Waiting for oncologist ??

Hi primek

I have the chemo appointment on Friday and the radiation appointment next Tuesday. Can't believe how full my diary is this week ! I guess it will only fill up more in the oncoming months now.

Great news. So when are your appointments? 

Hi everyone,

I have an update, I got onto my specialist yesterday and told the receptionist I was still waiting to hear about the referrals after just over a week. I was told leave it with me and I will get back to you by the end of the day... just when I was thinking here's another day with nothing ! 4.30pm the phone rings and it's the receptionist for the chemo specialist.. yay an appointment now ! Then this morning I got a call for the radiation specialist yay another appointment ! Hopefully this means I will finally get answers to my questions and a date for the start of treatment. Nerves are starting again now, guess it's the fear of the unknown...

Hi Rachwllms that would be great smile: 
I sent you a message did you get it ? Just message me back with your details and I will give you mine too cheers.

Jazz i would really like to keep in touch too. I can give you me email address if you like or we can communicate via this post ?

Hi @Unicornkisses  thank you for your comments. I will certainly will chase up that information cheers :smile: :-) 
Unfortunately I did not see my specialist in person about the oncologist, he rang me after they had their meeting about me hence the lack of information I was given in this instant. I will certainly be looking for answers Monday morning though.

Hi @Jazz26, there is an excellent booklet you can read and download called Your Guide to the Breast Cancer Pathology Report on www.breastcancer.org the main breast cancer website in US. It has places you can fill in your own details and refer to the description. This will help a lot with understanding the pathology.
There is also a fact sheet on pathology that is helpful on the main BCNA website here under resources.

One thing I have realised through all this is that you have to take control of the process if you want peace of mind. 
You will learn what questions to ask such as - when should I hear back from the ....... Insert specialist here ...... With my appointment?
That way if the call doesn't come when you expect it, you can ring straight away.
I would want to know who the referral was to and their contact number before leaving the specialists rooms. You will find the receptionists are usually very helpful with that information.

Thank you ladies for your comments it is greatly appreciated. The more posts I read the more I realise I may just have to try it and see how I go, hopefully I won't be too sensitive to it. I do have a breast care nurse whom I emailed last week with my concerns but I have not heard back from her as yet. I will get onto my specialist on Monday and find out what is going on as waiting is no good when I want to get back to work ! It doesn't help that it is almost Christmas too which I'm gathering will delay my treatment too ?
 Rach I would be very interested to see how your journey goes as it is very similar to mine and at a similar stage also. I'm still trying to understand the lingo everyone is using and figure out how to read the pathology report properly to understand more details of the findings. This is the first time I have even talked about my diagnose in detail as I guess I just didn't think it was real. I just though the lump is gone now I'm all good lets move on. It was the discussion of my treatment that made reality hit me like a freight train. :-(   Anyway talking to those that have experienced the same makes me feel a lot better so thank you all. :-)

@Jazz26 I agree, I'd get on the phone and find out what's happening, it shouldnt have taken that long for your Oncologist appointment especially as you already have your results/pathology. It is hard trying to get ahead of everything especially if you have alot coming up. I had 4.5 months of chemo 4 FEC every 4 weeks and 8 weekly Taxol. There are alot of women who work through no problems, I managed for about a month and was forced to stop completely due to being too ill and was off work about 3 months in the end. Ummm no I couldnt afford to not work as was a single parent, luckily I had income protection that helped a little. I made heaps of plans to manage it and how I was going to work but unfortunately I was drug sensitive and my body just didnt cope. So just remember you may not need it, and if you do, everyone is different and you can't possibly gauge how you will be, its more a wait and see in terms of your plans. My diagnosis was Grade 2 Stage 3 IDC ER+, so lots of factors in determining chemo or not. Hang tight. Hugs Melinda xo

Hi Jazz, I have just been through what you are. The timeline is very similar to mine, i had to wait 5 weeks post lumpectomy and a week for the oncologist appointment. I have to have 4 rounds of chemo, herceptin and hormone treatment, although my margins and lymph nodes were clear i had micro calcification's around the initial tumor. I had my first round of chemo on the 3rd of November and i was pretty crook from it. The day after treatment i slept all day, i can only describe it as the worse hangover you have ever had and it lasts a week.I only had two days off work but i think i could have done it if i had of pushed myself. Day six was yesterday and i felt fantastic and i have felt the same today. My head is getting really itchy and has developed little sores all over my scalp so i'm guessing i will lose my hair pretty soon. Next dose of chemo is on the 24th of November so fingers crossed it's not too bad. Good luck with your journey, Rach xx