Hi everyone I am a 42 yr old working (previously) single mum with a 15 and 18 yr old.Diagnosed on the 3 August withHER2 positive E +P +still learning lots thought I was triple negative :( whoops nope I am positive I have had a right breast mastectomy and auxiliary node clearance done a week ago today,I live in the south west of WA and I looking to chat and make new connections with an interest if anyone else has the triple positive factor.This community is amazing and any advice info is greatly appreciated as I feeling very isolated right now re others who have walked this journey Thanks a million x

I was progesterone neutral but a lot of us in general here with similar pathology. 2.5 years on and going strong. X

Hi @Shellbelle_75,I only got the two out of three positive not the trifecta. Congrats on getting through the surgery. That's one big step out of the way. There is always an abundance of information, warmth and some laughs on here. I am sure some of the triple pos ladies will be along soon enough to say Hi. Welcome lovely. xoxoxo

I had ACT-H regime. Which is chemo and targeted therapy. Firstly AC regime then Tacol and targeted therapy which continued after the taxol was completed. There are a couple of different chemo regines but all include Herceptin if Her2+

With my regime the herceptin was delivered on same day as chemo. My second regime taxol was weekly and I had herceptin also every 4th dose on that day. Not together but one after the other. The herceptin then continues on its own until 17 treatments unless any issues. They don't give the herceptin at same time as AC chemo as too risky for the heart.

Hi @Shellbelle_75 like @primek i am triple positive started treatment July 2017 4 x AC chemo 3 weeks apart, then 11 x paclitaxel weekly should have been 12 but I had peripheral neuropathy so oncologist reduced dose 10 and 11 and he recommended stopping for 12. The Hercepton started with the paclitaxel every 3 weeks for 18 doses I started on an AI letrozole when chemo finished. I'm on an AI as I have been through menopause. I struggled a bit with the AC but found the side effects of the others manageable. I've only found this site In the last few months and found it helpful. All the best for your treatment.

Triple positive looking for buddies and hope

36 Replies

Shellbelle_75
Member
7 years ago
Thanks honey will do x
kmakm
Member
7 years ago
@Shellbelle_75 You too sweets. Let us know how you get on. K xox
Shellbelle_75
Member
7 years ago
Sounds like you are effectively juggling lots of balls in the air hon,it’s such a major roller coaster this journey isn’t it.
I wish you well with your results or at very least knowledge is power if there is anything to be aware of in your results the best choices can be yours with knowledge!
rhankyou for the chemo advice hon fingers crossed
take care of you Shell x
kmakm
Member
7 years ago
Plodding on. Up and down. Crazy busy at the moment which is stressing me out a bit. I see a new psychologist, and get my genetic testing results this week. Quite a lot to process...

I'm glad to hear your pain levels are settling down. Try not to worry too much about chemo. I know that's hard to do, but for most people chemo is grotty rather than frightful. If any side effect is bothering you too much don't suffer in silence. There's something to help most of them these days. Be kind to yourself, and put yourself first. Big hug, K xox
Shellbelle_75
Member
7 years ago
Hey lovely my mastectomy sight has settled down and I am slowly getting done improvement from the lymph node removal sight..... I start chemotherapy next Thursday which I am pretty worried about but it is what is.... how are you tracking?
kmakm
Member
7 years ago
How do you feel @Shellbelle_75?
Shellbelle_75
Member
7 years ago
So sorry Taxol then tamoxifen x
Shellbelle_75
Member
7 years ago
Hi lovely
Thankyou so much for your response
after my final pathology came out after my mastectomy my diagnosis was changed from triple positive to ER and PR positive and HER2-
i hope your treatments are going well I start chemotherapy next Thursday.....
AC for 4 rounds once every three weeks then 12 weeks of weekly Tamoxifen x
Sunshine0206
Member
7 years ago
Hi 👋🏻

I am triple positive.
42.

Diagnosed at 40.

About to have my last herceptin.

Having zoladex until ovaries cone out.

Stopped tamoxifen two days ago and now take exemestane.

Having Zometa infusions starting in December.

X
Shellbelle_75
Member
7 years ago
Thankyou @Kat09 will do Thankyou for your support it is greatly appreciated x

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Triple positive looking for buddies and hope

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