Triple negative

My  nurse said last week that it is very close to being put on pbs. 

I'm sorry to hear about your husband.  My husband  passed away 11 years ago from lung cancer at the age of 49. Treatment has come a long way since then .

I an grateful to be on trial , hopefully more people will benefit from it 🙏 

Woohoo!!  That is terrific. Great that you are on the trial xx

Sadly, my husband's Stage 4 only had USA drugs approved for treatment (from his genome testing) - not available or approved for use in Australia yet!  :( 

Hi arpie.  Yes I am having immunotherapy in my trial . I will mention this one when I see my onc on Thursday.  I have heard it is receiving great results ..fingers crossed ! The good thing is more research and results are improving!

@sharon58 - has your Onc mentioned Immunotherapy at all re your Triple Negative?  In the USA they use Keytruda (approved in Aussie for Melanoma & Lung Cancer) for Triple Negative ..... there may be other Immunotherapy treatments being used over here .... Maybe ask your Onc about it xx. 

Sharon58, it certainly is a roller coaster ride, I never called it a journey.
 I just started going with the flow, cross each bridge as you need to, ride the waves so to speak.
Your surgeon will do what’s best for you regarding surgery. Surgery is a breeze compared to Chemotherapy treatment. Radiotherapy is also a breeze compared to Chemotherapy, you have just about completed the hardest treatment of all.
Try and stay as active as you can, drink plenty of fluids.
You can pm message me anytime 
Sending hugs x

Hi shellshocked2018 . Thank you for your message.  I love hearing stories like yours ! I'm so happy to hear that everything going well for you !
I am nearing the end of my treatment, don't know what surgery yet ( lumpectomy/mastectomy) and I'm just getting the jitters ! 

You are spot on when you say to keep a positive mind ...I try most of the time !

Thank you for your positive vibes 🙏 xx

Hi Sharonb58, I was diagnosed with triple negative BC in October 2018.
I first had surgery , partial mastectomy, in Dec 2018, started in Feb 2019 6 months of chemotherapy, surgery in July 2019 for a full auxiliary clearance, then commenced 30 radiation treatments in September ..All treatment finished in October 2019.
I have been cancer free  coming up to 3 years.
You can do this , stay positive, the mind is a powerful thing.
You have got this.

Hi colthul , thank you for your reply . It's definitely sounds like we are on same trial , mine is in Coffs harbour but I live in port Macquarie nsw.
I've missed one for same reason , I have one big one to go and two little ones . It's so great to hear you have had good results so far , I have a mammogram in a couple of weeks to find out . I am glad I opted for the trial as I to have heard of the great results it gets . My nurse yesterday said it's very close to being on pbs. 

I love hearing positive stories like yours . I've been fairly good throughout but now just getting a bit jittery, my nurse seems to think this is normal reaction as treatment coming to an end . I have surgery two weeks after treatment but unsure yet what they are going to do ...results will determine that I guess.

I guess it's good just to hear from someone that is in same situation so you have lifted my spirits today 😊 
Keep smashing out those good results 💪 

Hi @Sharonb58 which trial are you in? I am in an immunotherapy trial for TNBC and am almost half way. Interested to see if you are in the same trial. Mine is for stage 1 TNBC and from what I have read and head from others it is having fantastic results. By my third infusion I no longer had a palpable mass. It's hard not to get excited when your oncologist is excited lol. 
I have had some ups and downs, I had to miss my taxtol treatment last week because my neutrophils were too low and my liver function almost stopped me having it yesterday. 

Lol ...I really didn't notice !

Yeah , thanks for that ! I will inquire tomorrow.  It's a 300km round trip and sometimes it's twice a week so that would be really handy to get something back.

I have spoken to Joanne from Port but not since I have been going to Coffs. I find that they are so good so will just have to say I've been struggling mentally a bit instead of going everything going ok !

Once again , thanks for this info . I will get that sorted 👌