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for chemo!!","id":"message:40038","revisionNum":1,"repliesCount":63,"author":{"__ref":"User:user:21277"},"depth":0,"hasGivenKudo":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:40038"},"readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:40038"},"body@stripHtml({\"truncateLength\":200})":"Hi Everyone, I am new to this network. My name is Debbie and I was diagnosed with Invasive ductal carcinoma, grade 2, HER positive amplified, oestrogen and progesterone receptor positive, tumour 23mm,...","body@stringLength":"1229","rawBody":"Hi Everyone, I am new to this network. My name is Debbie and I was diagnosed with Invasive ductal carcinoma, grade 2, HER positive amplified, oestrogen and progesterone receptor positive, tumour 23mm, on 5th July, so after a life changing shock, out of the blue as no symptoms, at 51 went for my first ever mammogram. Thank god I did as I'm one of those people that thinks nothing will ever happen to! as I live a healthy life, breast fed both my children, never smoked etc. Anyway,how wrong I was, thinking I was so healthy.
I have since had a right side masectomy on 13th July, but now feeling very stressed, as am still waiting for an appointment with the oncologist. There seems to be an issue after having surgery at Royal Perth hospital I am now being told I'm suddenly out of catchment area for treatment, although not told this when I saw surgeon. I cant believe how stressful this has become waiting for chemo to start and not knowing when. I would just like to ask everyone out there who has had chemo, how long after surgery they commenced it as I'm worried the longer I wait the less effective treatment will be. Any other advise also would be greatly appreciated. Love to hear from anyone out there.","kudosSumWeight":0,"postTime":"2018-07-31T22:08:36.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:coping","text":"coping","time":"2025-03-25T05:01:39.590-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:diagnosis","text":"diagnosis","time":"2025-03-25T05:02:06.535-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:surgery","text":"surgery","time":"2025-02-12T19:23:18.420-08:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:40038_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":1466},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"Hi Everyone, I am new to this network. My name is Debbie and I was diagnosed with Invasive ductal carcinoma, grade 2, HER positive amplified, oestrogen and progesterone receptor positive, tumour 23mm, on 5th July, so after a life changing shock, out of the blue as no symptoms, at 51 went for my first ever mammogram. Thank god I did as I'm one of those people that thinks nothing will ever happen to! as I live a healthy life, breast fed both my children, never smoked etc. Anyway,how wrong I was, thinking I was so healthy.
I have since had a right side masectomy on 13th July, but now feeling very stressed, as am still waiting for an appointment with the oncologist. There seems to be an issue after having surgery at Royal Perth hospital I am now being told I'm suddenly out of catchment area for treatment, although not told this when I saw surgeon. I cant believe how stressful this has become waiting for chemo to start and not knowing when. I would just like to ask everyone out there who has had chemo, how long after surgery they commenced it as I'm worried the longer I wait the less effective treatment will be. Any other advise also would be greatly appreciated. Love to hear from anyone out there.","customFields":[]},"Conversation:conversation:40038":{"__typename":"Conversation","id":"conversation:40038","solved":false,"topic":{"__ref":"ForumTopicMessage:message:40038"},"lastPostingActivityTime":"2018-09-06T17:48:31.000-07:00","lastPostTime":"2018-09-06T17:48:31.000-07:00","unreadReplyCount":63,"isSubscribed":false},"ModerationData:moderation_data:40038":{"__typename":"ModerationData","id":"moderation_data:40038","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:40038_1":{"__typename":"Revision","id":"revision:40038_1","lastEditTime":"2018-07-31T22:08:36.000-07:00"},"ForumReplyMessage:message:40093":{"__typename":"ForumReplyMessage","id":"message:40093","conversation":{"__ref":"Conversation:conversation:40038"},"author":{"__ref":"User:user:21277"},"revisionNum":1,"uid":40093,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"subject":"Re: Waiting for