Well, there's that then, meta-what?
Self diagnosed lump, x-ray, mammograms, ultrasound, infiltrating mass, biopsy, estrogen +ve, progesterone +ve, HER2 -ve with follow up labs, chest pain, enlarged nodes left arm, CT scan, bone scan, bi...
Forum Discussion
@"Soldier Crab", because of the NDIS roll out, I don't have access to respite, the providers have all folded, amalgamated, and must use my son's NDIS payments to give him "community access" which is one of his funding goals but is not covered by his funding. F if I know why. I've asked for an urgent review which means I'll probably be contacted by the end of January next year. Mean time, Central Coast Commonwealth Care Link Emergency Service has been a "grateful" send, and been able to find support workers to take my son to school and O/T on as little as 12 hours notice so I have been able to get further tests completed.
I haven't yet had a chance to talk to his O/T about how to explain what's happening, to my son, nor to ask her how much she thinks he gets it. Because he's completely no language spoken or signed, there is a disconnect between what we say/do and his cognition level. Just another thing to work on before everyone closes down over Christmas. It's good to know someone else understands what I'm saying because I had no luck explaining it to my oncologist, she did (however) offer me the psychology services for children of parents with cancer. I don't know if that will help. Kinda concerned introducing my son to another new person in a hospital setting will only make him more anxious and really not up to having to change sheets every day for a week, nor cleaning puddles out of the carpet. I love my son, but there really is only so much pee I can deal with in a week. I know you'll get that too, without feeling sorry for me, which some people do, which I don't need. Sympathy is fine, empathy is better, a sense if humour is priceless.
12:30am, awake again, not able to settle, so it was really great to read your post. I reckon we'll chat often.
Cheers beautiful woman.
I haven't yet had a chance to talk to his O/T about how to explain what's happening, to my son, nor to ask her how much she thinks he gets it. Because he's completely no language spoken or signed, there is a disconnect between what we say/do and his cognition level. Just another thing to work on before everyone closes down over Christmas. It's good to know someone else understands what I'm saying because I had no luck explaining it to my oncologist, she did (however) offer me the psychology services for children of parents with cancer. I don't know if that will help. Kinda concerned introducing my son to another new person in a hospital setting will only make him more anxious and really not up to having to change sheets every day for a week, nor cleaning puddles out of the carpet. I love my son, but there really is only so much pee I can deal with in a week. I know you'll get that too, without feeling sorry for me, which some people do, which I don't need. Sympathy is fine, empathy is better, a sense if humour is priceless.
12:30am, awake again, not able to settle, so it was really great to read your post. I reckon we'll chat often.
Cheers beautiful woman.