admit I almost fell off the chair as the knowledge I had all those toxins circling my body plus those horrid fluorescent yellow poos had me so worried my lived had been damaged even more that I was not even resorting to paracetamol when a migraine hit twice in previous 5 days and I suffered in silence.

I cannot believe my liver had done so well and am so happy I barely have words to express it. I honestly needed something to go right for me after that miserable 2nd week turning crap so now this has kind of lifted me and I am feeling almost invincible again ??

Who would have thought my body could rally like that even with all that toxic sludge arround ????. I was practically dancing on air and feeling invincible.

Lifted by the news I willed myself to meet with a friend in a local nature reserve when she called up to ask if I wanted to keep her company while she walks her dog and must admit I walked full 80 minutes. Absolutely wore myself out as I cannot remember walking that long in months but I needed fresh air and I needed to exercise my poor legs that had been on a couch for 2 weeks now so I persisted. I did have a few worries about my tummy which in the past few days had not allowed my movement (or I would have an undortunate run to the loo episode) but tymmy complied and full 80 minutes we never stopped.

Hooray for me ??

Well within 2 minutes of getting home tummy did what I feared and off to the loo I had to run BUT I still consider this whole thing a success as I managed a full 80 min walk before it happened so a very happy girl I am.

As I curled up on a couch to nurse my now feeling raw tummy I still had great plans for making a nice lunch for myself and a big dinner for hubby that I had planed for the weekend but never did it as was feeling crap at the time.

Did have lunch then realised I was feeling tired then off to the couch and next thing I knew it was 4pm... I had fallen asleep arround 12:30pm and slept the entire afternoon ????????

I cannot believe that a single 80min walk had wiped me out that badly... To be honest it really shocked me. I have never been able to sleep during the day - never in my whole life (not even as a baby or toddler - to my poor mum's dismay) and if I ever did upon rising I would feeel drained and physically ill.

I have not idea what this Chemo has done to me that now at the age od 44 (well 45 in 2 months) I am dozing off at the drop of a hat ??????. 

After such a great morning and after feeling so proud of myself to have managed that 80min walk with my raw tummy complying I must say my mood dropped. Being wiped out by a single walk did kind of deflate me as it made me feel like a stereotypical 'cancer patient' and in some weird way regardless of everything that has been happening since my diagnoses I had not felt that way.

Well the rest of the day kind of flew by not as nicely as the day had started as I had to rush to make a quick dinner and not a planned one. Then a monster of a migraine hit and I was again curled up on the couch feeling sorry for myself trying to manage the pain without the meds before dragging my sorry behind to bed.

All in all mixed feeling about the day. Loving that I did that long walk and elated by my liver function results but very much deflated for realising that my body is not coping well and is getting wiped out so quickly and super dissapointed that I appear to be having rather drastic mood swings as I went from being super happy to being super misreable in such short amount of time. Plus frankly very unimpressed that being wiped out by a walk would get me that depressed. I mean there are reasons for being upset and feeling tired after a walk should not be it. That is not something that should affect my mood that much. So - now am resolved I need to work on my head... It is time to start rewiring my brain back into a 'normal' mode of operation as being cooped up like I have been these 2 weeks is definitely not good for me and the last thing I want to be dealing with is depression by the end of Chemo treatments ??????

Jel.

10 Replies

  • Thank you Kath ?

    I know what you mean about finding myself all teary - and frankly then wondering later on why that was so....

    I just realised that in my fear of catching seasonal bugs I have locked myself indoors which has in turn caused me to start feeling depressed easily.

    Not sure if it is seclusion or lack of vitamin D or a combination of both but as I had to have a few doctor's visits these past few days and went for that walk yesterday I am realising just how much better I feel when I do get out so I have to make a change.

    This cooped up indoors thing has me too much inside my head - that is why I think I need to make a deliberate plan to get out and about - even if just to walk on my own in the fresh air.

    Mind you mext chemo is supposed to be on Monday so I know I have to maximise my time between now and then as once that sludge is pumped into my veins I know it will be a week of feeling tired and sleepy combined with a case of "my arse is on fire" + flatulence I should spare other from and then a week of stomach troubles that will probably confine me to the couch.

    I think I need an action plan that maximises the week 3 "calm before the storm" period to get back into a "sane human" form ??

    Bit I will prevail ??????????

    Jel.

  • I believe the chemo messes with our brain chemistry too as I found myseld crying over the stupidest stuff. I too missed feeling fit and well and it hot me down also.  I think the motto of... do what you can when you can, rest when you need and accept sometimes you will just feel sad but it too shall pass...all helps. It does. Stress is tiring on its own never mind throwing a bit of toxic substance in there.  Take care. Kath x

  • Anonymous's avatar
    Anonymous

    Walking is probably the best thing for you, as well as getting your Nanna naps. Proud of you girl, Trace ??????????

  • Thank you - I think I will go with your suggestion

    My heels cracked last week and simply will not get better as skin is dry as can be even though i keep on moisturising it around the clock now.  Never though about damage long walks might do so thank you for pointing that out :)

    Jel.

  • You better stick to 30 mins walks. It's not just the energy levels that suffer, you will notice the skin on your feet become not so hot either. Nurse everything and you will get through.

  • Thank you Cath ?

    I absolutely agree that my crashing on the couch and napping for the arvo sshoul not be sending me into a tailspin but it did... That is why I got a bit worried that I am allowing such small things to make me depressed and figuring I better get a handle on it and do something different going forward as would hate to think that by the end of Chemo I will have psychological issues to deal with and not just physical... 

    Time for me to come up with a plan to get some 'normality' back into my life ??

    Jel.

  • It's great news about your liver Jel & well done on the walk, 80 minutes is a big achievement with all that you are going through.

    I am wishing you well for your next chemo & sending a big hug.

    Eileen x

  • Hi Superwoman,

    You are being way way toooo hard on yourself!!! Hooray for the liver results, Hooray for being able to get out for 80minutes (bloody hell - made me tired just reading that one!!!) Hooray for not having to have the loo run in the park!!!! I reckon they are all pretty awesome accomplishments. Your body is dealing with a phenomenal amount of stress at the moment so no wonder it decided to have a little recharge!!! The term POWER NAP comes to mind ;-) . To go for such an extended walk while being treatment free is something a lot of people would envy, let alone so soon after treatment, good on you!!  And I wouldn't be worrying too much about feeling a little bit low (even if you feel the reason you are feeling low is not justified) - be gentle with yourself, at the first sign of feeling low go into pamper mode!!! You can add that to your super powers!!!!!! Very happy you've had such a good day :-) Xx Cath