chemo!!","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:40093"},"parent":{"__ref":"ForumTopicMessage:message:40038"},"body":"So day 8 after first chemo of TCH I felt extreme tiredness and shivery, temperature rose to 39.4 by time I got to emergency! ended up 4 nights in hospital on antibiotics as my white blood cells dropped to zero!! very scary. Had so many tests but no infection found, one of the doctors said just having no white blood cells could have caused very high temperature. Have to say I'm fed up as if I'd been given the nuelasta injection day after chemo could probably have avoided this happening, but when I asked for it was told to wait and see if I need it next time as it's expensive!!! well now ended up costing a lot more as ended up with hospital stay, injections, antibiotics, blood thinning injections!!!! Also a quick question, does anyone else have problems with having canula put in. omg what a nightmare, can only use left arm because of risk of lymphodema on right side. they had to get senior doctor to try using help of ultrasound and still couldn't get it in. Ended up with it on top of my foot! the pain was unbelievable. Apparently you are more sensitive to pain whilst on chemo, didn't know that. ","body@stringLength":"1120","rawBody":"So day 8 after first chemo of TCH I felt extreme tiredness and shivery, temperature rose to 39.4 by time I got to emergency! ended up 4 nights in hospital on antibiotics as my white blood cells dropped to zero!! very scary. Had so many tests but no infection found, one of the doctors said just having no white blood cells could have caused very high temperature. Have to say I'm fed up as if I'd been given the nuelasta injection day after chemo could probably have avoided this happening, but when I asked for it was told to wait and see if I need it next time as it's expensive!!! well now ended up costing a lot more as ended up with hospital stay, injections, antibiotics, blood thinning injections!!!! Also a quick question, does anyone else have problems with having canula put in. omg what a nightmare, can only use left arm because of risk of lymphodema on right side. they had to get senior doctor to try using help of ultrasound and still couldn't get it in. Ended up with it on top of my foot! the pain was unbelievable. Apparently you are more sensitive to pain whilst on chemo, didn't know that. 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times","id":"message:56298","revisionNum":1,"repliesCount":8,"author":{"__ref":"User:user:21540"},"readOnly":false},"Conversation:conversation:56298":{"__typename":"Conversation","id":"conversation:56298","solved":false,"topic":{"__ref":"ForumTopicMessage:message:56298"},"lastPostingActivityTime":"2018-11-29T13:32:14.000-08:00","lastPostTime":"2018-11-29T13:32:14.000-08:00","unreadReplyCount":8,"isSubscribed":false},"ModerationData:moderation_data:56306":{"__typename":"ModerationData","id":"moderation_data:56306","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:56306_1":{"__typename":"Revision","id":"revision:56306_1","lastEditTime":"2018-11-29T13:32:14.000-08:00"},"ForumReplyMessage:message:56306":{"__typename":"ForumReplyMessage","author":{"__ref":"User:user:21540"},"id":"message:56306","revisionNum":1,"uid":56306,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-newly-diagnosed"},"conversation":{"__ref":"Conversation:conversation:56298"},"subject":"Re: Frustrating times","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:56306"},"body":"It is frustrating @Sister. My surgeon was equally as disappointed. He wasn’t meant to be in his rooms that day but had made the appointment to see me expecting that the lab would have had more than enough time. He’s on call now and won’t be in his rooms for a week, however he is checking daily and he’ll call me when they’re in and arrange a time for me to see him. So all in all I think he’s doing a great job, it’s just an exceptionally busy time with lots of new cancer cases. ","body@stringLength":"486","rawBody":"It is frustrating @Sister. My surgeon was equally as disappointed. He wasn’t meant to be in his rooms that day but had made the appointment to see me expecting that the lab would have had more than enough time. He’s on call now and won’t be in his rooms for a week, however he is checking daily and he’ll call me when they’re in and arrange a time for me to see him. So all in all I think he’s doing a great job, it’s just an exceptionally busy time with lots of new cancer cases. 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